{"id":12214,"date":"2021-04-09T09:00:00","date_gmt":"2021-04-09T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/"},"modified":"2024-04-22T09:11:56","modified_gmt":"2024-04-22T13:11:56","slug":"lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/","title":{"rendered":"L\u2019Association Congolaise des H\u00e9mophiles rejoint la FMH en tant qu\u2019ONM associ\u00e9e"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"12214\" class=\"elementor elementor-12214 elementor-3804\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d1a76e4 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d1a76e4\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-a68eb35\" data-id=\"a68eb35\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7fbcf0e elementor-widget elementor-widget-text-editor\" data-id=\"7fbcf0e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>En R\u00e9publique du Congo, les personnes atteintes d\u2019un trouble de la coagulation font face \u00e0 de nombreuses difficult\u00e9s. Il est non seulement tr\u00e8s difficile (voire impossible) d\u2019avoir acc\u00e8s \u00e0 un diagnostic et \u00e0 un traitement, mais certaines pathologies ne sont m\u00eame pas reconnues officiellement. Jean Paul L\u00e9onard Ngoukoulou est atteint d\u2019un trouble de la coagulation et pr\u00e9sident de l\u2019Association Congolaise des H\u00e9mophiles (ACH). Malgr\u00e9 les efforts de son organisation, il estime que le traitement et les soins pour les personnes atteintes d\u2019un trouble de la coagulation en R\u00e9publique du Congo pr\u00e9sentent toujours de nombreux obstacles.<\/p>\n<p>C\u2019est cette situation tr\u00e8s difficile de la communaut\u00e9 congolaise des troubles de la coagulation qui est \u00e0 l\u2019origine de l\u2019ACH. M. Ngoukoulou et un groupe de b\u00e9n\u00e9voles ont officiellement fond\u00e9 l\u2019association en 2017, avec pr\u00e8s de 30 membres inscrit\u00b7es. Depuis, les soins m\u00e9dicaux prodigu\u00e9s aux personnes atteintes d\u2019h\u00e9mophilie dans le pays se sont am\u00e9lior\u00e9s. Cela a \u00e9t\u00e9 rendu possible par des activit\u00e9s de renforcement des capacit\u00e9s, en collaboration avec des groupes de patient\u00b7es et des professionnel\u00b7les de sant\u00e9, et par des dons de facteurs du\u00a0<a href=\"https:\/\/www.wfh.org\/fr\/programme-aide-humanitaire-de-la-fmh\" target=\"_blank\" rel=\"noopener noreferrer\">Programme d\u2019aide humanitaire de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH)<\/a>. Actuellement, 97 personnes atteintes d\u2019un trouble de la coagulation ont \u00e9t\u00e9 identifi\u00e9es au niveau national.<\/p>\n<p>L\u2019Alliance franco-africaine pour le traitement de l\u2019h\u00e9mophilie (Afath) a jou\u00e9 un r\u00f4le dans les divers succ\u00e8s de l\u2019ACH. Bas\u00e9e \u00e0 Paris, l\u2019Afath travaille en \u00e9troite collaboration avec les organisations d\u00e9di\u00e9es aux troubles de la coagulation en Afrique francophone. Elle a propos\u00e9 une aide directe \u00e0 l\u2019ACH pour s\u2019\u00e9tablir, et a \u00e9galement aid\u00e9 l\u2019association \u00e0 obtenir\u00a0<a href=\"https:\/\/news.wfh.org\/fr\/un-nouveau-president-elu-lors-de-lassemblee-generale-annuelle-2020\/\" target=\"_blank\" rel=\"noopener noreferrer\">son accr\u00e9ditation en tant qu\u2019organisation nationale membre (ONM) associ\u00e9e<\/a>. L\u2019ACH fait d\u00e9sormais partie des 147 ONM du monde entier.<\/p>\n<p>Ngoukoulou d\u00e9clare que ce statut d\u2019ONM associ\u00e9 est une \u00e9tape majeure pour son organisation. \u00ab\u00a0Nous voulions devenir membres de la FMH car nous souhaitons que la communaut\u00e9 congolaise des troubles de la coagulation puisse b\u00e9n\u00e9ficier des programmes, des formations et des actions de plaidoyer de la FMH. Nous voulons \u00e9galement continuer \u00e0 travailler avec le\u00a0<a href=\"https:\/\/www.wfh.org\/fr\/que-faisons-nous-mondiaux\/programme-de-jumelage\" target=\"_blank\" rel=\"noopener noreferrer\">Programme de jumelage<\/a>\u00a0de la FMH et avec son programme d\u2019aide humanitaire.\u00a0\u00bb<\/p>\n<p>La FMH a h\u00e2te de travailler avec l\u2019Association Congolaise des H\u00e9mophiles pour am\u00e9liorer la qualit\u00e9 de vie des personnes atteintes d\u2019h\u00e9mophilie et d\u2019autres troubles de la coagulation en R\u00e9publique du Congo. Au nom de toute la communaut\u00e9 mondiale des troubles de la coagulation, bienvenue \u00e0 l\u2019ACH\u00a0!<strong>\u00a0<\/strong><\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>En R\u00e9publique du Congo, les personnes atteintes d\u2019un trouble de la coagulation font face \u00e0 de nombreuses difficult\u00e9s. Il est non seulement tr\u00e8s difficile (voire impossible) d\u2019avoir acc\u00e8s \u00e0 un diagnostic et \u00e0 un traitement, mais certaines pathologies ne sont m\u00eame pas reconnues officiellement.<\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[189],"tags":[],"search-category":[85],"class_list":["post-12214","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>L\u2019Association Congolaise des H\u00e9mophiles rejoint la FMH en tant qu\u2019ONM associ\u00e9e | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019Association Congolaise des H\u00e9mophiles rejoint la FMH en tant qu\u2019ONM associ\u00e9e\" \/>\n<meta property=\"og:description\" content=\"En R\u00e9publique du Congo, les personnes atteintes d\u2019un trouble de la coagulation font face \u00e0 de nombreuses difficult\u00e9s. Il est non seulement tr\u00e8s difficile (voire impossible) d\u2019avoir acc\u00e8s \u00e0 un diagnostic et \u00e0 un traitement, mais certaines pathologies ne sont m\u00eame pas reconnues officiellement.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-04-09T13:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-22T13:11:56+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Electra Rozakis\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Electra Rozakis\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/\"},\"author\":{\"name\":\"Electra Rozakis\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/590cf0d3a057aaef67b154adeffbf31d\"},\"headline\":\"L\u2019Association Congolaise des H\u00e9mophiles rejoint la FMH en tant qu\u2019ONM associ\u00e9e\",\"datePublished\":\"2021-04-09T13:00:00+00:00\",\"dateModified\":\"2024-04-22T13:11:56+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/\"},\"wordCount\":467,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\",\"articleSection\":[\"\u00c9v\u00e9nements\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/lassociation-congolaise-des-hemophiles-rejoint-la-fmh-en-tant-quonm-associee\/\",\"name\":\"L\u2019Association Congolaise des H\u00e9mophiles rejoint la FMH en tant qu\u2019ONM associ\u00e9e | FMH - 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