{"id":172407,"date":"2026-03-06T09:00:10","date_gmt":"2026-03-06T14:00:10","guid":{"rendered":"https:\/\/wfh.org\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/"},"modified":"2026-03-12T09:40:01","modified_gmt":"2026-03-12T13:40:01","slug":"temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/","title":{"rendered":"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : la Dr Tahani Ali (MD) ouvre la voie \u00e0 des soins plus s\u00fbrs en Syrie"},"content":{"rendered":"\t\t
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En 2024, elle a rejoint l\u2019Acad\u00e9mie de plaidoyer du PACT<\/a> de la FMH pour renforcer ses comp\u00e9tences de plaidoyer et continuer \u00e0 d\u00e9velopper le travail de la Soci\u00e9t\u00e9. \u00ab\u00a0Je souhaitais apprendre et acqu\u00e9rir des comp\u00e9tences avanc\u00e9es de plaidoyer pour mieux aider l\u2019association\u00a0\u00bb, explique-t-elle. L\u2019Acad\u00e9mie offre aux responsables et militant\u00b7es des organisations nationales membres (ONM) de la FMH les comp\u00e9tences et connaissances n\u00e9cessaires pour mettre en place des projets fructueux de plaidoyer fond\u00e9 sur les preuves, ainsi que des connaissances fondamentales sur les options de traitement, les standards de soins et l\u2019\u00e9conomie de la sant\u00e9.<\/p>\n

\u00c0 l\u2019Acad\u00e9mie, elle s\u2019est concentr\u00e9e sur un projet li\u00e9 \u00e0 l\u2019am\u00e9lioration de l\u2019identification des risques de saignement avant les interventions chirurgicales et dentaires. Le projet d\u00e9fendait l\u2019utilisation d\u2019un outil d\u2019\u00e9valuation de la coagulation (BAT) valid\u00e9, un simple outil de d\u00e9pistage qui ne prend que quelques minutes \u00e0 mettre en place et permet d\u2019\u00e9viter des complications graves. Elle milite pour l\u2019utilisation de routine du BAT par les professionnel\u00b7les de sant\u00e9, pour la formation sur cet outil par les associations m\u00e9dicales, et pour que les autorit\u00e9s de sant\u00e9 l\u2019incluent dans les politiques de soins.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Je souhaitais apprendre et acqu\u00e9rir des comp\u00e9tences avanc\u00e9es de plaidoyer [aupr\u00e8s de l\u2019acad\u00e9mie de plaidoyer du PACT de la FMH] pour mieux aider l\u2019association. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Dr Tahani Ali (MD), fondatrice de la Soci\u00e9t\u00e9 syrienne de l\u2019h\u00e9mophilie, professeure \u00e0 l\u2019universit\u00e9 de Damas, responsable du d\u00e9partement laboratoire de l\u2019h\u00f4pital universitaire d\u2019obst\u00e9trique et de gyn\u00e9cologie de Damas<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Les progr\u00e8s ont demand\u00e9 de la patience et du suivi, en particulier lorsqu\u2019il s\u2019est agi d\u2019obtenir des validations de la part d\u2019h\u00f4pitaux et d\u2019institutions. Ses efforts ont toutefois d\u00e9j\u00e0 pay\u00e9\u00a0: deux grands h\u00f4pitaux de Damas ont accept\u00e9 d\u2019inclure le BAT dans le dossier m\u00e9dical de chaque patient\u00b7e, ce qui est pour la m\u00e9decin une grande r\u00e9ussite.<\/p>\n

Pour elle, le plaidoyer est un travail continu. \u00ab\u00a0Rien n\u2019est impossible\u00a0\u00bb, d\u00e9clare-t-elle. \u00ab\u00a0Nous devons continuer car nos patient\u00b7es [ont besoin de nous].\u00a0\u00bb Son t\u00e9moignage refl\u00e8te tout son d\u00e9vouement, sa d\u00e9termination, et les effets d\u2019un plaidoyer continu et efficace.<\/p>\n

