{"id":145188,"date":"2025-09-12T09:00:29","date_gmt":"2025-09-12T13:00:29","guid":{"rendered":"https:\/\/wfh.org\/?p=145188"},"modified":"2026-02-13T20:02:15","modified_gmt":"2026-02-14T01:02:15","slug":"une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/","title":{"rendered":"Une collaboration sur le long terme transforme les soins de l\u2019h\u00e9mophilie en Arm\u00e9nie"},"content":{"rendered":"\t\t
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Le facteur de coagulation n\u2019\u00e9tait disponible qu\u2019en quantit\u00e9 tr\u00e8s insuffisante en Arm\u00e9nie depuis plusieurs dizaines d\u2019ann\u00e9es\u00a0: des personnes comme Erik, un jeune homme atteint d\u2019h\u00e9mophilie, ne pouvaient pas vaquer \u00e0 leurs occupations quotidiennes en toute s\u00e9curit\u00e9. \u00ab\u00a0M\u00eame essayer de jouer de la guitare provoquait des saignements dans la pulpe de mes doigts\u00a0\u00bb, se souvient-il. Pendant des ann\u00e9es, sa seule source de facteur \u00e9tait une autre personne atteinte d\u2019un trouble de la coagulation en Iran, qui partageait g\u00e9n\u00e9reusement avec lui ses doses mensuelles de traitement.<\/p>\n

Cette situation difficile a compl\u00e8tement chang\u00e9 en 2018, lorsqu\u2019un partenariat officiel avec le Programme d\u2019aide humanitaire de la FMH<\/a> a permis le renforcement d\u2019un centre de traitement de l\u2019h\u00e9mophilie (CTH) de Yerevan, la livraison r\u00e9guli\u00e8re de facteur de coagulation et des formations compl\u00e8tes pour le personnel m\u00e9dical. Le r\u00e9sultat\u00a0? Une profonde transformation des soins.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Auparavant, je voyais r\u00e9guli\u00e8rement des contractures articulaires graves. Aujourd\u2019hui, comme les patient\u00b7es re\u00e7oivent du facteur assez t\u00f4t, ces complications ont presque disparu.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Dr Laura Movsisyan (MD), m\u00e9decin r\u00e9\u00e9ducatrice \u00e0 l\u2019institut d\u2019h\u00e9matologie de Yerevan<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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L\u2019impact de ce partenariat va au-del\u00e0 des simples am\u00e9liorations cliniques. Erik, d\u00e9sormais dipl\u00f4m\u00e9 en m\u00e9decine, explique que l\u2019acc\u00e8s au traitement a chang\u00e9 tous les aspects de sa vie. \u00ab\u00a0Je peux faire du ski, randonner, aider ma grand-m\u00e8re au jardin, tout cela parce que j\u2019ai [du facteur].\u00a0\u00bb Il \u00e9tudie pour devenir m\u00e9decin et s\u2019occuper \u00e0 son tour de sa communaut\u00e9.<\/p>\n

Pour Tatiana Khachatryan, pr\u00e9sidente de l\u2019Association arm\u00e9nienne de l\u2019h\u00e9mophilie et de la thrombophilie ces r\u00e9sultats sont le produit direct d\u2019un partenariat durable. Elle explique que tous ces changements fondamentaux viennent du soutien de longue date de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie.<\/p>\n

