{"id":143608,"date":"2025-05-28T08:00:37","date_gmt":"2025-05-28T12:00:37","guid":{"rendered":"https:\/\/wfh.org\/?p=143608"},"modified":"2025-06-04T11:55:26","modified_gmt":"2025-06-04T15:55:26","slug":"voici-les-jumeaux-de-lannee-2024-de-la-fmh","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/voici-les-jumeaux-de-lannee-2024-de-la-fmh\/","title":{"rendered":"Voici les Jumeaux de l\u2019ann\u00e9e 2024 de la FMH"},"content":{"rendered":"\t\t
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Le Programme de jumelage de la FMH<\/a> a pour objectif de mettre en place des partenariats entre des professionnel\u00b7les de sant\u00e9, ainsi qu\u2019entre des associations de patient\u00b7es ou de jeunes leaders, afin d\u2019am\u00e9liorer les soins pour les personnes atteintes d\u2019un trouble de la coagulation dans le monde. Le programme promeut le renforcement des capacit\u00e9s et la durabilit\u00e9 par le biais d\u2019\u00e9changes de connaissances et d\u2019expertises entre les partenaires. Chaque ann\u00e9e, le prix des Jumeaux de l\u2019ann\u00e9e r\u00e9compense les partenariats dont l\u2019engagement et la communication ont \u00e9t\u00e9 exceptionnels, et qui ont form\u00e9 une \u00e9quipe solide pour atteindre les objectifs qu\u2019ils s\u2019\u00e9taient fix\u00e9s. Ces partenariats sont des exemples inspirants de ce que l\u2019on peut accomplir gr\u00e2ce au d\u00e9vouement, au travail d\u2019\u00e9quipe et \u00e0 une cause commune.<\/p>\n

Pour sa derni\u00e8re ann\u00e9e de participation au programme, le couple de jumeaux Ouganda-Montana\/Wyoming (\u00c9tats-Unis), laur\u00e9at pour les associations de l\u2019h\u00e9mophilie, a men\u00e9 \u00e0 bien plusieurs activit\u00e9s qui ont renforc\u00e9 les capacit\u00e9s organisationnelles de la Hemophilia Foundation of Uganda (HFU). Le d\u00e9veloppement d\u2019un plan strat\u00e9gique quinquennal a permis de renforcer les efforts de plaidoyer, la collaboration avec des responsables politiques et des d\u00e9cisionnaires, la stabilit\u00e9 financi\u00e8re et la diversification des sources de financement. La sensibilisation des patient\u00b7es et plusieurs activit\u00e9s p\u00e9dagogiques ont permis de faire augmenter le diagnostic, l\u2019observance des traitements et la connaissance des patient\u00b7es\u00a0; par ailleurs, on constate que les patient\u00b7es recherchent plus activement les soins.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"Uganda-Montana\/Wyoming\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"Uganda-Montana\/Wyoming\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"Uganda-Montana\/Wyoming\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Les Jumeaux de l\u2019ann\u00e9e des associations de patient\u00b7es : l\u2019Ouganda et le Montana\/Wyoming (\u00b7tats-Unis)<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Une personne cadre de la HFU a effectu\u00e9 une visite \u00e9ducative au Montana\/Wyoming visant \u00e0 consolider les capacit\u00e9s de l\u2019association, ce qui a permis de renforcer les connaissances en mati\u00e8re de strat\u00e9gies de soins aux patient\u00b7es, d\u2019\u00e9ducation des patient\u00b7es et de plaidoyer. En plus des opportunit\u00e9s d\u2019apprentissage et de d\u00e9veloppement propos\u00e9es, ce jumelage a aussi permis de jeter les bases d\u2019une relation \u00e0 long terme entre les partenaires.<\/p>\n

