{"id":156425,"date":"2025-09-19T09:00:29","date_gmt":"2025-09-19T13:00:29","guid":{"rendered":"https:\/\/wfh.org\/?p=156425"},"modified":"2025-09-29T17:08:21","modified_gmt":"2025-09-29T21:08:21","slug":"la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie\/","title":{"rendered":"La prophylaxie permet de soulager un enfant de 10 ans atteint d\u2019h\u00e9mophilie"},"content":{"rendered":"\t\t
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La situation de Gadir s\u2019est am\u00e9lior\u00e9e lorsqu\u2019il a commenc\u00e9 une th\u00e9rapie prophylactique non substitutive par l\u2019interm\u00e9diaire du Programme d\u2019aide humanitaire de la FMH<\/a>. Depuis qu\u2019il a commenc\u00e9 son traitement, il n\u2019a plus eu un seul saignement \u00e0 la cheville. Pour la premi\u00e8re fois depuis des ann\u00e9es, il n\u2019a pas besoin de facteur VIII, et n\u2019a plus \u00e0 s\u2019inqui\u00e9ter constamment du prochain saignement.<\/p>\n

Les photos prises avant et apr\u00e8s le traitement montrent que la situation s\u2019est grandement am\u00e9lior\u00e9e, une preuve que l\u2019acc\u00e8s au traitement prophylactique peut donner aux enfants atteints d\u2019h\u00e9mophilie une chance de vivre une vie active et sans douleur.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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La FMH s\u2019engage en Syrie par le biais de plusieurs initiatives visant \u00e0 aider le pays \u00e0 se rapprocher des soins durables pour sa communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation. Parmi elles, le Programme d\u2019aide humanitaire de la FMH, qui change d\u00e9j\u00e0 la vie d\u2019enfants tels que Gadir Mahmoud.<\/p>\n

En 2024, le Programme d\u2019aide humanitaire de la FMH a fait don de plus de 5 millions d\u2019UI de facteur \u00e0 la Syrie, ainsi que de 53 000 mg de th\u00e9rapies non substitutives. Depuis 2015, c\u2019est pr\u00e8s de 44 millions d\u2019UI de facteur et plus de 185 000 mg de th\u00e9rapies non substitutives que le pays a re\u00e7us en dons. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Pendant plus de quatre ans, Gadir Mahmoud, \u00e2g\u00e9 de dix ans, a subi des \u00e9pisodes de saignements douloureux et frustrants. Sa cheville droite saignait deux fois par semaine sans aucune blessure, des saignements spontan\u00e9s qui ont fini par l\u2019emp\u00eacher de marcher normalement. Chacun de ces \u00e9pisodes n\u00e9cessitait une immobilisation de la cheville au moyen d\u2019une attelle, mais les saignements continuaient encore et toujours de se produire. Heureusement, un traitement prophylactique fourni par la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie a offert \u00e0 ce jeune gar\u00e7on une meilleure qualit\u00e9 de vie.<\/p>\n","protected":false},"author":13,"featured_media":154473,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,184],"tags":[],"search-category":[85],"class_list":["post-156425","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nLa prophylaxie permet de soulager un enfant de 10 ans atteint d\u2019h\u00e9mophilie | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La prophylaxie permet de soulager un enfant de 10 ans atteint d\u2019h\u00e9mophilie\" \/>\n<meta property=\"og:description\" content=\"Pendant plus de quatre ans, Gadir Mahmoud, \u00e2g\u00e9 de dix ans, a subi des \u00e9pisodes de saignements douloureux et frustrants. Sa cheville droite saignait deux fois par semaine sans aucune blessure, des saignements spontan\u00e9s qui ont fini par l\u2019emp\u00eacher de marcher normalement. Chacun de ces \u00e9pisodes n\u00e9cessitait une immobilisation de la cheville au moyen d\u2019une attelle, mais les saignements continuaient encore et toujours de se produire. Heureusement, un traitement prophylactique fourni par la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie a offert \u00e0 ce jeune gar\u00e7on une meilleure qualit\u00e9 de vie.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-19T13:00:29+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-09-29T21:08:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/08\/Syria-Emi-Case-2-Gadir-Mahmoud-header-FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"La prophylaxie permet de soulager un enfant de 10 ans atteint d\u2019h\u00e9mophilie\",\"datePublished\":\"2025-09-19T13:00:29+00:00\",\"dateModified\":\"2025-09-29T21:08:21+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie\/\"},\"wordCount\":410,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-prophylaxie-permet-de-soulager-un-enfant-de-10-ans-atteint-dhemophilie\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/08\/Syria-Emi-Case-2-Gadir-Mahmoud-header-FR.jpg\",\"articleSection\":[\"Featured 3 - 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