{"id":129498,"date":"2020-01-01T09:00:43","date_gmt":"2020-01-01T14:00:43","guid":{"rendered":"https:\/\/wfh.org\/article\/felix-abener-flores-oliva-in-his-own-words\/"},"modified":"2024-11-26T14:57:04","modified_gmt":"2024-11-26T19:57:04","slug":"felix-abener-flores-oliva-in-his-own-words","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/","title":{"rendered":"Felix Abener Flores Oliva nous raconte son histoire"},"content":{"rendered":"\t\t
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Voici un article adress\u00e9 par un des membres de la communaut\u00e9 internationale des troubles de la coagulation \u00e0 la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH). Felix Abener Flores Oliva, qui vient du Honduras, nous raconte son histoire.<\/p>\n

Je suis n\u00e9 le 21 d\u00e9cembre 1997 \u00e0 Puerto Lempira, au Honduras. Quand j\u2019ai eu six mois, alors que je dormais dans un hamac, je suis tomb\u00e9 et me suis cogn\u00e9 la t\u00eate sur le sol. On m\u2019a emmen\u00e9 en urgence \u00e0 l\u2019h\u00f4pital de Puerto Lempira, mais les m\u00e9decins n\u2019arrivaient pas \u00e0 contr\u00f4ler l\u2019h\u00e9morragie [et ne m\u2019ont fait les tests de d\u00e9pistage de l\u2019h\u00e9mophilie que six ans plus tard]. J\u2019ai ensuite \u00e9t\u00e9 transf\u00e9r\u00e9 \u00e0 l\u2019h\u00f4pital d\u2019Atl\u00e1ntida pour un s\u00e9jour de trois mois. L\u00e0, on a caut\u00e9ris\u00e9 ma veine et pratiqu\u00e9 trois op\u00e9rations diff\u00e9rentes au niveau de mon front. Selon mes parents, c\u2019\u00e9tait un processus tr\u00e8s dur et tr\u00e8s triste.<\/p>\n

Mon h\u00e9mophilie n\u2019a \u00e9t\u00e9 diagnostiqu\u00e9e que quand j\u2019ai eu six ans. Les m\u00e9decins ont mis beaucoup de temps avant de poser le diagnostic, car l\u2019h\u00e9mophilie n\u2019\u00e9tait pas bien connue au Honduras, et l\u2019h\u00f4pital ne disposait pas de l\u2019\u00e9quipement ad\u00e9quat. J\u2019ai m\u00eame failli \u00eatre transf\u00e9r\u00e9 au Costa Rica, o\u00f9 les h\u00f4pitaux \u00e9taient mieux \u00e9quip\u00e9s.<\/p>\n

Apr\u00e8s mon diagnostic, j\u2019ai commenc\u00e9 \u00e0 recevoir un traitement plasmatique, mais j\u2019ai souffert de nombreux saignements tr\u00e8s douloureux. Heureusement, la Fondation du Honduras pour l\u2019h\u00e9mophilie a pu m\u2019aider. On m\u2019a fourni du facteur plus r\u00e9guli\u00e8rement et j\u2019ai vu ma qualit\u00e9 de vie s\u2019am\u00e9liorer.<\/p>\n

J\u2019ai parfois encore des complications dues \u00e0 mon h\u00e9mophilie. J\u2019ai par exemple encore des difficult\u00e9s avec mon genou, mais j\u2019essaie de ne pas y faire attention. J\u2019ai heureusement acc\u00e8s \u00e0 du facteur et cela m\u2019aide beaucoup, car je gu\u00e9ris plus vite. Je continue \u00e0 me battre et \u00e0 essayer de rester positif malgr\u00e9 les difficult\u00e9s que je rencontre, parce que je veux devenir un exemple pour les autres jeunes atteints de troubles de la coagulation, et pouvoir m\u2019occuper de mes parents qui se sont tant battus pour moi.<\/p>\n

Ce texte a \u00e9t\u00e9 modifi\u00e9 pour plus de clart\u00e9.<\/p>\n

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Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH,\u00a0cliquez ici<\/a>.<\/p>\n<\/div>\n<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda et la Japan Blood Product Organization, nos Donateurs contributeurs. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Le programme d\u2019aide humanitaire de la FMH a envoy\u00e9 pr\u00e8s de 7,3 millions d\u2019UI de facteur au Honduras depuis 2015, dont plus de 4,25 millions d\u2019UI en 2019. Gr\u00e2ce \u00e0 ces dons, des milliers de personnes atteintes d\u2019un trouble de la coagulation dans ce pays d\u2019Am\u00e9rique centrale ont pu b\u00e9n\u00e9ficier d\u2019une meilleure qualit\u00e9 de vie. <\/p>\n","protected":false},"author":13,"featured_media":129490,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-129498","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nFelix Abener Flores Oliva nous raconte son histoire | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Felix Abener Flores Oliva nous raconte son histoire\" \/>\n<meta property=\"og:description\" content=\"Le programme d\u2019aide humanitaire de la FMH a envoy\u00e9 pr\u00e8s de 7,3 millions d\u2019UI de facteur au Honduras depuis 2015, dont plus de 4,25 millions d\u2019UI en 2019. Gr\u00e2ce \u00e0 ces dons, des milliers de personnes atteintes d\u2019un trouble de la coagulation dans ce pays d\u2019Am\u00e9rique centrale ont pu b\u00e9n\u00e9ficier d\u2019une meilleure qualit\u00e9 de vie.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-01-01T14:00:43+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-11-26T19:57:04+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2020\/01\/Felix-Abener-Flores-Oliva-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"640\" \/>\n\t<meta property=\"og:image:height\" content=\"400\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Felix Abener Flores Oliva nous raconte son histoire\",\"datePublished\":\"2020-01-01T14:00:43+00:00\",\"dateModified\":\"2024-11-26T19:57:04+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/\"},\"wordCount\":575,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2020\/01\/Felix-Abener-Flores-Oliva-header.jpg\",\"articleSection\":[\"Programme d\u2019aide humanitaire de la FMH\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/felix-abener-flores-oliva-in-his-own-words\/\",\"name\":\"Felix Abener Flores Oliva nous raconte son histoire | FMH - 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