{"id":12046,"date":"2021-06-28T09:00:00","date_gmt":"2021-06-28T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/le-programme-daide-humanitaire-vient-en-aide-a-trois-garcons-de-trinite-et-tobago\/"},"modified":"2024-04-19T11:24:17","modified_gmt":"2024-04-19T15:24:17","slug":"le-programme-daide-humanitaire-vient-en-aide-a-trois-garcons-de-trinite-et-tobago","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-programme-daide-humanitaire-vient-en-aide-a-trois-garcons-de-trinite-et-tobago\/","title":{"rendered":"Le Programme d\u2019aide humanitaire vient en aide \u00e0 trois gar\u00e7ons de Trinit\u00e9-et-Tobago"},"content":{"rendered":"\t\t
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O\u2019Brian, Joel et Nathan sont tous les trois atteints d\u2019h\u00e9mophilie A s\u00e9v\u00e8re avec inhibiteurs, et vivent \u00e0 Trinit\u00e9-et-Tobago. \u00c2g\u00e9s de 10 \u00e0 13 ans, ils sont en situation de handicap permanent \u00e0 cause du manque d\u2019acc\u00e8s \u00e0 des soins adapt\u00e9s. Heureusement, gr\u00e2ce \u00e0 un don de facteur du\u00a0Programme d\u2019aide humanitaire de la FMH<\/a>, leur qualit\u00e9 de vie s\u2019est grandement am\u00e9lior\u00e9e, et ils ne souffrent aujourd\u2019hui plus de saignements.<\/p>\n

Pour ces trois jeunes gar\u00e7ons, l\u2019h\u00e9mophilie repr\u00e9sentait une difficult\u00e9 quotidienne. Ils manquaient souvent l\u2019\u00e9cole \u00e0 cause de leurs saignements, et leur m\u00e8re Karen a d\u00fb quitter son emploi pour s\u2019occuper d\u2019eux et pouvoir les emmener \u00e0 leurs consultations \u00e0 l\u2019h\u00f4pital. O\u2019Brian et Joel ont fini par d\u00e9velopper une arthropathie, respectivement au genou gauche et au genou droit\u00a0; Nathan a perdu la vue de l\u2019\u0153il droit suite \u00e0 un accident et \u00e0 l\u2019indisponibilit\u00e9 d\u2019agent de contournement.<\/p>\n

Le facteur qui a pu \u00eatre fourni aux trois fr\u00e8res a permis des soins actifs ainsi qu\u2019un traitement prophylactique, et a ainsi presque compl\u00e8tement \u00e9limin\u00e9 les saignements\u00a0: ils peuvent vivre une vie quasi-normale. Ils vont \u00e0 l\u2019\u00e9cole, participent \u00e0 des activit\u00e9s avec leurs camarades et pratiquent m\u00eame des sports, notamment la natation. Karen est aussi tr\u00e8s heureuse de voir ses fils en bonne sant\u00e9 et de pouvoir retourner travailler.<\/p>\n

Le Programme d\u2019aide humanitaire de la FMH a fourni pr\u00e8s de 740\u00a0000 UI de facteur \u00e0 Trinit\u00e9-et-Tobago en 2020. Depuis 2015, plus de 3 millions d\u2019UI ont permis d\u2019aider les patient\u00b7es de ce pays des Cara\u00efbes.<\/p>\n

Pour en savoir plus sur le Programme d\u2019aide humanitaire,\u00a0cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patients un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi Genzyme et Sobi, nos Donateurs visionnaires fondateurs\u00a0; de Roche et Bayer, nos Donateurs visionnaires\u00a0; de Grifols, notre Donateur encadrant, et de nos Donateurs contributeurs CSL Behring et Takeda. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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O\u2019Brian, Joel et Nathan sont tous les trois atteints d\u2019h\u00e9mophilie A s\u00e9v\u00e8re avec inhibiteurs, et vivent \u00e0 Trinit\u00e9-et-Tobago. \u00c2g\u00e9s de 10 \u00e0 13 ans, ils sont en situation de handicap permanent \u00e0 cause du manque d\u2019acc\u00e8s \u00e0 des soins adapt\u00e9s. <\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[184],"tags":[],"search-category":[85],"class_list":["post-12046","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nLe Programme d\u2019aide humanitaire vient en aide \u00e0 trois gar\u00e7ons de Trinit\u00e9-et-Tobago | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-programme-daide-humanitaire-vient-en-aide-a-trois-garcons-de-trinite-et-tobago\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le Programme d\u2019aide humanitaire vient en aide \u00e0 trois gar\u00e7ons de Trinit\u00e9-et-Tobago\" \/>\n<meta property=\"og:description\" content=\"O\u2019Brian, Joel et Nathan sont tous les trois atteints d\u2019h\u00e9mophilie A s\u00e9v\u00e8re avec inhibiteurs, et vivent \u00e0 Trinit\u00e9-et-Tobago. \u00c2g\u00e9s de 10 \u00e0 13 ans, ils sont en situation de handicap permanent \u00e0 cause du manque d\u2019acc\u00e8s \u00e0 des soins adapt\u00e9s.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/le-programme-daide-humanitaire-vient-en-aide-a-trois-garcons-de-trinite-et-tobago\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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