{"id":142839,"date":"2025-05-22T09:00:29","date_gmt":"2025-05-22T13:00:29","guid":{"rendered":"https:\/\/wfh.org\/?p=142839"},"modified":"2026-03-10T08:48:28","modified_gmt":"2026-03-10T12:48:28","slug":"chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination\/","title":{"rendered":"Chatowa Kawonga : en Zambie, le diagnostic laisse place \u00e0 la d\u00e9termination"},"content":{"rendered":"\t\t
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La FMH agit en Zambie par l\u2019interm\u00e9diaire de plusieurs initiatives dont l\u2019objectif est de couvrir le plus de formes d\u2019aide possible. Le but\u00a0? Aider le pays \u00e0 mettre en place des soins durables. C\u2019est pour cela que le Programme d\u2019aide humanitaire de la FMH<\/a> propose des formations et des dons de produits th\u00e9rapeutiques, tandis que le programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) permet de renforcer la sensibilisation et le diagnostic et d\u2019\u00e9largir l\u2019acc\u00e8s \u00e0 des soins durables. La FMH donne aussi l\u2019occasion aux professionnel\u00b7les de sant\u00e9 de l\u2019h\u00f4pital universitaire de Lusaka de mieux g\u00e9rer leurs donn\u00e9es tout en contribuant \u00e0 la recherche sur l\u2019h\u00e9mophilie, gr\u00e2ce \u00e0 une bourse du Programme de recherche du Registre mondial des troubles de la coagulation (RMTC).<\/p>\n

Ces efforts ont b\u00e9n\u00e9fici\u00e9 aux personnes atteintes d\u2019un trouble de la coagulation du pays, dont Chatowa Kawonga. Aujourd\u2019hui \u00e2g\u00e9e de 19 ans, il a fallu \u00e0 Mme Kawonga des ann\u00e9es pour \u00eatre correctement diagnostiqu\u00e9e. Au d\u00e9part, les m\u00e9decins ont pens\u00e9 qu\u2019elle \u00e9tait atteinte d\u2019endom\u00e9triose. Ce n\u2019est que r\u00e9cemment qu\u2019on lui a finalement diagnostiqu\u00e9 une MW, gr\u00e2ce \u00e0 une formation propos\u00e9e \u00e0 la communaut\u00e9 m\u00e9dicale par le Programme d\u2019aide humanitaire de la FMH. Cette formation a permis aux m\u00e9decins de mieux reconna\u00eetre les sympt\u00f4mes d\u2019un trouble de la coagulation, mais aussi de prodiguer de meilleurs soins aux personnes diagnostiqu\u00e9es.<\/p>\n

Malgr\u00e9 les difficult\u00e9s auxquelles elle a \u00e9t\u00e9 confront\u00e9e \u00e0 cause de sa maladie, Mme Kawonga a obtenu des r\u00e9sultats scolaires exceptionnels, sortant meilleure \u00e9l\u00e8ve du lyc\u00e9e de filles de Kabulonga. En 2022, elle a \u00e9t\u00e9 la seule \u00e9tudiante \u00e0 obtenir la note parfaite de 6 points aux examens nationaux de terminale en Zambie, un exploit rare.<\/p>\n

Son parcours scolaire l\u2019a conduite aujourd\u2019hui jsuqu\u2019au campus Ridgeway de l\u2019Universit\u00e9 de Zambie, o\u00f9 elle \u00e9tudie la m\u00e9decine et la chirurgie. Son choix de carri\u00e8re n\u2019a rien d\u2019une co\u00efncidence. \u00ab\u00a0Je veux aider les personnes qui comme moi vivent avec des maladies mal comprises ou ignor\u00e9es\u00a0\u00bb, d\u00e9clare Mme Kawonga.<\/p>\n

Elle a \u00e9galement \u00e9t\u00e9 pr\u00e9f\u00e8te de son \u00e9cole, capitaine d\u2019\u00e9quipes nationales en science et en orthographe, et reste \u00e0 ce jour la plus jeune \u00e9l\u00e8ve de l\u2019Association des anciennes \u00e9l\u00e8ves de Kabulonga. \u00c0 tous ces postes, elle est devenue un mod\u00e8le de r\u00e9silience, d\u2019altruisme et d\u2019ambition\u00a0\u2013 pour les femmes, pour les personnes atteintes de la MW, et pour les personnes atteintes d\u2019un trouble de la coagulation. Elle est aujourd\u2019hui m\u00e9c\u00e8ne d\u2019un gala de charit\u00e9 en faveur de la sensibilisation aux troubles de la coagulation.<\/p>\n

Chatowa Kawonga s\u2019engage afin de faire du plaidoyer en faveur d\u2019un meilleur acc\u00e8s aux soins et d\u2019une meilleure \u00e9ducation. Ainsi, elle aide toute la communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation en Zambie, et inspire des g\u00e9n\u00e9rations futures de personnes atteintes d\u2019un trouble de la coagulation.<\/p>\n

Depuis 2015, le Programme d\u2019aide humanitaire de la FMH a fait don de plus de 16,3 millions d\u2019UI de facteur et de plus de 188 000 mg de th\u00e9rapies non substitutives \u00e0 la Zambie. Rien que l\u2019an dernier, c\u2019est pr\u00e8s de 2,5 millions d\u2019UI de facteur et 22 000 mg de th\u00e9rapies non substitutives qu\u2019a re\u00e7ues le pays. Pour en savoir plus sur le Programme d\u2019aide humanitaire, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) soutient la communaut\u00e9 mondiale des troubles de la coagulation en Zambie depuis des ann\u00e9es, en proposant diverses aides \u00e0 la communaut\u00e9 locale. Ainsi, la FMH a pu aider des centaines de personnes dans le pays, notamment Chatowa Kawonga, une femme de 19 ans atteinte de la maladie de Willebrand (MW), qui a pu repousser les limites impos\u00e9es par la maladie qui la touche depuis qu\u2019elle est toute petite.<\/p>\n","protected":false},"author":13,"featured_media":142698,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[334,184],"tags":[],"search-category":[85],"class_list":["post-142839","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-1-fr","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nChatowa Kawonga : en Zambie, le diagnostic laisse place \u00e0 la d\u00e9termination | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Chatowa Kawonga : en Zambie, le diagnostic laisse place \u00e0 la d\u00e9termination\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) soutient la communaut\u00e9 mondiale des troubles de la coagulation en Zambie depuis des ann\u00e9es, en proposant diverses aides \u00e0 la communaut\u00e9 locale. Ainsi, la FMH a pu aider des centaines de personnes dans le pays, notamment Chatowa Kawonga, une femme de 19 ans atteinte de la maladie de Willebrand (MW), qui a pu repousser les limites impos\u00e9es par la maladie qui la touche depuis qu\u2019elle est toute petite.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-05-22T13:00:29+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2026-03-10T12:48:28+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/04\/Chatowa-Kawonga-Zambia-article-header-FR-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Chatowa Kawonga : en Zambie, le diagnostic laisse place \u00e0 la d\u00e9termination\",\"datePublished\":\"2025-05-22T13:00:29+00:00\",\"dateModified\":\"2026-03-10T12:48:28+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination\/\"},\"wordCount\":757,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/chatowa-kawonga-en-zambie-le-diagnostic-laisse-place-a-la-determination\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/04\/Chatowa-Kawonga-Zambia-article-header-FR-2.jpg\",\"articleSection\":[\"Featured 1 - 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