Pour en savoir plus sur le Programme PACT de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Ceci est le premier article d\u2019une s\u00e9rie d\u00e9di\u00e9e aux leaders et d\u00e9fenseur\u00b7es des droits qui changent les choses par leur implication dans l\u2019Acad\u00e9mie de plaidoyer du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT), et par leurs actions de plaidoyer en faveur de la communaut\u00e9.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Lorsque la Dr Tahani Ali (MD) a fond\u00e9 la Soci\u00e9t\u00e9 syrienne de l\u2019h\u00e9mophilie en 2006, son objectif \u00e9tait de cr\u00e9er un espace de soutien pour les personnes atteintes de troubles de la coagulation afin qu\u2019elles re\u00e7oivent de meilleurs soins. Pr\u00e8s de vingt ans plus tard, elle continue de diriger l\u2019organisation en tant que pr\u00e9sidente, tout en exer\u00e7ant comme professeure \u00e0 l\u2019universit\u00e9 de Damas et directrice du d\u00e9partement laboratoire \u00e0 l\u2019h\u00f4pital universitaire d\u2019obst\u00e9trique et de gyn\u00e9cologie de Damas. Aujourd\u2019hui, gr\u00e2ce \u00e0 sa participation \u00e0 l\u2019Acad\u00e9mie de plaidoyer du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH), la Dr Tahani Ali a pu renforcer les retomb\u00e9es positives pour sa communaut\u00e9.<\/p>\n","protected":false},"author":13,"featured_media":172069,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[333,29],"tags":[],"search-category":[85],"class_list":["post-172407","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3","category-pact","search-category-article"],"yoast_head":"\nT\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : la Dr Tahani Ali (MD) ouvre la voie \u00e0 des soins plus s\u00fbrs en Syrie | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : la Dr Tahani Ali (MD) ouvre la voie \u00e0 des soins plus s\u00fbrs en Syrie\" \/>\n<meta property=\"og:description\" content=\"Lorsque la Dr Tahani Ali (MD) a fond\u00e9 la Soci\u00e9t\u00e9 syrienne de l\u2019h\u00e9mophilie en 2006, son objectif \u00e9tait de cr\u00e9er un espace de soutien pour les personnes atteintes de troubles de la coagulation afin qu\u2019elles re\u00e7oivent de meilleurs soins. 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Aujourd\u2019hui, gr\u00e2ce \u00e0 sa participation \u00e0 l\u2019Acad\u00e9mie de plaidoyer du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH), la Dr Tahani Ali a pu renforcer les retomb\u00e9es positives pour sa communaut\u00e9.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2026-03-06T14:00:10+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-12T13:40:01+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2026\/03\/PACT-stories-Tahani-Ali-header-FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : la Dr Tahani Ali (MD) ouvre la voie \u00e0 des soins plus s\u00fbrs en Syrie\",\"datePublished\":\"2026-03-06T14:00:10+00:00\",\"dateModified\":\"2026-03-12T13:40:01+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/\"},\"wordCount\":496,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2026\/03\/PACT-stories-Tahani-Ali-header-FR.jpg\",\"articleSection\":[\"Featured 3\",\"WFH Path to Access to Care and Treatment (PACT) Program\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/temoignages-des-eleves-de-lacademie-de-plaidoyer-du-pact-la-dr-tahani-ali-md-ouvre-la-voie-a-des-soins-plus-surs-en-syrie\/\",\"name\":\"T\u00e9moignages des \u00e9l\u00e8ves de l\u2019Acad\u00e9mie de plaidoyer du PACT : la Dr Tahani Ali (MD) ouvre la voie \u00e0 des soins plus s\u00fbrs en Syrie | FMH - 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Pr\u00e8s de vingt ans plus tard, elle continue de diriger l\u2019organisation en tant que pr\u00e9sidente, tout en exer\u00e7ant comme professeure \u00e0 l\u2019universit\u00e9 de Damas et directrice du d\u00e9partement laboratoire \u00e0 l\u2019h\u00f4pital universitaire d\u2019obst\u00e9trique et de gyn\u00e9cologie de Damas. 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