{"id":12168,"date":"2021-05-06T09:00:00","date_gmt":"2021-05-06T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/la-table-ronde-sur-la-therapie-genique-aborde-les-dernieres-nouveautes\/"},"modified":"2024-04-22T08:59:04","modified_gmt":"2024-04-22T12:59:04","slug":"la-table-ronde-sur-la-therapie-genique-aborde-les-dernieres-nouveautes","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-table-ronde-sur-la-therapie-genique-aborde-les-dernieres-nouveautes\/","title":{"rendered":"La Table ronde sur la th\u00e9rapie g\u00e9nique aborde les derni\u00e8res nouveaut\u00e9s"},"content":{"rendered":"\t\t
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Le premier webinaire de la 4e<\/sup>\u00a0Table ronde sur la th\u00e9rapie g\u00e9nique<\/a>\u00a0a eu lieu en mars\u00a0; il \u00e9tait consacr\u00e9 au processus de d\u00e9cision pour les personnes atteintes d\u2019h\u00e9mophilie choisissant de recevoir une th\u00e9rapie g\u00e9nique. L\u2019\u00e9v\u00e9nement a explor\u00e9 de nombreux sujets importants pour la communaut\u00e9, notamment\u00a0:<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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  • La prise de d\u00e9cision du point de vue du personnel infirmier<\/li>\n
  • L\u2019\u00e9tude Patient preferences to Assess Value IN Gene therapies (PAVING \u2013 en fran\u00e7ais\u00a0: les pr\u00e9f\u00e9rences des patients pour l\u2019\u00e9valuation des th\u00e9rapies g\u00e9niques), qui examine les principaux facteurs cl\u00e9s pour les patientes lorsqu\u2019ils ou elles prennent une d\u00e9cision<\/li>\n
  • L\u2019\u00e9tude Exigency, qui montre pourquoi certaines personnes atteintes d\u2019h\u00e9mophilie ne sont pas int\u00e9ress\u00e9es par la th\u00e9rapie g\u00e9nique<\/li>\n
  • Des perspectives sur la th\u00e9rapie g\u00e9nique fond\u00e9es sur diff\u00e9rents niveaux de ressources, et notamment l\u2019impact de la disponibilit\u00e9 des ressources dans un pays sur ces perspectives<\/li>\n<\/ul>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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    Les pr\u00e9sentations, qui ont \u00e9t\u00e9 tr\u00e8s stimulantes, ont \u00e9voqu\u00e9 les besoins p\u00e9dagogiques, les pr\u00e9f\u00e9rences des patient\u00b7es, l\u2019identit\u00e9, la tol\u00e9rance au risque, ainsi que bien d\u2019autres sujets. Trois personnes atteintes d\u2019h\u00e9mophilie ayant re\u00e7u une th\u00e9rapie g\u00e9nique ont racont\u00e9 leur exp\u00e9rience de participation \u00e0 un essai clinique, dont leur processus de d\u00e9cision, ainsi que ce qu\u2019elles ont v\u00e9cu dans l\u2019ann\u00e9e qui a suivi la transfusion.<\/p>\n

    La prise de d\u00e9cision a \u00e9t\u00e9 au c\u0153ur des discussions dans la deuxi\u00e8me partie du webinaire\u00a0; celles-ci permettront d\u2019\u00e9laborer un outil commun de prise de d\u00e9cision \u00e0 destination des personnes atteintes d\u2019h\u00e9mophilie et des professionnel\u00b7les de sant\u00e9 qui envisagent la th\u00e9rapie g\u00e9nique.<\/p>\n

    Les webinaires \u00e0 venir dans le cadre de la Table ronde sur la th\u00e9rapie g\u00e9nique, en juin et septembre prochains, poursuivront l\u2019examen des derni\u00e8res nouveaut\u00e9s mondiales et des difficult\u00e9s \u00e9ventuelles qui pourront se poser dans la th\u00e9rapie g\u00e9nique pour l\u2019h\u00e9mophilie.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

    Le premier webinaire de la 4e Table ronde sur la th\u00e9rapie g\u00e9nique a eu lieu en mars ; il \u00e9tait consacr\u00e9 au processus de d\u00e9cision pour les personnes atteintes d\u2019h\u00e9mophilie choisissant de recevoir une th\u00e9rapie g\u00e9nique. <\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[114,189],"tags":[],"search-category":[85],"class_list":["post-12168","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-education-fr","category-evenements","search-category-article"],"yoast_head":"\nLa Table ronde sur la th\u00e9rapie g\u00e9nique aborde les derni\u00e8res nouveaut\u00e9s | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-table-ronde-sur-la-therapie-genique-aborde-les-dernieres-nouveautes\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La Table ronde sur la th\u00e9rapie g\u00e9nique aborde les derni\u00e8res nouveaut\u00e9s\" \/>\n<meta property=\"og:description\" content=\"Le premier webinaire de la 4e Table ronde sur la th\u00e9rapie g\u00e9nique a eu lieu en mars ; il \u00e9tait consacr\u00e9 au processus de d\u00e9cision pour les personnes atteintes d\u2019h\u00e9mophilie choisissant de recevoir une th\u00e9rapie g\u00e9nique.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/la-table-ronde-sur-la-therapie-genique-aborde-les-dernieres-nouveautes\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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