{"id":167117,"date":"2026-04-01T09:00:53","date_gmt":"2026-04-01T13:00:53","guid":{"rendered":"https:\/\/wfh.org\/?p=167117"},"modified":"2026-04-07T10:08:29","modified_gmt":"2026-04-07T14:08:29","slug":"les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/","title":{"rendered":"Les belles histoires 2025 du Programme d\u2019aide humanitaire de la FMH au Sri Lanka"},"content":{"rendered":"\t\t
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En 2025, nous vous avons pr\u00e9sent\u00e9 les histoires de deux jeunes hommes du Sri Lanka pour illustrer les r\u00e9sultats transformateurs que produisent un soutien v\u00e9ritable et le don de produits th\u00e9rapeutiques. Ci-dessous les r\u00e9sum\u00e9s de ces articles inspirants.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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L\u2019histoire d\u2019un village isol\u00e9<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Un jeune homme de 20 ans originaire d\u2019un village sri lankais isol\u00e9 reconstruit sa vie apr\u00e8s des ann\u00e9es de saignements r\u00e9guliers, gr\u00e2ce \u00e0 un don de produit th\u00e9rapeutique fourni par le Programme d\u2019aide humanitaire de la FMH<\/a>. Diagnostiqu\u00e9 d\u2019une h\u00e9mophilie A avec inhibiteurs apr\u00e8s avoir subi de fr\u00e9quents saignements au genou pendant plus de cinq ans, il a vu son \u00e9tat empirer avec une pseudotumeur grave qui l\u2019emp\u00eachait de marcher. Gr\u00e2ce \u00e0 l\u2019acc\u00e8s \u00e0 des dons de facteur et \u00e0 une th\u00e9rapie non substitutive, fournis par la FMH, il a pu subir une amputation juste au-dessus du genou en 2022. Une prophylaxie constante, de la kin\u00e9sith\u00e9rapie et une proth\u00e8se de jambe lui ont depuis permis de retrouver sa mobilit\u00e9 et de reprendre ainsi ses \u00e9tudes.<\/p>\n

Pour lire l\u2019article \u00ab\u00a0L\u2019aide de la FMH permet \u00e0 un jeune Sri Lankais de marcher \u00e0 nouveau\u00a0\u00bb en int\u00e9gralit\u00e9, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Une histoire d\u2019Anuradhapura<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Un jeune homme d\u2019Anuradhapura profite d\u2019une qualit\u00e9 de vie bien meilleure gr\u00e2ce au soutien de la FMH. Diagnostiqu\u00e9 d\u2019une h\u00e9mophilie A s\u00e9v\u00e8re, il a vu son \u00e9tat s\u2019aggraver en 2016 lorsqu\u2019il a d\u00e9velopp\u00e9 des inhibiteurs, ce qui a conduit \u00e0 des saignements articulaires \u00a0fr\u00e9quents et handicapants. Apr\u00e8s un traitement par agents de contournement et th\u00e9rapie par induction de la tol\u00e9rance immune, qui n\u2019ont pas donn\u00e9 les r\u00e9sultats esp\u00e9r\u00e9s, ses soins ont pris un nouveau souffle lorsqu\u2019il a commenc\u00e9 \u00e0 recevoir une th\u00e9rapie non substitutive gr\u00e2ce au Programme d\u2019aide humanitaire de la FMH. Depuis, il n\u2019a plus de saignements et peut vivre de mani\u00e8re ind\u00e9pendante.<\/p>\n

Pour lire l\u2019article \u00ab\u00a0Au Sri Lanka, une th\u00e9rapie non substitutive transforme la vie d\u2019une personne atteinte d\u2019un trouble de la coagulation\u00a0\u00bb, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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L\u2019action de la FMH au Sri Lanka<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Depuis 2015, le Sri Lanka a re\u00e7u pr\u00e8s de 80 millions d\u2019UI de facteur et pr\u00e8s de 877\u00a0000\u00a0mg de th\u00e9rapies non substitutives de la part du Programme d\u2019aide humanitaire de la FMH. Rien qu\u2019en 2025, c\u2019est pr\u00e8s de 9,8 millions d\u2019UI de facteur et pr\u00e8s de 50\u00a0000\u00a0mg de th\u00e9rapies non substitutives que le pays a re\u00e7us en dons. Pour en savoir plus sur le Programme d\u2019aide humanitaire, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

L\u2019\u00e9quipe du Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) collabore avec diverses parties prenantes au Sri Lanka depuis des ann\u00e9es, afin d\u2019am\u00e9liorer les soins aux personnes atteintes d\u2019un trouble de la coagulation. Ces efforts ont continu\u00e9 \u00e0 porter leurs fruits en 2025, permettant \u00e0 des personnes de b\u00e9n\u00e9ficier d\u2019une meilleure qualit\u00e9 de vie et de pouvoir esp\u00e9rer un avenir plus cl\u00e9ment. <\/p>\n","protected":false},"author":13,"featured_media":144649,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[333,45],"tags":[],"search-category":[85],"class_list":["post-167117","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3","category-wfh-humanitarian-aid-program","search-category-article"],"yoast_head":"\nLes belles histoires 2025 du Programme d\u2019aide humanitaire de la FMH au Sri Lanka | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Les belles histoires 2025 du Programme d\u2019aide humanitaire de la FMH au Sri Lanka\" \/>\n<meta property=\"og:description\" content=\"L\u2019\u00e9quipe du Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) collabore avec diverses parties prenantes au Sri Lanka depuis des ann\u00e9es, afin d\u2019am\u00e9liorer les soins aux personnes atteintes d\u2019un trouble de la coagulation. Ces efforts ont continu\u00e9 \u00e0 porter leurs fruits en 2025, permettant \u00e0 des personnes de b\u00e9n\u00e9ficier d\u2019une meilleure qualit\u00e9 de vie et de pouvoir esp\u00e9rer un avenir plus cl\u00e9ment.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2026-04-01T13:00:53+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-04-07T14:08:29+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/06\/Sri-Lanka-Emi-15-year-old-amputee-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Les belles histoires 2025 du Programme d\u2019aide humanitaire de la FMH au Sri Lanka\",\"datePublished\":\"2026-04-01T13:00:53+00:00\",\"dateModified\":\"2026-04-07T14:08:29+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/\"},\"wordCount\":615,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/06\/Sri-Lanka-Emi-15-year-old-amputee-header.jpg\",\"articleSection\":[\"Featured 3\",\"WFH Humanitarian Aid Program\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/les-belles-histoires-2025-du-programme-daide-humanitaire-de-la-fmh-au-sri-lanka\/\",\"name\":\"Les belles histoires 2025 du Programme d\u2019aide humanitaire de la FMH au Sri Lanka | FMH - 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