{"id":135908,"date":"2025-03-10T09:00:41","date_gmt":"2025-03-10T13:00:41","guid":{"rendered":"https:\/\/wfh.org\/?p=135908"},"modified":"2025-03-19T14:55:27","modified_gmt":"2025-03-19T18:55:27","slug":"lequipe-de-la-fmh-constate-un-reel-changement-en-inde","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-un-reel-changement-en-inde\/","title":{"rendered":"L\u2019\u00e9quipe de la FMH constate un r\u00e9el changement en Inde"},"content":{"rendered":"\t\t
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La FMH fournit de l\u2019aide \u00e0 l\u2019Inde par l\u2019interm\u00e9diaire de plusieurs initiatives, notamment le Programme d\u2019aide humanitaire<\/a>, le programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT), le Programme de jumelage et le Programme international d\u2019\u00e9valuation externe de la qualit\u00e9 (IEQAS). En plus de ces activit\u00e9s, la FMH travaille depuis des ann\u00e9es en \u00e9troite collaboration avec l\u2019organisation nationale membre (ONM) locale, la Hemophilia Federation of India (HFI), afin d\u2019aider les parties prenantes \u00e0 r\u00e9pondre au mieux aux besoins de la communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation.<\/p>\n

La d\u00e9l\u00e9gation a visit\u00e9 deux grands h\u00f4pitaux\u00a0: le Post Graduate Institute of Child Health de Noida, et le All India Institute of Medical Sciences (AIIMS) de New Delhi. Elle a constat\u00e9 l\u2019am\u00e9lioration de l\u2019efficacit\u00e9 des \u00e9tablissements de traitement, des centres de transfusion, des services de kin\u00e9sith\u00e9rapie et de la formation m\u00e9dicale professionnelle. Ces visites ont montr\u00e9 l\u2019importance de l\u2019accessibilit\u00e9 des traitements et de la formation m\u00e9dicale continue.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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C\u2019\u00e9tait tr\u00e8s int\u00e9ressant d\u2019\u00eatre ici [\u2026] et de se rendre compte des soins dont les patient\u00b7es atteint\u00b7es d\u2019h\u00e9mophilie en Inde ont v\u00e9ritablement besoin. Je trouve qu\u2019il est important que tout le monde reconnaisse l\u2019ampleur des soins n\u00e9cessaires dans le monde entier [pour aider les personnes atteintes d\u2019un trouble de la coagulation]. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Dr Len Valentino (MD), pr\u00e9sident de la FMH \u00c9tats-Unis<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Au cours de sa visite, l\u2019\u00e9quipe a pu entendre l\u2019histoire tr\u00e8s inspirante de Rahul, un homme atteint d\u2019un trouble de la coagulation dont la vie s\u2019est beaucoup am\u00e9lior\u00e9e gr\u00e2ce aux dons de produits du Programme d\u2019aide humanitaire. Le jeune homme \u00e9tait alit\u00e9 \u00e0 cause de sa maladie et sa famille a connu de grosses difficult\u00e9s\u00a0: son p\u00e8re les a abandonn\u00e9\u00b7es et son fr\u00e8re cadet a quitt\u00e9 l’\u00e9cole pour subvenir aux besoins familiaux. Aujourd\u2019hui, gr\u00e2ce \u00e0 la FMH, Rahul a pu retrouver sa mobilit\u00e9, trouver un emploi et aider sa famille.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Les r\u00e9cits comme ceux de Rahul montrent que l\u2019engagement sur le long terme est le meilleur moyen d\u2019am\u00e9liorer les soins. Dans les bureaux de la Hemophilia Federation of India (HFI), Premroop Alva, pr\u00e9sident de la HFI, a exprim\u00e9 sa gratitude pour l\u2019action de la FMH en Inde, qui dure non pas depuis des ann\u00e9es mais depuis plusieurs d\u00e9cennies.<\/p>\n

La visite a r\u00e9affirm\u00e9 l\u2019engagement de la FMH en faveur des soins de l\u2019h\u00e9mophilie dans le monde. Voir des vies transform\u00e9es, des centres de traitement de l\u2019h\u00e9mophilie (CTH) d\u00e9vou\u00e9s et des activistes d\u00e9termin\u00e9\u00b7es a soulign\u00e9 l\u2019impact vital de la F\u00e9d\u00e9ration en Inde.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Cela a \u00e9t\u00e9 un v\u00e9ritable plaisir de faire ce voyage et de rencontrer diff\u00e9rents groupes, diff\u00e9rentes sections en Inde, diff\u00e9rents centres de traitement\u2026 Les progr\u00e8s qui ont \u00e9t\u00e9 faits m\u2019ont vraiment impressionn\u00e9.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Dr Glenn Pierce (MD, PhD), vice-pr\u00e9sident m\u00e9dical de la FMH<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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L\u2019Inde a b\u00e9n\u00e9fici\u00e9 en 2024 de pr\u00e8s de 68 millions d\u2019UI de facteur via le Programme d\u2019aide humanitaire de la FMH. Depuis 2015, le pays a re\u00e7u pr\u00e8s de 439 millions d\u2019UI de dons de facteur. Pour en savoir plus sur le Programme d\u2019aide humanitaire, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda, notre Donateur contributeur. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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En novembre 2024, des d\u00e9l\u00e9gu\u00e9\u00b7es de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) se sont rendu\u00b7es \u00e0 New Delhi, en Inde, afin de constater directement l\u2019impact des diff\u00e9rents aspects du soutien que la FMH apporte au pays depuis de longues ann\u00e9es. Au cours de cette visite, l\u2019\u00e9quipe a pu recevoir le t\u00e9moignage de patient\u00b7es et d\u00e9couvrir l\u2019am\u00e9lioration incroyable des soins m\u00e9dicaux pour les personnes atteintes d\u2019un trouble de la coagulation.<\/p>\n","protected":false},"author":13,"featured_media":135396,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,184],"tags":[],"search-category":[85],"class_list":["post-135908","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nL\u2019\u00e9quipe de la FMH constate un r\u00e9el changement en Inde | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-un-reel-changement-en-inde\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019\u00e9quipe de la FMH constate un r\u00e9el changement en Inde\" \/>\n<meta property=\"og:description\" content=\"En novembre 2024, des d\u00e9l\u00e9gu\u00e9\u00b7es de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) se sont rendu\u00b7es \u00e0 New Delhi, en Inde, afin de constater directement l\u2019impact des diff\u00e9rents aspects du soutien que la FMH apporte au pays depuis de longues ann\u00e9es. Au cours de cette visite, l\u2019\u00e9quipe a pu recevoir le t\u00e9moignage de patient\u00b7es et d\u00e9couvrir l\u2019am\u00e9lioration incroyable des soins m\u00e9dicaux pour les personnes atteintes d\u2019un trouble de la coagulation.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-un-reel-changement-en-inde\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-03-10T13:00:41+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-03-19T18:55:27+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/03\/India-workshop-article-Goa-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-un-reel-changement-en-inde\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-un-reel-changement-en-inde\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"L\u2019\u00e9quipe de la FMH constate un r\u00e9el changement en Inde\",\"datePublished\":\"2025-03-10T13:00:41+00:00\",\"dateModified\":\"2025-03-19T18:55:27+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-un-reel-changement-en-inde\/\"},\"wordCount\":747,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-un-reel-changement-en-inde\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/03\/India-workshop-article-Goa-header.jpg\",\"articleSection\":[\"Featured 3 - 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