Depuis 2015, le Programme d\u2019aide humanitaire de la FMH a fait don de presque 19 millions d\u2019UI de facteur et plus de 310,000 mg de th\u00e9rapies non substitutives \u00e0 l\u2019Arm\u00e9nie. Rien que l\u2019an dernier, c\u2019est plus de 3 millions d\u2019UI de facteur et plus de 50 000 mg de th\u00e9rapies non substitutives que le pays a re\u00e7us en dons. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Des ann\u00e9es de partenariat durable entre l\u2019Association arm\u00e9nienne de l\u2019h\u00e9mophilie et de la thrombophilie et la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie ont transform\u00e9 les soins aux personnes atteintes d\u2019h\u00e9mophilie en Arm\u00e9nie, ce qui a grandement am\u00e9lior\u00e9 leur qualit\u00e9 de vie et leurs r\u00e9sultats m\u00e9dicaux. Les efforts de la FMH comprennent notamment le Programme d\u2019aide humanitaire, qui propose formations et dons de produits, le Programme international d\u2019\u00e9valuation externe de la qualit\u00e9 (IEQAS), qui suit et \u00e9value les performances laboratoires dans les centres de traitement de l\u2019h\u00e9mophilie (CTH), ainsi que le Programme de jumelage des associations de l\u2019h\u00e9mophilie, qui met en relation des associations de patient\u00b7es \u00e9mergentes et \u00e9tablies afin qu\u2019elles partagent connaissances et comp\u00e9tences. Toutes ces initiatives ont permis de beaucoup am\u00e9liorer le niveau de soins en Arm\u00e9nie.<\/p>\n","protected":false},"author":13,"featured_media":144876,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-145188","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nUne collaboration sur le long terme transforme les soins de l\u2019h\u00e9mophilie en Arm\u00e9nie | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Une collaboration sur le long terme transforme les soins de l\u2019h\u00e9mophilie en Arm\u00e9nie\" \/>\n<meta property=\"og:description\" content=\"Des ann\u00e9es de partenariat durable entre l\u2019Association arm\u00e9nienne de l\u2019h\u00e9mophilie et de la thrombophilie et la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie ont transform\u00e9 les soins aux personnes atteintes d\u2019h\u00e9mophilie en Arm\u00e9nie, ce qui a grandement am\u00e9lior\u00e9 leur qualit\u00e9 de vie et leurs r\u00e9sultats m\u00e9dicaux. Les efforts de la FMH comprennent notamment le Programme d\u2019aide humanitaire, qui propose formations et dons de produits, le Programme international d\u2019\u00e9valuation externe de la qualit\u00e9 (IEQAS), qui suit et \u00e9value les performances laboratoires dans les centres de traitement de l\u2019h\u00e9mophilie (CTH), ainsi que le Programme de jumelage des associations de l\u2019h\u00e9mophilie, qui met en relation des associations de patient\u00b7es \u00e9mergentes et \u00e9tablies afin qu\u2019elles partagent connaissances et comp\u00e9tences. Toutes ces initiatives ont permis de beaucoup am\u00e9liorer le niveau de soins en Arm\u00e9nie.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-09-12T13:00:29+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-02-14T01:02:15+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/06\/Armenia-Video-1-article-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Une collaboration sur le long terme transforme les soins de l\u2019h\u00e9mophilie en Arm\u00e9nie\",\"datePublished\":\"2025-09-12T13:00:29+00:00\",\"dateModified\":\"2026-02-14T01:02:15+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/\"},\"wordCount\":569,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/06\/Armenia-Video-1-article-header.jpg\",\"articleSection\":[\"Programme d\u2019aide humanitaire de la FMH\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/\",\"name\":\"Une collaboration sur le long terme transforme les soins de l\u2019h\u00e9mophilie en Arm\u00e9nie | FMH - 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Les efforts de la FMH comprennent notamment le Programme d\u2019aide humanitaire, qui propose formations et dons de produits, le Programme international d\u2019\u00e9valuation externe de la qualit\u00e9 (IEQAS), qui suit et \u00e9value les performances laboratoires dans les centres de traitement de l\u2019h\u00e9mophilie (CTH), ainsi que le Programme de jumelage des associations de l\u2019h\u00e9mophilie, qui met en relation des associations de patient\u00b7es \u00e9mergentes et \u00e9tablies afin qu\u2019elles partagent connaissances et comp\u00e9tences. Toutes ces initiatives ont permis de beaucoup am\u00e9liorer le niveau de soins en Arm\u00e9nie.","og_url":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/","og_site_name":"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie","article_publisher":"https:\/\/www.facebook.com\/wfhemophilia\/","article_published_time":"2025-09-12T13:00:29+00:00","article_modified_time":"2026-02-14T01:02:15+00:00","og_image":[{"width":1200,"height":627,"url":"https:\/\/wfh.org\/wp-content\/uploads\/2025\/06\/Armenia-Video-1-article-header.jpg","type":"image\/jpeg"}],"author":"Mitch Semienchuk","twitter_card":"summary_large_image","twitter_misc":{"\u00c9crit par":"Mitch Semienchuk","Dur\u00e9e de lecture estim\u00e9e":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/#article","isPartOf":{"@id":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/"},"author":{"name":"Mitch Semienchuk","@id":"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b"},"headline":"Une collaboration sur le long terme transforme les soins de l\u2019h\u00e9mophilie en Arm\u00e9nie","datePublished":"2025-09-12T13:00:29+00:00","dateModified":"2026-02-14T01:02:15+00:00","mainEntityOfPage":{"@id":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/"},"wordCount":569,"publisher":{"@id":"https:\/\/wfh.org\/fr\/#organization"},"image":{"@id":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/#primaryimage"},"thumbnailUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2025\/06\/Armenia-Video-1-article-header.jpg","articleSection":["Programme d\u2019aide humanitaire de la FMH"],"inLanguage":"fr-FR"},{"@type":"WebPage","@id":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/","url":"https:\/\/wfh.org\/fr\/article\/une-collaboration-sur-le-long-terme-transforme-les-soins-de-lhemophilie-en-armenie\/","name":"Une collaboration sur le long terme transforme les soins de l\u2019h\u00e9mophilie en Arm\u00e9nie | FMH - 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