{"id":159083,"date":"2025-10-01T09:00:46","date_gmt":"2025-10-01T13:00:46","guid":{"rendered":"https:\/\/wfh.org\/?p=159083"},"modified":"2026-03-12T10:41:58","modified_gmt":"2026-03-12T14:41:58","slug":"journee-mondiale-de-lhemophilie-2026-le-theme-revele","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/","title":{"rendered":"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 !"},"content":{"rendered":"\t\t
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En avril, c\u00e9l\u00e9brons notre communaut\u00e9 et continuons \u00e0 \u0153uvrer pour augmenter le niveau de diagnostic \u00e0 l’\u00e9chelle mondiale, afin de nous rapprocher de notre vision commune d’un Traitement pour tous.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Un diagnostic pr\u00e9cis est la premi\u00e8re \u00e9tape du soin pour les personnes atteintes de troubles de la coagulation. Pourtant, dans de nombreuses r\u00e9gions du monde, des obstacles continuent de retarder ou d'emp\u00eacher un diagnostic correct, ce qui conduit \u00e0 des taux de diagnostic inacceptablement bas. Le d\u00e9fi est encore plus grand pour les personnes atteintes de la maladie de Willebrand, de troubles h\u00e9morragiques rares, ainsi que pour les femmes et les filles atteintes de troubles h\u00e9morragiques. Le 17\u202favril, j'appelle la communaut\u00e9 internationale \u00e0 s'unir pour plaider en faveur d'un renforcement des capacit\u00e9s de diagnostic partout dans le monde, car sans diagnostic, il n'y a pas de traitement, et sans traitement, il n'y a pas de progr\u00e8s.\u202f<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Cesar Garrido, pr\u00e9sident de la FMH <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Comment participer<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Il existe de nombreuses fa\u00e7ons de contribuer \u00e0 sensibiliser le public au diagnostic des troubles de la coagulation dans votre communaut\u00e9 et dans le monde. Le th\u00e8me de 2026 sert de r\u00e9f\u00e9rence, mais n’h\u00e9sitez pas \u00e0 l’adapter aux besoins de votre r\u00e9gion et de votreorganisation. Nous partagerons bient\u00f4t diverses ressources sur notre page Web consacr\u00e9e \u00e0 la\u00a0\u00a0Journ\u00e9e mondiale de l’h\u00e9mophilie<\/a>\u00a0et sur la page\u00a0Actualit\u00e9s<\/a> dela FMH. Par ailleurs, n’oubliez pas de suivre les r\u00e9seaux sociaux de la FMH \u00a0(Facebook<\/a>,\u00a0X (Twitter)<\/a>,\u00a0LinkedIn<\/a>, et Instagram)<\/a>\u00a0pour conna\u00eetre les derni\u00e8res actualit\u00e9s concernant la Journ\u00e9e mondiale de l’h\u00e9mophilie.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Ressources<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Vous trouverez des affiches, des banni\u00e8res, des logos et des visuels pour les r\u00e9seaux sociaux t\u00e9l\u00e9chargeables sur la page Web consacr\u00e9e \u00e0 la\u00a0Journ\u00e9e mondiale de l’h\u00e9mophilie<\/a>. Au cours des prochains mois, nous mettrons \u00e9galement \u00e0 votre disposition une bo\u00eete \u00e0 outils pour le plaidoyer, un mod\u00e8le de lettre \u00e0 l’intention des gouvernements et d’autres supports de campagne. N’h\u00e9sitez pas \u00e0 revenir r\u00e9guli\u00e8rement !<\/p>\n

La FMH tient \u00e0 remercier les entreprises partenaires de la Journ\u00e9e mondiale de l’h\u00e9mophilie 2026 pour leur soutien continu : Bayer, BioMarin Pharmaceutical Inc., CSL Behring, F. Hoffman-La Roche Ltd., Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma,Pfizer, Regeneron, Sanofi , Sobi et Takeda<\/em>.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le 17 avril 2026, la communaut\u00e9 mondiale des troubles h\u00e9r\u00e9ditaires de la coagulation se r\u00e9unira \u00e0 l’occasion de la Journ\u00e9e mondiale de l’h\u00e9mophilie afin de sensibiliser le public \u00e0 tous les troubles h\u00e9r\u00e9ditaires de la coagulation. Le th\u00e8me de cette ann\u00e9e, \u00ab Diagnostic : premi\u00e8re \u00e9tape du soin \u00bb, souligne l’importance cruciale du diagnostic, premi\u00e8re \u00e9tape essentielle du traitement et des soins. La FMH estime que plus des trois quarts de la population mondiale atteinte d’h\u00e9mophilie n’est pas diagnostiqu\u00e9e, et que cet \u00e9cart est encore plus important pour les autres troubles de la coagulation. Cela signifie que des centaines de milliers de personnes atteintes de troubles de la coagulation dans le monde n’ont toujours pas acc\u00e8s aux soins \u00e9l\u00e9mentaires. Nous avons le pouvoir et la volont\u00e9 commune de changer cette situation. Nous pouvons am\u00e9liorer les r\u00e9sultats diagnostiques en renfor\u00e7ant les comp\u00e9tences des professionnels de sant\u00e9 et en am\u00e9liorant l’efficacit\u00e9 des laboratoires.<\/p>\n","protected":false},"author":13,"featured_media":158306,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[169,150],"tags":[],"search-category":[85],"class_list":["post-159083","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events-2","category-world-hemophilia-day","search-category-article"],"yoast_head":"\nJourn\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 !