Les CTH jumeaux de l\u2019ann\u00e9e Kochi (Inde) – Manchester (Royaume-Uni) ont connu une deuxi\u00e8me ann\u00e9e fructueuse, au cours de laquelle ils ont identifi\u00e9 89 nouvelles personnes atteintes d\u2019un trouble de la coagulation et form\u00e9 plus de 100 professionnel\u00b7les de sant\u00e9. Les jumeaux ont aussi tenu deux stands de d\u00e9pistage \u00e0 Cherthala et Angamaly afin de proposer des soins m\u00e9dicaux complets, un diagnostic et des conseils aux personnes concern\u00e9es. Des ateliers ont eu lieu pour la formation des professionnel\u00b7les de sant\u00e9 \u00e0 la kin\u00e9sith\u00e9rapie, \u00e0 la prise en charge musculosquelettique de l\u2019h\u00e9mophilie ainsi qu\u2019au diagnostic et \u00e0 la prise en charge en laboratoire. Des sessions p\u00e9dagogiques en ligne ont fourni de pr\u00e9cieuses informations et expertises aux patient\u00b7es, aux familles, aux praticiens et praticiennes, aux kin\u00e9sith\u00e9rapeutes, aux technicien\u00b7nes de laboratoire, aux travailleurs et travailleuses sociales, au personnel infirmier et aux pharmacien\u00b7nes cliniques.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"Kochi\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Les centres de traitement de l\u2019h\u00e9mophilie jumeaux de l\u2019ann\u00e9e : Kochi (Inde) et Manchester (Royaume-Uni)<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Trois membres de l\u2019\u00e9quipe du CTH de Kochi ont suivi \u00e0 Manchester un programme de formation sur 9 jours au diagnostic avanc\u00e9 en laboratoire et \u00e0 la prise en charge clinique des troubles de la coagulation. Cette formation a aussi permis d\u2019am\u00e9liorer les connaissances de l\u2019\u00e9quipe du CTH de Kochi en mati\u00e8re d\u2019approches globales pour les femmes et les filles dans les soins aux troubles de la coagulation.<\/p>\n

Au nom de toute la FMH, f\u00e9licitations aux Jumeaux de l\u2019ann\u00e9e 2024\u00a0!<\/p>\n

Pour en savoir plus sur le Programme de jumelage de la FMH, cliquez ici<\/a>.<\/p>\n

Le Programme de jumelage b\u00e9n\u00e9ficie du soutien financier exclusif de Pfizer.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La FMH a le plaisir d\u2019annoncer les Jumeaux de l\u2019ann\u00e9e 2024 ! Les Jumeaux de l\u2019ann\u00e9e 2024 du Programme de jumelage des associations sont la Hemophilia Foundation of Uganda (Ouganda) et la Rocky Mountains Hemophilia and Bleeding Disorders Association (Montana\/Wyoming, \u00c9tats-Unis). En ce qui concerne le Jumelage des centres de traitement de l\u2019h\u00e9mophilie (CTH), les Jumeaux de l\u2019ann\u00e9e sont l\u2019Amrita Institute of Medical Sciences de Kochi (Inde) et le Manchester University NHS (Royaume-Uni).<\/p>\n","protected":false},"author":13,"featured_media":143418,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,8],"tags":[],"search-category":[85],"class_list":["post-143608","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-non-classifiee","search-category-article"],"yoast_head":"\nVoici les Jumeaux de l\u2019ann\u00e9e 2024 de la FMH | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/voici-les-jumeaux-de-lannee-2024-de-la-fmh\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Voici les Jumeaux de l\u2019ann\u00e9e 2024 de la FMH\" \/>\n<meta property=\"og:description\" content=\"La FMH a le plaisir d\u2019annoncer les Jumeaux de l\u2019ann\u00e9e 2024 ! Les Jumeaux de l\u2019ann\u00e9e 2024 du Programme de jumelage des associations sont la Hemophilia Foundation of Uganda (Ouganda) et la Rocky Mountains Hemophilia and Bleeding Disorders Association (Montana\/Wyoming, \u00c9tats-Unis). En ce qui concerne le Jumelage des centres de traitement de l\u2019h\u00e9mophilie (CTH), les Jumeaux de l\u2019ann\u00e9e sont l\u2019Amrita Institute of Medical Sciences de Kochi (Inde) et le Manchester University NHS (Royaume-Uni).\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/voici-les-jumeaux-de-lannee-2024-de-la-fmh\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-05-28T12:00:37+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-06-04T15:55:26+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/Twins-of-the-year-2024-header-FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/voici-les-jumeaux-de-lannee-2024-de-la-fmh\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/voici-les-jumeaux-de-lannee-2024-de-la-fmh\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Voici les Jumeaux de l\u2019ann\u00e9e 2024 de la FMH\",\"datePublished\":\"2025-05-28T12:00:37+00:00\",\"dateModified\":\"2025-06-04T15:55:26+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/voici-les-jumeaux-de-lannee-2024-de-la-fmh\/\"},\"wordCount\":662,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/voici-les-jumeaux-de-lannee-2024-de-la-fmh\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/Twins-of-the-year-2024-header-FR.jpg\",\"articleSection\":[\"Featured 3 - 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