{"id":134839,"date":"2025-02-20T16:41:57","date_gmt":"2025-02-20T21:41:57","guid":{"rendered":"https:\/\/wfh.org\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/"},"modified":"2025-03-03T09:52:13","modified_gmt":"2025-03-03T14:52:13","slug":"lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/","title":{"rendered":"L\u2019\u00e9quipe de la FMH constate des progr\u00e8s au sein de la communaut\u00e9 \u00e9gyptienne des troubles de la coagulation"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"134839\" class=\"elementor elementor-134839 elementor-134427\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-9b4613c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"9b4613c\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-56d4f66\" data-id=\"56d4f66\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e25b2df elementor-widget elementor-widget-text-editor\" data-id=\"e25b2df\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>Alain Baumann, PDG de la FMH, et le Dr Assad E. Haffar (MD), directeur m\u00e9dical et de l\u2019aide humanitaire, ont visit\u00e9 trois centres de traitement de l\u2019h\u00e9mophilie (CTH) au Caire, ce qui leur a apport\u00e9 des perspectives pr\u00e9cieuses sur l\u2019\u00e9volution du paysage des soins, et sur les efforts de l\u2019EHS. Ceux-ci ont notamment consist\u00e9 \u00e0 travailler avec la FMH sur un protocole d\u2019accord tripartite afin d\u2019\u00e9tablir un partenariat entre la FMH, le minist\u00e8re \u00e9gyptien de la Sant\u00e9 et l\u2019ESH, dans le cadre du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) \u2013 lisez notre article <a href=\"https:\/\/wfh.org\/fr\/article\/la-fmh-signe-un-protocole-daccord-avec-legypte-afin-de-faire-progresser-les-soins-durables\/\">ici<\/a>.<\/p>\n<p>Les progr\u00e8s constat\u00e9s par l\u2019\u00e9quipe de la FMH en \u00c9gypte sont tr\u00e8s encourageants, mais malgr\u00e9 ces avanc\u00e9es, un grand nombre d\u2019adultes atteint\u00b7es d\u2019un trouble de la coagulation ne peuvent avoir acc\u00e8s \u00e0 un traitement que pour des saignements aigus. Celles et ceux qui ne disposent pas d\u2019une assurance continuent \u00e0 devoir compter sur le Programme d\u2019aide humanitaire de la FMH pour b\u00e9n\u00e9ficier de dons de produits th\u00e9rapeutiques.<\/p>\n<p>Dans ce contexte, Grifols a invit\u00e9 la FMH \u00e0 visiter ses locaux de pointe pour la collecte de plasma, o\u00f9 l\u2019entreprise exp\u00e9rimente un partenariat public-priv\u00e9 afin d\u2019\u00e9largir l\u2019acc\u00e8s au traitement. L\u2019International Patient Organisation for Primary Immunodeficiencies (IPOPI), une association d\u00e9di\u00e9e \u00e0 la sensibilisation et \u00e0 l\u2019am\u00e9lioration de l\u2019acc\u00e8s au diagnostic pr\u00e9coce et \u00e0 un traitement optimal pour les patient\u00b7es pr\u00e9sentant une immunod\u00e9ficience primaire dans le monde entier, a aussi effectu\u00e9 une visite de l\u2019\u00e9tablissement pour voir en quoi il pourrait soutenir ses objectifs. Cela a permis \u00e0 la FMH et \u00e0 l\u2019 IPOPI, qui ont des missions similaires \u00e0 destination de communaut\u00e9s diff\u00e9rentes, d\u2019\u00e9changer leurs connaissances et leurs exp\u00e9riences.<\/p>\n<p>Cette initiative de Grifols d\u00e9montre encore une fois l\u2019investissement de ce groupe en faveur de la communaut\u00e9 mondiale des troubles h\u00e9r\u00e9ditaires de la coagulation. Il est \u00e9galement un soutien fiable de la FMH, et l\u2019un des premiers donateurs du Programme d\u2019aide humanitaire de la FMH. La FMH lui est tr\u00e8s reconnaissante de son engagement de longue date pour l\u2019am\u00e9lioration des soins.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Lors d\u2019une visite ce mois-ci, des responsables de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) ont eu l\u2019occasion de constater directement les progr\u00e8s remarquables qu\u2019a faits la communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation en \u00c9gypte ces 25 derni\u00e8res ann\u00e9es. L\u2019\u00e9quipe de direction tr\u00e8s investie de l\u2019organisation nationale membre (ONM) en locale, l\u2019Egyptian Hemophilia Society (EHS), a beaucoup contribu\u00e9 \u00e0 l\u2019am\u00e9lioration du diagnostic et du traitement dans le pays. Aujourd\u2019hui, la qualit\u00e9 de vie est meilleure, et les enfants atteint\u00b7es d\u2019un trouble de la coagulation peuvent recevoir des soins prophylactiques de pointe.<\/p>\n","protected":false},"author":13,"featured_media":134430,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,8],"tags":[],"search-category":[85],"class_list":["post-134839","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-non-classifiee","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>L\u2019\u00e9quipe de la FMH constate des progr\u00e8s au sein de la communaut\u00e9 \u00e9gyptienne des troubles de la coagulation | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019\u00e9quipe de la FMH constate des progr\u00e8s au sein de la communaut\u00e9 \u00e9gyptienne des troubles de la coagulation\" \/>\n<meta property=\"og:description\" content=\"Lors d\u2019une visite ce mois-ci, des responsables de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) ont eu l\u2019occasion de constater directement les progr\u00e8s remarquables qu\u2019a faits la communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation en \u00c9gypte ces 25 derni\u00e8res ann\u00e9es. L\u2019\u00e9quipe de direction tr\u00e8s investie de l\u2019organisation nationale membre (ONM) en locale, l\u2019Egyptian Hemophilia Society (EHS), a beaucoup contribu\u00e9 \u00e0 l\u2019am\u00e9lioration du diagnostic et du traitement dans le pays. Aujourd\u2019hui, la qualit\u00e9 de vie est meilleure, et les enfants atteint\u00b7es d\u2019un trouble de la coagulation peuvent recevoir des soins prophylactiques de pointe.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-02-20T21:41:57+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-03-03T14:52:13+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/02\/WFH-Grifols-visit-Egypt-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\"},\"headline\":\"L\u2019\u00e9quipe de la FMH constate des progr\u00e8s au sein de la communaut\u00e9 \u00e9gyptienne des troubles de la coagulation\",\"datePublished\":\"2025-02-20T21:41:57+00:00\",\"dateModified\":\"2025-03-03T14:52:13+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/\"},\"wordCount\":400,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lequipe-de-la-fmh-constate-des-progres-au-sein-de-la-communaute-egyptienne-des-troubles-de-la-coagulation\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/02\/WFH-Grifols-visit-Egypt-header.jpg\",\"articleSection\":[\"Featured 3 - 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