{"id":151170,"date":"2025-07-21T13:20:35","date_gmt":"2025-07-21T17:20:35","guid":{"rendered":"https:\/\/wfh.org\/article\/publication-dun-article-sur-ladoption-de-la-therapie-genique-dans-lhemophilie\/"},"modified":"2025-08-12T12:59:15","modified_gmt":"2025-08-12T16:59:15","slug":"publication-dun-article-sur-ladoption-de-la-therapie-genique-dans-lhemophilie","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/publication-dun-article-sur-ladoption-de-la-therapie-genique-dans-lhemophilie\/","title":{"rendered":"Publication d\u2019un article sur l\u2019adoption de la th\u00e9rapie g\u00e9nique dans l\u2019h\u00e9mophilie"},"content":{"rendered":"\t\t
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Un nouvel article publi\u00e9 dans Research and Practice in Thrombosis and Haemostasis (RPTH)<\/em>, intitul\u00e9 \u00ab\u00a0Why is the uptake of gene therapy in hemophilia less than expected?<\/a>\u00a0\u00bb (Pourquoi l\u2019adoption de la th\u00e9rapie g\u00e9nique dans l\u2019h\u00e9mophilie est-elle moins importante que pr\u00e9vu\u00a0?), met ces probl\u00e8mes en lumi\u00e8re et propose des conseils \u00e9clair\u00e9s. L\u2019article a \u00e9t\u00e9 co-\u00e9crit par le Dr Glenn Pierce (MD, PhD), vice-pr\u00e9sident m\u00e9dical de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH), Mark Skinner, membre du conseil d\u2019administration de la FMH \u00c9tats-Unis, Brian O’Mahony, directeur ex\u00e9cutif de l\u2019Irish Haemophilia Society, Dawn Rotellini, membre profane de la FMH, et Radoslaw Kaczmarek, pr\u00e9sident du Comit\u00e9 de la FMH sur la s\u00e9curit\u00e9, l\u2019approvisionnement et l\u2019acc\u00e8s aux produits.<\/p>\n

Cet article \u00e9voque les d\u00e9cisions r\u00e9centes de mettre en pause ou d\u2019annuler les programmes de th\u00e9rapie g\u00e9nique pour l\u2019h\u00e9mophilie. Elles ont en effet soulev\u00e9 des questions au sein de la communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation. Certaines personnes ont suppos\u00e9 que les patient\u00b7es et les professionnel\u00b7les de sant\u00e9 pr\u00e9sentaient un \u00ab\u00a0int\u00e9r\u00eat limit\u00e9\u00a0\u00bb pour cette m\u00e9thode, mais la communaut\u00e9 sait bien qu\u2019il ne s\u2019agit pas de cela.<\/p>\n

Les personnes atteintes d\u2019h\u00e9mophilie esp\u00e8rent depuis longtemps b\u00e9n\u00e9ficier de possibilit\u00e9s curatives. La v\u00e9ritable difficult\u00e9 r\u00e9side dans le fait que les th\u00e9rapies doivent d\u00e9montrer des r\u00e9sultats coh\u00e9rents et durables avec des avantages clairs par rapport aux traitements existants, en particulier lorsque les options actuelles offrent d\u00e9j\u00e0 une quasi-absence de saignements et une am\u00e9lioration de la qualit\u00e9 de vie.<\/p>\n

Nous devons continuer \u00e0 encourager une innovation efficace, transparente et accessible \u00e0 toutes et tous, car notre objectif ne change pas\u00a0: un avenir sans saignement et un esprit lib\u00e9r\u00e9 de l\u2019h\u00e9mophilie.<\/p>\n

Pour lire l\u2019article\u00a0\u00ab\u00a0Why is the uptake of gene therapy in hemophilia less than expected?\u00a0\u00bb en int\u00e9gralit\u00e9 (et en anglais) dans RPTH<\/em>, cliquez ici<\/a>.<\/p>\n

 <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La th\u00e9rapie g\u00e9nique constitue un tournant historique dans le d\u00e9veloppement des options de traitement pour les personnes atteintes d\u2019h\u00e9mophilie, offrant la possibilit\u00e9 d\u2019am\u00e9liorer leurs r\u00e9sultats cliniques, notamment leur qualit\u00e9 de vie, gr\u00e2ce \u00e0 une seule injection. Malheureusement, le d\u00e9veloppement de cette option de traitement fait face \u00e0 de nombreuses difficult\u00e9s, et des critiques injustifi\u00e9es ont \u00e9t\u00e9 faites \u00e0 la communaut\u00e9, ce qui a ajout\u00e9 de la confusion aux probl\u00e8mes et a emp\u00each\u00e9 de se consacrer \u00e0 des activit\u00e9s plus productives. <\/p>\n","protected":false},"author":13,"featured_media":149028,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[177,338],"tags":[],"search-category":[85],"class_list":["post-151170","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite-medicale","category-featured-3-fr","search-category-article"],"yoast_head":"\nPublication d\u2019un article sur l\u2019adoption de la th\u00e9rapie g\u00e9nique dans l\u2019h\u00e9mophilie | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/publication-dun-article-sur-ladoption-de-la-therapie-genique-dans-lhemophilie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Publication d\u2019un article sur l\u2019adoption de la th\u00e9rapie g\u00e9nique dans l\u2019h\u00e9mophilie\" \/>\n<meta property=\"og:description\" content=\"La th\u00e9rapie g\u00e9nique constitue un tournant historique dans le d\u00e9veloppement des options de traitement pour les personnes atteintes d\u2019h\u00e9mophilie, offrant la possibilit\u00e9 d\u2019am\u00e9liorer leurs r\u00e9sultats cliniques, notamment leur qualit\u00e9 de vie, gr\u00e2ce \u00e0 une seule injection. 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