{"id":173851,"date":"2026-03-27T09:00:47","date_gmt":"2026-03-27T13:00:47","guid":{"rendered":"https:\/\/wfh.org\/?p=173851"},"modified":"2026-04-17T11:04:30","modified_gmt":"2026-04-17T15:04:30","slug":"temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/","title":{"rendered":"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : Najmul Alam transforme son exp\u00e9rience personnelle en r\u00e9sultats concrets"},"content":{"rendered":"\t\t
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Pour Najmul, l\u2019un des aspects les plus pr\u00e9cieux de l\u2019Acad\u00e9mie de plaidoyer du PACT<\/a> a \u00e9t\u00e9 la rencontre avec ses pair\u00b7es du monde entier qui partagent son engagement en faveur de l\u2019avancement des soins. \u00ab\u00a0\u00catre sur une seule plateforme avec des participant\u00b7es de diff\u00e9rents pays a enrichi ma perspective et m\u2019a donn\u00e9 des id\u00e9es concr\u00e8tes que je pourrai adapter localement\u00a0\u00bb, observe-t-il. Il rend aussi hommage \u00e0 ses mentors, dont les exp\u00e9riences de terrain lui ont fourni des pistes de r\u00e9flexion sur le d\u00e9pistage, la planification strat\u00e9gique et le lobbyisme efficace.<\/p>\n

Le projet de plaidoyer de Najmul se concentre sur la sensibilisation et l\u2019am\u00e9lioration des services de diagnostic pour les personnes atteintes d\u2019un trouble de la coagulation et sur l\u2019aide aux membres de la famille au sein des r\u00e9seaux existants des troubles de la coagulation. L\u2019objectif est d\u2019\u00e9largir la base nationale des patient\u00b7es et d\u2019assurer que les individus re\u00e7oivent une aide et des soins rapides. L\u2019une des principales difficult\u00e9s \u00e0 laquelle il s\u2019est heurt\u00e9 dans son projet a \u00e9t\u00e9 le m\u00e9lange d\u2019h\u00e9sitation et de stigmatisation qui emp\u00eache les familles de se manifester. Pour lutter contre cela, il a men\u00e9 des sessions de sensibilisation, sollicit\u00e9 directement les membres de la communaut\u00e9 et renforc\u00e9 les relations existantes. Ces efforts ont d\u00e9j\u00e0 permis d\u2019identifier de nouvelles personnes atteintes d\u2019un trouble de la coagulation et d\u2019intensifier l\u2019engagement communautaire.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00catre sur une seule plateforme avec des participant\u00b7es de diff\u00e9rents pays a enrichi ma perspective et m\u2019a donn\u00e9 des id\u00e9es concr\u00e8tes que je pourrai adapter localement.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Najmul Alam, pr\u00e9sident de la Hemophilia Society of Bangladesh<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Gr\u00e2ce \u00e0 l\u2019Acad\u00e9mie de plaidoyer du PACT, Najmul a acquis des comp\u00e9tences pratiques de planification de projets de plaidoyer, de sensibilisation communautaire et d\u2019implication du gouvernement et des parties prenantes de la sant\u00e9. Le programme a chang\u00e9 sa perspective sur le plaidoyer, qui est pass\u00e9e d\u2019une simple sensibilisation \u00e0 la contribution \u00e0 un changement durable et fond\u00e9 sur les preuves.<\/p>\n

\u00c0 l\u2019avenir, Najmul compte \u00e9largir les activit\u00e9s de d\u00e9pistage, renforcer la collaboration avec les agences gouvernementales et former d\u2019autres d\u00e9fenseur\u00b7es des droits. Il esp\u00e8re qu\u2019\u00e0 long terme, il pourra contribuer \u00e0 l\u2019\u00e9laboration d\u2019un registre national exhaustif des patient\u00b7es, et assurer l\u2019acc\u00e8s \u00e9quitable aux soins pour toutes les personnes atteintes d\u2019un trouble de la coagulation.<\/p>\n

Son message aux futur\u00b7es d\u00e9fenseur\u00b7es des droits\u00a0: \u00ab\u00a0Engagez-vous vraiment, gardez l\u2019esprit ouvert pour apprendre, et transformez vos connaissances en action.\u00a0\u00bb<\/p>\n

Pour en savoir plus sur le Programme PACT de la FMH,\u00a0cliquez ici<\/a>.<\/p>\n

