{"id":12165,"date":"2021-05-07T09:00:00","date_gmt":"2021-05-07T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/mois-apres-mois-construire-sur-la-base-dun-heritage-familial\/"},"modified":"2024-04-22T08:58:38","modified_gmt":"2024-04-22T12:58:38","slug":"mois-apres-mois-construire-sur-la-base-dun-heritage-familial","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/mois-apres-mois-construire-sur-la-base-dun-heritage-familial\/","title":{"rendered":"Mois apr\u00e8s mois, construire sur la base d\u2019un h\u00e9ritage familial"},"content":{"rendered":"\t\t
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Les souvenirs les plus anciens de Gina Schnabel sont des images de son p\u00e8re Frank Schnabel, le fondateur de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie, travaillant avec des b\u00e9n\u00e9voles du monde entier pour sensibiliser le public aux troubles de la coagulation. Elle comprenait toute l\u2019ampleur de l\u2019impact d\u2019un trouble de la coagulation non diagnostiqu\u00e9, et a constat\u00e9 par elle-m\u00eame l\u2019effet positif du travail de son p\u00e8re. Il lui a pourtant fallu plusieurs d\u00e9cennies pour se rendre compte ce que cela signifiait r\u00e9ellement pour elle. \u00ab\u00a0Je suis pass\u00e9e entre les mailles, m\u00eame si depuis ma naissance je suis entour\u00e9e par l\u2019h\u00e9mophilie au quotidien\u00a0\u00bb, a-t-elle racont\u00e9 lors du r\u00e9cent\u00a0Sommet mondial de la FMH d\u00e9di\u00e9 aux femmes et aux filles atteintes d\u2019un trouble de la coagulation<\/a>.<\/p>\n

Malheureusement, l\u2019histoire de Gina ressemble beaucoup \u00e0 celle de milliers de personnes du monde entier. \u00ab\u00a0Ce n\u2019est que vers l\u2019\u00e2ge de cinquante ans que j\u2019ai vraiment compris, et que j\u2019ai fait la diff\u00e9rence entre \u00eatre porteuse et \u00eatre atteinte d\u2019h\u00e9mophilie, et il a fallu attendre des effets graves pour que cette prise de conscience ait lieu.\u00a0\u00bb C\u2019est pour cela que Gina a choisi de soutenir le travail de la FMH gr\u00e2ce \u00e0 un don mensuel. Si elle est ravie de poursuivre ce que sa famille a commenc\u00e9, l\u2019impact positif des actions de la FMH sur la vie des patient\u00b7es est la raison qui la motive \u00e0 nous soutenir dans notre mission.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Les dons mensuels sont un moyen accessible d\u2019aider les patient\u00b7es n\u2019ayant pas (ou peu) acc\u00e8s aux soins.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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La pand\u00e9mie de COVID-19 a eu des effets terribles sur les personnes atteintes d\u2019un trouble de la coagulation, car elle a accentu\u00e9 les disparit\u00e9s dans l\u2019acc\u00e8s au traitement et aux actes m\u00e9dicaux s\u00fbrs. D\u00e9cider de devenir donateur ou donatrice mensuelle, c\u2019est donner \u00e0 la FMH une source de revenus fiable, \u00e0 une \u00e9poque caract\u00e9ris\u00e9e par l\u2019incertitude. Cela nous permet d\u2019avoir la flexibilit\u00e9 n\u00e9cessaire pour r\u00e9pondre aux besoins toujours en \u00e9volution des patient\u00b7es, dans un monde qui change sans cesse. En rejoignant ce groupe tr\u00e8s sp\u00e9cial d\u2019actrices et acteurs mensuels de changement, vous nous aiderez \u00e0 atteindre une plus grande durabilit\u00e9.<\/p>\n

Nous sommes tous convaincu\u00b7es que le lieu de naissance ne doit pas d\u00e9terminer de quel acc\u00e8s aux soins nous disposons. Transformez votre compassion en action et devenez\u00a0donateur mensuel<\/a>\u00a0d\u00e8s aujourd\u2019hui.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Les souvenirs les plus anciens de Gina Schnabel sont des images de son p\u00e8re Frank Schnabel, le fondateur de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie, travaillant avec des b\u00e9n\u00e9voles du monde entier pour sensibiliser le public aux troubles de la coagulation. <\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[180],"tags":[],"search-category":[85],"class_list":["post-12165","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-philanthropie","search-category-article"],"yoast_head":"\nMois apr\u00e8s mois, construire sur la base d\u2019un h\u00e9ritage familial | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/mois-apres-mois-construire-sur-la-base-dun-heritage-familial\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Mois apr\u00e8s mois, construire sur la base d\u2019un h\u00e9ritage familial\" \/>\n<meta property=\"og:description\" content=\"Les souvenirs les plus anciens de Gina Schnabel sont des images de son p\u00e8re Frank Schnabel, le fondateur de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie, travaillant avec des b\u00e9n\u00e9voles du monde entier pour sensibiliser le public aux troubles de la coagulation.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/mois-apres-mois-construire-sur-la-base-dun-heritage-familial\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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