{"id":162227,"date":"2026-02-10T09:00:54","date_gmt":"2026-02-10T14:00:54","guid":{"rendered":"https:\/\/wfh.org\/?p=162227"},"modified":"2026-02-19T09:42:41","modified_gmt":"2026-02-19T14:42:41","slug":"au-kirghizistan-de-grands-progres-grace-a-des-initiatives-continues-de-plaidoyer","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/au-kirghizistan-de-grands-progres-grace-a-des-initiatives-continues-de-plaidoyer\/","title":{"rendered":"Au Kirghizistan, de grands progr\u00e8s gr\u00e2ce \u00e0 des initiatives continues de plaidoyer"},"content":{"rendered":"\t\t
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\u00ab\u00a0Nous \u00e9tions cette semaine \u00e0 Bishkek, o\u00f9 nous avons visit\u00e9 les \u00e9tablissements de soins\u00a0\u00bb, raconte le Dr Assad Haffar (MD), directeur de l\u2019aide humanitaire et de la formation m\u00e9dicale au sein de la FMH. \u00ab\u00a0En comparant avec [la premi\u00e8re visite en 2019], on constate de grands progr\u00e8s, beaucoup de nouvelles choses qui ont \u00e9t\u00e9 d\u00e9velopp\u00e9es \u00e0 la fois [dans les h\u00f4pitaux p\u00e9diatriques et pour adultes] en termes de diagnostic, de prise en charge de l\u2019h\u00e9mophilie et d\u2019exp\u00e9rience du personnel, et nous avons observ\u00e9 la grande confiance des professionnel\u00b7les de sant\u00e9 dans leur traitement des troubles de la coagulation.\u00a0\u00bb<\/p>\n

Avant que la FMH et son Programme d\u2019aide humanitaire<\/a> commencent \u00e0 collaborer avec les\u00a0 professionnel\u00b7les de sant\u00e9 et la Soci\u00e9t\u00e9 kirghize de l\u2019h\u00e9mophilie, l\u2019organisation nationale membre du pays, la situation \u00e9tait tr\u00e8s difficile pour la communaut\u00e9 locale des troubles h\u00e9r\u00e9ditaires de la coagulation. Akmaral, dont le fils Akynoos est atteint d\u2019h\u00e9mophilie, se souvient que son enfant avait des saignements fr\u00e9quents lorsqu\u2019il \u00e9tait plus jeune. \u00ab\u00a0Gr\u00e2ce au Programme d\u2019aide humanitaire de la FMH, il est aujourd\u2019hui en bonne sant\u00e9 articulaire\u00a0\u00bb, explique-t-elle. \u00ab\u00a0Ainsi, gr\u00e2ce \u00e0 cette aide humanitaire, nous [\u2026] avons [moins de] stress d\u00e9sormais.\u00a0\u00bb Akynoos lui-m\u00eame souligne le changement que l\u2019acc\u00e8s au traitement a apport\u00e9 dans sa vie\u00a0: \u00ab\u00a0je me sens bien gr\u00e2ce aux [produits th\u00e9rapeutiques]. Je me sens mieux que lorsque j\u2019\u00e9tais enfant\u2026 et je me sens plus fort.\u00a0\u00bb<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Nous essayons toujours de faire entendre la voix des patient\u00b7es par les autorit\u00e9s, l\u2019\u00c9tat, le minist\u00e8re de la Sant\u00e9 [\u2026] ces derni\u00e8res ann\u00e9es, ils ont commenc\u00e9 \u00e0 nous \u00e9couter. Beaucoup de probl\u00e8mes commencent \u00e0 \u00eatre r\u00e9solus.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Ilzat Gapparov, vice-pr\u00e9sident de la Soci\u00e9t\u00e9 kirghize de l\u2019h\u00e9mophilie<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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La FMH a propos\u00e9 \u00e0 l\u2019ONM des conseils en mati\u00e8re de plaidoyer, ce qui explique en grande partie comment tant d\u2019am\u00e9liorations ont \u00e9t\u00e9 possibles dans les soins. Ilzat Gapparov, vice-pr\u00e9sident de la Soci\u00e9t\u00e9 kirghize de l\u2019h\u00e9mophilie, explique que ces enseignements ont aid\u00e9 l\u2019ONM \u00e0 progresser dans ses relations avec les d\u00e9cisionnaires\u00a0: \u00ab\u00a0Nous essayons toujours de faire entendre la voix des patient\u00b7es par les autorit\u00e9s, l\u2019\u00c9tat, le minist\u00e8re de la Sant\u00e9 [\u2026] ces derni\u00e8res ann\u00e9es, ils ont commenc\u00e9 \u00e0 nous \u00e9couter. Beaucoup de probl\u00e8mes commencent \u00e0 \u00eatre r\u00e9solus, [comme] les difficult\u00e9s de diagnostic, de kin\u00e9sith\u00e9rapie et de r\u00e9\u00e9ducation.\u00a0\u00bb<\/p>\n

