{"id":12162,"date":"2021-05-11T09:00:00","date_gmt":"2021-05-11T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/prochainement-le-2e-sommet-mondial-dedie-aux-femmes-et-aux-filles-atteintes-dun-trouble-de-la-coagulation\/"},"modified":"2024-04-22T08:55:52","modified_gmt":"2024-04-22T12:55:52","slug":"prochainement-le-2e-sommet-mondial-dedie-aux-femmes-et-aux-filles-atteintes-dun-trouble-de-la-coagulation","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/prochainement-le-2e-sommet-mondial-dedie-aux-femmes-et-aux-filles-atteintes-dun-trouble-de-la-coagulation\/","title":{"rendered":"Prochainement : le 2e Sommet mondial d\u00e9di\u00e9 aux femmes et aux filles atteintes d\u2019un trouble de la coagulation"},"content":{"rendered":"\t\t
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Le tout premier Sommet mondial de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) d\u00e9di\u00e9 aux femmes et aux filles atteintes d\u2019un trouble de la coagulation a \u00e9t\u00e9\u00a0un franc succ\u00e8s<\/a>, r\u00e9unissant des participant\u00b7es du monde entier pour ouvrir le dialogue sur un sujet majeur, trop longtemps mis de c\u00f4t\u00e9. Pour poursuivre cette discussion, la FMH tiendra du 8 au 10 juillet 2021 le deuxi\u00e8me\u00a0Sommet mondial d\u00e9di\u00e9 aux femmes et aux filles atteintes d\u2019un trouble de la coagulation<\/a>. Cet \u00e9v\u00e9nement virtuel proposera des sessions p\u00e9dagogiques sur la r\u00e9alit\u00e9 de la vie des femmes et des filles atteintes d\u2019un trouble de la coagulation dans le monde, et donnera aux participant\u00b7es l\u2019occasion unique de s\u2019informer sur les soins, le traitement, les actions de plaidoyer et l\u2019autonomisation des femmes vivant cette situation.<\/p>\n

Le th\u00e8me du sommet sera le cycle des soins complets pour les femmes et filles atteintes d\u2019un trouble de la coagulation. Parmi les sujets abord\u00e9s, on retrouvera la fa\u00e7on de prodiguer les soins, les exp\u00e9riences des patientes et celles des familles, ainsi que les outils qui peuvent \u00eatre utilis\u00e9s pour am\u00e9liorer la qualit\u00e9 de vie de ces femmes et de ces filles. Les participant\u00b7es pourront en savoir plus sur l\u2019importance des gyn\u00e9cologues-obst\u00e9tricien\u00b7nes dans l\u2019\u00e9quipe de soins complets\u00a0; sur la stigmatisation v\u00e9cue par les femmes, les filles et leurs familles\u00a0; sur les d\u00e9cisions en mati\u00e8re de procr\u00e9ation pour les femmes atteintes de ces troubles, \u00e0 la fois du point de vue de la patiente et de celui de l\u2019expert\u00b7e\u00a0; sur les r\u00e9sultats cliniques pour ce type de patientes\u00a0; sur l\u2019importance de d\u2019\u00e9couter ces patientes\u00a0; et sur les possibilit\u00e9s de r\u00e9duction des disparit\u00e9s de soins, de traitement et de diagnostic.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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C\u2019est tellement nouveau comme exp\u00e9rience : un \u00e9v\u00e9nement uniquement d\u00e9di\u00e9 aux femmes atteintes d\u2019un trouble de la coagulation\u2026 continuons, avec encore plus d\u2019intervenant\u00b7es et de sujets !<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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HARRIET CALDWELL-NICHOLS, PARTICIPANTE DU PREMIER SOMMET DE LA FMH D\u00c9DI\u00c9S AUX FEMMES ET AUX FILLES ATTEINTES D\u2019UN TROUBLE DE LA COAGULATION<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Le Sommet proposera des sessions pl\u00e9ni\u00e8res p\u00e9dagogiques, ainsi que des sessions qui prendront d\u2019autres formes comme des rencontres avec les expert\u00b7es ou des \u00e9changes sur des enjeux d\u2019actualit\u00e9, lors desquelles les participant\u00b7es pourront \u00e9changer sur des th\u00e8mes sp\u00e9cifiques. Ce sommet comportera une nouveaut\u00e9, l\u2019ajout d\u2019ateliers de comp\u00e9tences pratiques, et facilitera le partage des bonnes pratiques pour les membres des centres de traitement de l\u2019h\u00e9mophilie (CTH) et les organisations nationales membres (ONM). Bien \u00e9videmment, les participant\u00b7es auront de nombreuses occasions de d\u00e9velopper leur r\u00e9seau.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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La diversit\u00e9, c\u2019est \u00eatre invit\u00e9es aux discussions ; l\u2019inclusion, c\u2019est pouvoir y parler ; l\u2019appartenance, c\u2019est y voir sa voix entendue.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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LIZ FOSSLIEN ET MOLLIE WEST DUFFY, EXPERTES EN D\u00c9VELOPPEMENT ORGANISATIONNEL<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Pour en savoir plus sur le Sommet mondial de la FMH d\u00e9di\u00e9 aux femmes et aux filles atteintes d\u2019un trouble de la coagulation, veuillez contacter Luisa Durante \u00e0 l\u2019adresse\u00a0ldurante@wfh.org<\/a>. Pour vous inscrire \u00e0 l\u2019\u00e9v\u00e9nement,\u00a0cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Cet \u00e9v\u00e9nement est rendu possible par le soutien de Hemophilia of Georgia et de la National Hemophilia Foundation.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le tout premier Sommet mondial de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) d\u00e9di\u00e9 aux femmes et aux filles atteintes d\u2019un trouble de la coagulation a \u00e9t\u00e9 un franc succ\u00e8s, r\u00e9unissant des participant\u00b7es du monde entier pour ouvrir le dialogue sur un sujet majeur, trop longtemps mis de c\u00f4t\u00e9. <\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[189,211,113],"tags":[],"search-category":[85],"class_list":["post-12162","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-evenements","category-femmes-et-filles-atteintes-dun-trouble-de-la-coagulation","category-la-maladie-de-willebrand","search-category-article"],"yoast_head":"\nProchainement : le 2e Sommet mondial d\u00e9di\u00e9 aux femmes et aux filles atteintes d\u2019un trouble de la coagulation | FMH - 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