Le programme PACT b\u00e9n\u00e9ficie du soutien financier de Roche et Sanofi, nos partenaires visionnaires, et de CSL Behring et Pfizer, nos partenaires leaders.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Cet article fait partie d\u2019une s\u00e9rie d\u00e9di\u00e9e aux leaders et d\u00e9fenseur\u00b7es des droits qui changent les choses par leur implication dans l\u2019Acad\u00e9mie de plaidoyer du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT), et par leurs actions de plaidoyer en faveur de la communaut\u00e9. Pour lire d\u2019autres articles issus de cette s\u00e9rie, consultez le tableau ci-dessous\u00a0:<\/p>\n\n\n\n\n\n
Membre de l\u2019Acad\u00e9mie de plaidoyer du PACT<\/strong><\/td>\nPays<\/strong><\/td>\nLien de l\u2019article<\/strong><\/td>\n<\/tr>\n
Dr Tahani Ali (MD)<\/td>\nSyrie<\/td>\nCliquez ici<\/a><\/td>\n<\/tr>\n
Nibia G\u00f3mez<\/td>\nUruguay<\/td>\nCliquez ici<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n

 <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Pour Najmul Alam, pr\u00e9sident de la Hemophilia Society of Bangladesh, vivre avec un trouble de la coagulation n\u2019a jamais \u00e9t\u00e9 un facteur limitant mais un appel \u00e0 l\u2019action. \u00c0 la fois personne concern\u00e9e et leader de son organisation nationale membre (ONM) au Bangladesh, il a consacr\u00e9 sa vie \u00e0 faire en sorte que les personnes atteintes d\u2019un trouble de la coagulation aient acc\u00e8s au diagnostic, aux soins et \u00e0 d\u2019autres services d\u2019aide. Port\u00e9 par sa vision, il a rejoint l\u2019Acad\u00e9mie de plaidoyer du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) afin de renforcer ses comp\u00e9tences de plaidoyer, d\u2019apprendre les bonnes pratiques internationales et d\u2019apporter un changement concret aux personnes mal desservies et sous-diagnostiqu\u00e9es du Bangladesh.<\/p>\n","protected":false},"author":13,"featured_media":172107,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[398,386],"tags":[],"search-category":[85],"class_list":["post-173851","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-4","category-national-member-organization-nmo-news","search-category-article"],"yoast_head":"\nT\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : Najmul Alam transforme son exp\u00e9rience personnelle en r\u00e9sultats concrets | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : Najmul Alam transforme son exp\u00e9rience personnelle en r\u00e9sultats concrets\" \/>\n<meta property=\"og:description\" content=\"Pour Najmul Alam, pr\u00e9sident de la Hemophilia Society of Bangladesh, vivre avec un trouble de la coagulation n\u2019a jamais \u00e9t\u00e9 un facteur limitant mais un appel \u00e0 l\u2019action. \u00c0 la fois personne concern\u00e9e et leader de son organisation nationale membre (ONM) au Bangladesh, il a consacr\u00e9 sa vie \u00e0 faire en sorte que les personnes atteintes d\u2019un trouble de la coagulation aient acc\u00e8s au diagnostic, aux soins et \u00e0 d\u2019autres services d\u2019aide. Port\u00e9 par sa vision, il a rejoint l\u2019Acad\u00e9mie de plaidoyer du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) afin de renforcer ses comp\u00e9tences de plaidoyer, d\u2019apprendre les bonnes pratiques internationales et d\u2019apporter un changement concret aux personnes mal desservies et sous-diagnostiqu\u00e9es du Bangladesh.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2026-03-27T13:00:47+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-04-17T15:04:30+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2026\/03\/PACT-stories-Najmul-Alam-header-FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : Najmul Alam transforme son exp\u00e9rience personnelle en r\u00e9sultats concrets\",\"datePublished\":\"2026-03-27T13:00:47+00:00\",\"dateModified\":\"2026-04-17T15:04:30+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/\"},\"wordCount\":611,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2026\/03\/PACT-stories-Najmul-Alam-header-FR.jpg\",\"articleSection\":[\"Featured 4\",\"National member organization (NMO) news\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-najmul-alam-transforme-son-experience-personnelle-en-resultats-concrets\/\",\"name\":\"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : Najmul Alam transforme son exp\u00e9rience personnelle en r\u00e9sultats concrets | FMH - 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