{"id":131395,"date":"2025-01-16T09:00:04","date_gmt":"2025-01-16T14:00:04","guid":{"rendered":"https:\/\/wfh.org\/article\/the-wbdr-data-dashboard-is-now-live\/"},"modified":"2025-01-21T09:51:43","modified_gmt":"2025-01-21T14:51:43","slug":"the-wbdr-data-dashboard-is-now-live","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/","title":{"rendered":"Le tableau de bord des donn\u00e9es du RMTC est d\u00e9sormais en ligne !"},"content":{"rendered":"\t\t
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Le tableau de bord des donn\u00e9es du RMTC<\/a> propose aux utilisateurs et utilisatrices des informations en temps r\u00e9el sur des indicateurs cl\u00e9s comme les donn\u00e9es d\u00e9mographiques des patient\u00b7es et les r\u00e9sultats cliniques. Cet outil permet aux CTH, aux professionnel\u00b7les de sant\u00e9 ainsi qu\u2019aux chercheurs et chercheuses d\u2019analyser les tendances et les disparit\u00e9s de diagnostic, de traitement et de soins, afin de mieux nourrir les r\u00e9sultats de sant\u00e9 des patient\u00b7es, l\u2019allocation des ressources et les politiques de sant\u00e9.<\/p>\n

Les donn\u00e9es peuvent \u00eatre filtr\u00e9es selon plusieurs crit\u00e8res\u00a0: type d\u2019h\u00e9mophilie, s\u00e9v\u00e9rit\u00e9, tranche d\u2019\u00e2ge, r\u00e9gion et pays. Des visualisations peuvent ensuite \u00eatre pr\u00e9sent\u00e9es sous forme de r\u00e9sum\u00e9 d\u00e9mographique, de visualisation d\u00e9mographique, de carte, de r\u00e9sum\u00e9 clinique, ou bien sous forme de visualisation de diagnostic, de r\u00e9sultats de sant\u00e9 ou de traitement. Les chiffres ci-dessous montrent deux productions possibles de donn\u00e9es, avec les filtres affich\u00e9s sur la droite.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"WBDR\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t
Visualisation sous forme de r\u00e9sum\u00e9 d\u00e9mographique<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Visualisation sous forme de carte<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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En rendant les donn\u00e9es du RMTC plus accessibles, la FMH esp\u00e8re montrer toute l\u2019importance de cette initiative de collecte de donn\u00e9es et rendre compte de son impact positif essentiel sur la communaut\u00e9 des troubles de la coagulation et sur l\u2019am\u00e9lioration des soins pour les personnes atteintes d\u2019h\u00e9mophilie et de la MW.<\/p>\n

Pour acc\u00e9der au tableau de bord sur les donn\u00e9es du RMTC, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le Registre mondial des troubles de la coagulation (RMTC) est une plateforme mondiale de collecte qui recueille depuis 2018 des donn\u00e9es standardis\u00e9es sur les patient\u00b7es issues de centres de traitement de l\u2019h\u00e9mophilie (CTH) du monde entier. Ces donn\u00e9es fournissent de pr\u00e9cieuses informations sur les pratiques de traitement et les r\u00e9sultats de sant\u00e9 des personnes atteintes d\u2019h\u00e9mophilie et de la maladie de Willebrand (MW), avec l\u2019objectif de soutenir des prises de d\u00e9cision fond\u00e9es sur les preuves, d\u2019am\u00e9liorer les pratiques cliniques et de renforcer les initiatives de recherche et de plaidoyer. Pour atteindre ces objectifs, la FMH a d\u00e9sormais d\u00e9velopp\u00e9 un tableau de bord des donn\u00e9es du RMTC, qui transforme les donn\u00e9es en indicateurs et perspectives utiles dont il est possible de se servir \u00e0 plusieurs titres, par exemple pour le plaidoyer et la recherche.<\/p>\n","protected":false},"author":13,"featured_media":130996,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[336,356],"tags":[],"search-category":[85],"class_list":["post-131395","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-2-fr","category-rmtc","search-category-article"],"yoast_head":"\nLe tableau de bord des donn\u00e9es du RMTC est d\u00e9sormais en ligne ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le tableau de bord des donn\u00e9es du RMTC est d\u00e9sormais en ligne !\" \/>\n<meta property=\"og:description\" content=\"Le Registre mondial des troubles de la coagulation (RMTC) est une plateforme mondiale de collecte qui recueille depuis 2018 des donn\u00e9es standardis\u00e9es sur les patient\u00b7es issues de centres de traitement de l\u2019h\u00e9mophilie (CTH) du monde entier. Ces donn\u00e9es fournissent de pr\u00e9cieuses informations sur les pratiques de traitement et les r\u00e9sultats de sant\u00e9 des personnes atteintes d\u2019h\u00e9mophilie et de la maladie de Willebrand (MW), avec l\u2019objectif de soutenir des prises de d\u00e9cision fond\u00e9es sur les preuves, d\u2019am\u00e9liorer les pratiques cliniques et de renforcer les initiatives de recherche et de plaidoyer. Pour atteindre ces objectifs, la FMH a d\u00e9sormais d\u00e9velopp\u00e9 un tableau de bord des donn\u00e9es du RMTC, qui transforme les donn\u00e9es en indicateurs et perspectives utiles dont il est possible de se servir \u00e0 plusieurs titres, par exemple pour le plaidoyer et la recherche.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-01-16T14:00:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-01-21T14:51:43+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/01\/WBDR-Data-Dashboard-Article-header-FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Le tableau de bord des donn\u00e9es du RMTC est d\u00e9sormais en ligne !\",\"datePublished\":\"2025-01-16T14:00:04+00:00\",\"dateModified\":\"2025-01-21T14:51:43+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/\"},\"wordCount\":276,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/01\/WBDR-Data-Dashboard-Article-header-FR.jpg\",\"articleSection\":[\"Featured 2 - FR\",\"Registre mondial des troubles de la coagulation (RMTC)\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/the-wbdr-data-dashboard-is-now-live\/\",\"name\":\"Le tableau de bord des donn\u00e9es du RMTC est d\u00e9sormais en ligne ! 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