{"id":123680,"date":"2024-10-01T09:00:47","date_gmt":"2024-10-01T13:00:47","guid":{"rendered":"https:\/\/wfh.org\/?p=123680"},"modified":"2026-03-12T09:46:49","modified_gmt":"2026-03-12T13:46:49","slug":"le-theme-de-la-journee-mondiale-de-lhemophilie-2025-devoile","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-theme-de-la-journee-mondiale-de-lhemophilie-2025-devoile\/","title":{"rendered":"Le th\u00e8me de la Journ\u00e9e mondiale de l’h\u00e9mophilie 2025 d\u00e9voil\u00e9"},"content":{"rendered":"\t\t
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En avril, c\u00e9l\u00e9brons notre communaut\u00e9 et continuons \u00e0 travailler pour un monde o\u00f9 chacun, y compris les femmes et les jeunes filles, a acc\u00e8s au diagnostic, au traitement et \u00e0 des soins complets.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Reconna\u00eetre l\u2019existence des femmes et des filles atteintes de troubles de la coagulation constitue une \u00e9tape importante pour notre communaut\u00e9. Par le pass\u00e9, elles \u00e9taient souvent consid\u00e9r\u00e9es comme de simples porteuses plut\u00f4t que comme des personnes atteintes d'un trouble de la coagulation. Il est temps d'accepter et de reconna\u00eetre pleinement leurs exp\u00e9riences et leurs luttes. Il est essentiel de donner la priorit\u00e9 au diagnostic et au traitement des femmes et des filles, et ce faisant, nous renfor\u00e7ons toute la communaut\u00e9 des troubles de la coagulation. Joignez vous \u00e0 nous le 17 avril pour manifester votre soutien \u00e0 l'acc\u00e8s au traitement pour tous, y compris pour les femmes et les filles.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Cesar Garrido, pr\u00e9sident de la FMH <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Comment participer<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Il existe de nombreuses fa\u00e7ons de contribuer \u00e0 sensibiliser en faveur des femmes et des filles atteintes d’un trouble de la coagulation dans votre communaut\u00e9 – et dans le monde entier. Bien que le th\u00e8me de 2025 soit un axe de travail, n\u2019h\u00e9sitez pas \u00e0 l’adapter aux besoins de votre r\u00e9gion et de votre organisation. Nous partagerons bient\u00f4t une vari\u00e9t\u00e9 d’options pour pouvoir participer \u00e0 cette journ\u00e9e sur notre page Internet de la Journ\u00e9e mondiale de l’h\u00e9mophilie<\/a> et sur la page Actualit\u00e9s de la FMH<\/a>. En outre, suivez\u2011nous sur les r\u00e9seaux sociaux de la FMH – Facebook<\/a>, X (Twitter)<\/a>, LinkedIn<\/a>, et Instagram<\/a> pour obtenir les derni\u00e8res nouvelles relatives \u00e0 la Journ\u00e9e mondiale de l’h\u00e9mophilie.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Ressources<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Vous pouvez t\u00e9l\u00e9charger des affiches, des banni\u00e8res, des logos et des visuels destin\u00e9s aux r\u00e9seaux sociaux sur la page Internet de la Journ\u00e9e mondiale de l’h\u00e9mophilie<\/a>. Dans les mois qui viennent, nous mettrons \u00e9galement \u00e0 disposition une bo\u00eete \u00e0 outils pour le plaidoyer, un mod\u00e8le de lettre \u00e0 adresser au gouvernement et d’autres documents de campagne.<\/p>\n

Pour en savoir plus sur la Journ\u00e9e mondiale de l’h\u00e9mophilie, cliquez ici<\/a>.<\/p>\n

La FMH tient \u00e0 remercier les sponsors de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2025 pour leur soutien : \u00a0Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Regeneron, Sanofi, Sobi, et Takeda.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le 17 avril 2025, la communaut\u00e9 mondiale concern\u00e9e par les troubles de la coagulation se r\u00e9unira pour c\u00e9l\u00e9brer la Journ\u00e9e mondiale de l’h\u00e9mophilie. Le th\u00e8me de cette ann\u00e9e est \u00ab Acc\u00e8s pour tous : Les femmes et les filles saignent aussi \u00bb. Aujourd’hui, les femmes et les jeunes filles atteintes de troubles de la coagulation sont encore sous-diagnostiqu\u00e9es et mal prises en charge. La communaut\u00e9 mondiale des troubles de la coagulation a le pouvoir – et la responsabilit\u00e9 – de faire bouger les choses. En sensibilisant, en diagnostiquant, en permettant un acc\u00e8s aux traitements et aux soins, la qualit\u00e9 de vie des femmes et des jeunes filles s’am\u00e9liorera et la communaut\u00e9 des troubles de la coagulation deviendra plus forte.<\/p>\n","protected":false},"author":13,"featured_media":123220,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[169,333,150],"tags":[],"search-category":[85],"class_list":["post-123680","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events-2","category-featured-3","category-world-hemophilia-day","search-category-article"],"yoast_head":"\nLe th\u00e8me de la Journ\u00e9e mondiale de l'h\u00e9mophilie 2025 d\u00e9voil\u00e9 | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-theme-de-la-journee-mondiale-de-lhemophilie-2025-devoile\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le th\u00e8me de la Journ\u00e9e mondiale de l'h\u00e9mophilie 2025 d\u00e9voil\u00e9\" \/>\n<meta property=\"og:description\" content=\"Le 17 avril 2025, la communaut\u00e9 mondiale concern\u00e9e par les troubles de la coagulation se r\u00e9unira pour c\u00e9l\u00e9brer la Journ\u00e9e mondiale de l'h\u00e9mophilie. 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