\" \/>\n<meta property=\"og:description\" content=\"Le 17 avril 2026, la communaut\u00e9 mondiale des troubles h\u00e9r\u00e9ditaires de la coagulation se r\u00e9unira \u00e0 l'occasion de la Journ\u00e9e mondiale de l'h\u00e9mophilie afin de sensibiliser le public \u00e0 tous les troubles h\u00e9r\u00e9ditaires de la coagulation. Le th\u00e8me de cette ann\u00e9e, \u00ab Diagnostic : premi\u00e8re \u00e9tape du soin \u00bb, souligne l'importance cruciale du diagnostic, premi\u00e8re \u00e9tape essentielle du traitement et des soins. La FMH estime que plus des trois quarts de la population mondiale atteinte d'h\u00e9mophilie n'est pas diagnostiqu\u00e9e, et que cet \u00e9cart est encore plus important pour les autres troubles de la coagulation. Cela signifie que des centaines de milliers de personnes atteintes de troubles de la coagulation dans le monde n'ont toujours pas acc\u00e8s aux soins \u00e9l\u00e9mentaires. Nous avons le pouvoir et la volont\u00e9 commune de changer cette situation. Nous pouvons am\u00e9liorer les r\u00e9sultats diagnostiques en renfor\u00e7ant les comp\u00e9tences des professionnels de sant\u00e9 et en am\u00e9liorant l'efficacit\u00e9 des laboratoires.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-10-01T13:00:46+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-12T14:41:58+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/10\/WHD-2026-article-header-FR2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"628\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 !\",\"datePublished\":\"2025-10-01T13:00:46+00:00\",\"dateModified\":\"2026-03-12T14:41:58+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/\"},\"wordCount\":417,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/10\/WHD-2026-article-header-FR2.jpg\",\"articleSection\":[\"Events\",\"World Hemophilia Day\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/\",\"name\":\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 ! 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| FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/","og_locale":"fr_FR","og_type":"article","og_title":"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 !","og_description":"Le 17 avril 2026, la communaut\u00e9 mondiale des troubles h\u00e9r\u00e9ditaires de la coagulation se r\u00e9unira \u00e0 l'occasion de la Journ\u00e9e mondiale de l'h\u00e9mophilie afin de sensibiliser le public \u00e0 tous les troubles h\u00e9r\u00e9ditaires de la coagulation. Le th\u00e8me de cette ann\u00e9e, \u00ab Diagnostic : premi\u00e8re \u00e9tape du soin \u00bb, souligne l'importance cruciale du diagnostic, premi\u00e8re \u00e9tape essentielle du traitement et des soins. La FMH estime que plus des trois quarts de la population mondiale atteinte d'h\u00e9mophilie n'est pas diagnostiqu\u00e9e, et que cet \u00e9cart est encore plus important pour les autres troubles de la coagulation. Cela signifie que des centaines de milliers de personnes atteintes de troubles de la coagulation dans le monde n'ont toujours pas acc\u00e8s aux soins \u00e9l\u00e9mentaires. Nous avons le pouvoir et la volont\u00e9 commune de changer cette situation. Nous pouvons am\u00e9liorer les r\u00e9sultats diagnostiques en renfor\u00e7ant les comp\u00e9tences des professionnels de sant\u00e9 et en am\u00e9liorant l'efficacit\u00e9 des laboratoires.","og_url":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/","og_site_name":"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","article_publisher":"https:\/\/www.facebook.com\/wfhemophilia\/","article_published_time":"2025-10-01T13:00:46+00:00","article_modified_time":"2026-03-12T14:41:58+00:00","og_image":[{"width":1200,"height":628,"url":"https:\/\/wfh.org\/wp-content\/uploads\/2025\/10\/WHD-2026-article-header-FR2.jpg","type":"image\/jpeg"}],"author":"Mitch Semienchuk","twitter_card":"summary_large_image","twitter_misc":{"\u00c9crit par":"Mitch Semienchuk","Dur\u00e9e de lecture estim\u00e9e":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/#article","isPartOf":{"@id":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/"},"author":{"name":"Mitch Semienchuk","@id":"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b"},"headline":"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 !","datePublished":"2025-10-01T13:00:46+00:00","dateModified":"2026-03-12T14:41:58+00:00","mainEntityOfPage":{"@id":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/"},"wordCount":417,"publisher":{"@id":"https:\/\/wfh.org\/fr\/#organization"},"image":{"@id":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/#primaryimage"},"thumbnailUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2025\/10\/WHD-2026-article-header-FR2.jpg","articleSection":["Events","World Hemophilia Day"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/","url":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2026-le-theme-revele\/","name":"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2026 : le th\u00e8me r\u00e9v\u00e9l\u00e9 ! 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