{"id":12405,"date":"2021-03-05T09:00:00","date_gmt":"2021-03-05T14:00:00","guid":{"rendered":"https:\/\/wfh.org\/le-rmtc-ameliore-la-collecte-de-donnees-au-senegal\/"},"modified":"2024-04-22T09:24:31","modified_gmt":"2024-04-22T13:24:31","slug":"le-rmtc-ameliore-la-collecte-de-donnees-au-senegal","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-la-collecte-de-donnees-au-senegal\/","title":{"rendered":"Le RMTC am\u00e9liore la collecte de donn\u00e9es au S\u00e9n\u00e9gal"},"content":{"rendered":"\t\t
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La collecte de donn\u00e9es est essentielle pour am\u00e9liorer la connaissance et la prise en charge de l\u2019h\u00e9mophilie, pour que les m\u00e9decins puissent prodiguer de meilleurs soins, et que les patient\u00b7es b\u00e9n\u00e9ficient d\u2019une meilleure qualit\u00e9 de vie. Au S\u00e9n\u00e9gal, les donn\u00e9es sur les saignements et les traitements \u00e9taient auparavant collect\u00e9es au moment du traitement, mais elles \u00e9taient irr\u00e9guli\u00e8res et peu nombreuses, et ne permettaient pas aux m\u00e9decins d\u2019avoir une bonne id\u00e9e de la situation de la communaut\u00e9 locale des troubles de la coagulation. Un centre de traitement de l\u2019h\u00e9mophilie (CTH) du S\u00e9n\u00e9gal, le Centre National de Transfusion Sanguine de Dakar, a voulu rem\u00e9dier \u00e0 la situation, gr\u00e2ce au\u00a0Programme de soutien \u00e0 la recherche<\/a>\u00a0dans le cadre du Registre mondial des troubles de la coagulation (RMTC<\/a>) de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH). Gr\u00e2ce \u00e0 la subvention du Programme, le CTH a pu mettre en place le syst\u00e8me de collecte fiable de donn\u00e9es du RMTC, am\u00e9liorant ainsi grandement la pr\u00e9cision et la facilit\u00e9 de collecte des donn\u00e9es sur les troubles de la coagulation au S\u00e9n\u00e9gal.<\/p>\n

Le projet du\u00a0RMTC<\/a>\u00a0au S\u00e9n\u00e9gal a dur\u00e9 deux ans, avec une mise en place en f\u00e9vrier 2019 et une conclusion en ao\u00fbt 2020. Le processus de mise en place s\u2019est construit sur trois axes principaux. Le premier a \u00e9t\u00e9 la distribution d\u2019environ 200 carnets pour noter les donn\u00e9es sur les saignements et les traitements. Dans ces carnets, les patient\u00b7es devaient noter leurs saignements, leurs op\u00e9rations d\u2018urgence et leurs injections de facteur. \u00c0 chaque visite au CTH, les clinicien\u00b7nes ramassaient les carnets et entraient les donn\u00e9es dans le RMTC.<\/p>\n

Le deuxi\u00e8me axe a \u00e9t\u00e9 l\u2019ouverture d\u2019une ligne t\u00e9l\u00e9phonique portable d\u00e9di\u00e9e au CTH. Le t\u00e9l\u00e9phone portable a servi de num\u00e9ro de contact d\u2019urgence 24h\/24 et 7j\/7 pour les patient\u00b7es. Il a aussi servi \u00e0 contacter les patient\u00b7es pour faire un bilan par t\u00e9l\u00e9phone, prendre leur rendez-vous de suivi et recueillir des donn\u00e9es sur leurs saignements et leurs traitements. Cet outil simple a permis aux m\u00e9decins d\u2019\u00eatre plus facilement en contact avec leurs patient\u00b7es, mais aussi d\u2019augmenter le nombre de personnes inscrites au RMTC.<\/p>\n

Le troisi\u00e8me et dernier axe a \u00e9t\u00e9 l\u2019organisation de sessions d\u2019\u00e9ducation th\u00e9rapeutique pour les patient\u00b7es. La premi\u00e8re s\u2019est concentr\u00e9e sur le traitement de l\u2019h\u00e9mophilie et le lancement des carnets. Pr\u00e8s de 90 personnes y ont assist\u00e9, dont 63 patient\u00b7es. La session \u00e9tait anim\u00e9e par Saliou Diop, m\u00e9decin et membre m\u00e9dical du conseil d\u2019administration de la FMH, qui a expliqu\u00e9 aux patient\u00b7es et \u00e0 leur famille comment reconna\u00eetre des saignements et utiliser leur carnet. La deuxi\u00e8me session s\u2019est concentr\u00e9e sur la kin\u00e9sith\u00e9rapie passive \u00e0 domicile. Des kin\u00e9sith\u00e9rapeutes ont montr\u00e9 des mouvements et des exercices pratiques que les patient\u00b7es peuvent reproduire chez eux pour renforcer leurs articulations et leurs muscles.<\/p>\n

Gr\u00e2ce \u00e0 ces efforts, le Programme de soutien \u00e0 la recherche dans le cadre du Registre mondial des troubles de la coagulation (RMTC) de la FMH a pu avoir un effet tr\u00e8s concret au S\u00e9n\u00e9gal\u00a0: la collecte des donn\u00e9es et les soins aux patients ont \u00e9t\u00e9 am\u00e9lior\u00e9s. En 2019, on ne comptait que 6 patient\u00b7es inscrit\u00b7es au RMTC\u00a0; en juin 2020, ce chiffre \u00e9tait pass\u00e9 \u00e0 200.<\/p>\n

Pour en savoir plus sur le Programme de soutien \u00e0 la recherche dans le cadre du RMTC de la FMH,\u00a0cliquez ici.<\/a><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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La collecte de donn\u00e9es est essentielle pour am\u00e9liorer la connaissance et la prise en charge de l\u2019h\u00e9mophilie, pour que les m\u00e9decins puissent prodiguer de meilleurs soins, et que les patient\u00b7es b\u00e9n\u00e9ficient d\u2019une meilleure qualit\u00e9 de vie. Au S\u00e9n\u00e9gal, les donn\u00e9es sur les saignements et les traitements \u00e9taient auparavant collect\u00e9es au moment du traitement, mais elles \u00e9taient irr\u00e9guli\u00e8res et peu nombreuses,<\/p>\n","protected":false},"author":3,"featured_media":3951,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[178,114,189],"tags":[],"search-category":[85],"class_list":["post-12405","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ateliers-medicaux","category-education-fr","category-evenements","search-category-article"],"yoast_head":"\nLe RMTC am\u00e9liore la collecte de donn\u00e9es au S\u00e9n\u00e9gal | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-rmtc-ameliore-la-collecte-de-donnees-au-senegal\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le RMTC am\u00e9liore la collecte de donn\u00e9es au S\u00e9n\u00e9gal\" \/>\n<meta property=\"og:description\" content=\"La collecte de donn\u00e9es est essentielle pour am\u00e9liorer la connaissance et la prise en charge de l\u2019h\u00e9mophilie, pour que les m\u00e9decins puissent prodiguer de meilleurs soins, et que les patient\u00b7es b\u00e9n\u00e9ficient d\u2019une meilleure qualit\u00e9 de vie. 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