Karine Kocharian, responsable r\u00e9gionale de la FMH, expose la meilleure approche pour une campagne de plaidoyer efficace\u00a0: \u00ab\u00a0depuis le d\u00e9but, ce qui \u00e9tait important \u00e9tait d\u2019aider l\u2019organisation \u00e0 d\u00e9velopper ses relations avec le gouvernement, et de [travailler] ensemble pour effectuer des changements \u00e0 long terme au sein du syst\u00e8me de sant\u00e9, afin que les personnes de toutes les r\u00e9gions aient acc\u00e8s au traitement.\u00a0\u00bb<\/p>\n

Lorsqu\u2019il envisage l\u2019avenir, Akynoos est optimiste\u00a0: \u00ab\u00a0je pense que mon avenir sera merveilleux. Les choses seront plus faciles qu\u2019avant. Et je ne pense pas que mon h\u00e9mophilie m\u2019emp\u00eachera de r\u00e9ussir quoi que ce soit.\u00a0\u00bb<\/p>\n

La FMH agit au Kirghizistan par le biais du Programme d\u2019aide humanitaire et d\u2019autres initiatives comme le jumelage des organisations de jeunes, le programme AMP, pr\u00e9d\u00e9cesseur du Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT), ainsi qu\u2019un programme national de la FMH.<\/p>\n

Cet article est le dernier d\u2019une s\u00e9rie en trois \u00e9pisodes sur l\u2019am\u00e9lioration des soins aux personnes atteintes d\u2019un trouble de la coagulation au Kirghizistan. Pour lire le premier article, \u00ab\u00a0Au Kirghizistan, l\u2019acc\u00e8s au traitement am\u00e9liore les niveaux de soins\u00a0\u00bb, cliquez ici<\/a>. Pour lire le deuxi\u00e8me article, \u00ab\u00a0Au Kirghizistan, la FMH apporte un nouvel espoir aux personnes atteintes d\u2019h\u00e9mophilie\u00a0\u00bb, c\u2019est ici<\/a>. Pour en savoir plus sur la Soci\u00e9t\u00e9 kirghize de l\u2019h\u00e9mophilie, l\u2019ONM locale, cliquez ici<\/a>.<\/p>\n

En 2024, le Programme d\u2019aide humanitaire de la FMH a fait don de plus de 5 millions d\u2019UI de facteur au Kirghizistan. Depuis 2015, c\u2019est plus de 37 millions d\u2019UI de facteur que le pays a re\u00e7us en dons. Pour en savoir plus sur le Programme d\u2019aide humanitaire, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Gr\u00e2ce \u00e0 un travail de longue haleine effectu\u00e9 par la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) au Kirghizistan, de grands progr\u00e8s sont effectu\u00e9s dans les soins aux troubles de la coagulation, ce qui donne un nouveau souffle optimiste aux patient\u00b7es et \u00e0 leurs familles. L\u2019un des moteurs principaux du changement a \u00e9t\u00e9 le plaidoyer aupr\u00e8s du gouvernement, du minist\u00e8re de la Sant\u00e9 et des autres parties prenantes. Cette ann\u00e9e, le Programme d\u2019aide humanitaire de la FMH s\u2019est rendu au Kirghizistan pour constater sur le terrain comment les actions de plaidoyer et les autres initiatives permettent d\u2019am\u00e9liorer les soins, et ce voyage a beaucoup inspir\u00e9 l\u2019\u00e9quipe. <\/p>\n","protected":false},"author":13,"featured_media":161563,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[399,184],"tags":[],"search-category":[85],"class_list":["post-162227","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-4-fr","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nAu Kirghizistan, de grands progr\u00e8s gr\u00e2ce \u00e0 des initiatives continues de plaidoyer | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/au-kirghizistan-de-grands-progres-grace-a-des-initiatives-continues-de-plaidoyer\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Au Kirghizistan, de grands progr\u00e8s gr\u00e2ce \u00e0 des initiatives continues de plaidoyer\" \/>\n<meta property=\"og:description\" content=\"Gr\u00e2ce \u00e0 un travail de longue haleine effectu\u00e9 par la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) au Kirghizistan, de grands progr\u00e8s sont effectu\u00e9s dans les soins aux troubles de la coagulation, ce qui donne un nouveau souffle optimiste aux patient\u00b7es et \u00e0 leurs familles. 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