{"id":164477,"date":"2025-12-18T09:00:09","date_gmt":"2025-12-18T14:00:09","guid":{"rendered":"https:\/\/wfh.org\/?p=164477"},"modified":"2026-01-14T09:35:57","modified_gmt":"2026-01-14T14:35:57","slug":"publication-dun-nouveau-livret-pedagogique-sur-ledition-genomique-et-les-technologies-genetiques","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/publication-dun-nouveau-livret-pedagogique-sur-ledition-genomique-et-les-technologies-genetiques\/","title":{"rendered":"Publication d\u2019un nouveau livret p\u00e9dagogique sur l\u2019\u00e9dition g\u00e9nomique et les technologies g\u00e9n\u00e9tiques"},"content":{"rendered":"\t\t
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Ce livret<\/a> propose un aper\u00e7u clair et visuel du fonctionnement de l\u2019\u00e9dition g\u00e9nomique, et de ses diff\u00e9rences avec les autres technologies g\u00e9n\u00e9tiques comme la th\u00e9rapie g\u00e9nique par virus ad\u00e9no-associ\u00e9 (AAV) et la th\u00e9rapie par lentivirus. Le document commence par expliquer simplement l\u2019ADN et son r\u00f4le dans le corps, avant d\u2019introduire des concepts plus avanc\u00e9s. Pour rendre l\u2019\u00e9dition g\u00e9nomique plus facile \u00e0 comprendre, une analogie avec un livre est employ\u00e9e, montrant comment l\u2019\u00e9dition g\u00e9nomique peut modifier, remplacer ou ajouter une \u00ab\u00a0phrase\u00a0\u00bb en particulier dans la s\u00e9quence ADN. Sont \u00e9galement \u00e9voqu\u00e9es des questions autour de la s\u00e9curit\u00e9, de la durabilit\u00e9, de l\u2019h\u00e9ritabilit\u00e9 et de l\u2019usage chez les enfants.<\/p>\n

Pour lire \u00ab\u00a0Technologies g\u00e9n\u00e9tiques pour l\u2019h\u00e9mophilie\u00a0\u00bb, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Vous souhaitez en savoir plus ? Regardez notre webinaire !<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le 25 novembre 2025, la FMH a propos\u00e9 un webinaire intitul\u00e9 \u00ab Vers un rem\u00e8de \u00e0 l\u2019h\u00e9mophilie : une explication sur les technologiques g\u00e9n\u00e9tiques \u00bb. Cette session a examin\u00e9 la science sur laquelle s\u2019appuie l\u2019\u00e9dition g\u00e9nomique, la mani\u00e8re dont elle se fonde sur les technologies g\u00e9n\u00e9tiques existantes et ce que cela pourrait signifier pour l\u2019avenir des traitements. L\u2019\u00e9v\u00e9nement, auquel le Dr Glenn Pierce (MD, PhD), vice-pr\u00e9sident m\u00e9dical de la FMH, a particip\u00e9, comprenait une session questions-r\u00e9ponses, et \u00e9tait ouvert \u00e0 la fois aux professionnel\u00b7les de sant\u00e9 et \u00e0 la communaut\u00e9 de l\u2019h\u00e9mophilie. Pour regarder le webinaire sur la plateforme d\u2019apprentissage en ligne de la FMH, cliquez ici<\/a> (en anglais).<\/p>\n

Le nouveau livret p\u00e9dagogique sur l\u2019\u00e9dition g\u00e9nomique et les technologies g\u00e9n\u00e9tiques a \u00e9t\u00e9 exclusivement soutenue par Regeneron.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a le plaisir d\u2019annoncer la publication d\u2019un nouveau livret p\u00e9dagogique donnant des explications sur l\u2019\u00e9dition g\u00e9nomique et d\u2019autres technologies g\u00e9n\u00e9tiques dans le contexte des soins de l\u2019h\u00e9mophilie. \u00ab Les technologies g\u00e9n\u00e9tiques pour l\u2019h\u00e9mophilie \u00bb est con\u00e7u pour rendre des concepts scientifiques complexes accessibles \u00e0 la fois aux personnes atteintes d\u2019un trouble de la coagulation et aux professionnel\u00b7les de sant\u00e9, et pour favoriser des conversations \u00e9clair\u00e9es sur les possibilit\u00e9s de traitement \u00e9mergentes.<\/p>\n","protected":false},"author":13,"featured_media":164365,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[177,399,203],"tags":[],"search-category":[85],"class_list":["post-164477","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite-medicale","category-featured-4-fr","category-gene-therapy-fr","search-category-article"],"yoast_head":"\nPublication d\u2019un nouveau livret p\u00e9dagogique sur l\u2019\u00e9dition g\u00e9nomique et les technologies g\u00e9n\u00e9tiques | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/publication-dun-nouveau-livret-pedagogique-sur-ledition-genomique-et-les-technologies-genetiques\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Publication d\u2019un nouveau livret p\u00e9dagogique sur l\u2019\u00e9dition g\u00e9nomique et les technologies g\u00e9n\u00e9tiques\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a le plaisir d\u2019annoncer la publication d\u2019un nouveau livret p\u00e9dagogique donnant des explications sur l\u2019\u00e9dition g\u00e9nomique et d\u2019autres technologies g\u00e9n\u00e9tiques dans le contexte des soins de l\u2019h\u00e9mophilie. \u00ab Les technologies g\u00e9n\u00e9tiques pour l\u2019h\u00e9mophilie \u00bb est con\u00e7u pour rendre des concepts scientifiques complexes accessibles \u00e0 la fois aux personnes atteintes d\u2019un trouble de la coagulation et aux professionnel\u00b7les de sant\u00e9, et pour favoriser des conversations \u00e9clair\u00e9es sur les possibilit\u00e9s de traitement \u00e9mergentes.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/publication-dun-nouveau-livret-pedagogique-sur-ledition-genomique-et-les-technologies-genetiques\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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