{"id":120262,"date":"2024-08-23T09:00:56","date_gmt":"2024-08-23T13:00:56","guid":{"rendered":"https:\/\/wfh.org\/?p=120262"},"modified":"2025-05-02T12:16:30","modified_gmt":"2025-05-02T16:16:30","slug":"loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie\/","title":{"rendered":"L’outil de prise de d\u00e9cision partag\u00e9e de la FMH f\u00eate sa premi\u00e8re ann\u00e9e d’am\u00e9lioration du traitement de l’h\u00e9mophilie"},"content":{"rendered":"\t\t
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L’outil de prise de d\u00e9cision partag\u00e9e de la FMH<\/a> est un syst\u00e8me interactif d’aide \u00e0 la d\u00e9cision en ligne, con\u00e7u pour aider les malades et leurs soignants qui envisagent de changer de traitement. Les utilisateurs doivent r\u00e9pondre \u00e0 une s\u00e9rie de questions bas\u00e9es sur les valeurs importantes \u00e0 leurs yeux. Ils disposent \u00e9galement d’un contenu \u00e9ducatif fond\u00e9 sur des donn\u00e9es probantes concernant cinq cat\u00e9gories de traitement prophylactique de l’h\u00e9mophilie. Cet outil en constante \u00e9volution est mis \u00e0 jour deux fois par an, ce qui permet aux utilisateurs d’avoir toujours acc\u00e8s aux informations les plus r\u00e9centes.<\/p>\n

D\u00e9but 2024, la FMH a organis\u00e9 une s\u00e9rie de webinaires en trois volets<\/a> sur la prise de d\u00e9cision partag\u00e9e pour l’h\u00e9mophilie. Ces sessions ont port\u00e9 sur l’\u00e9valuation des risques et des avantages des diff\u00e9rentes cat\u00e9gories de traitement et ont mis en \u00e9vidence les avantages de l’utilisation de l’outil de prise de d\u00e9cision partag\u00e9e de la FMH, tant pour les personnes atteintes d\u2019h\u00e9mophilie que pour les professionnels de sant\u00e9. D’autres sessions de formation ont \u00e9galement \u00e9t\u00e9 organis\u00e9es au niveau r\u00e9gional, notamment une formation en personne \u00e0 Bogota, en Colombie, et des sessions lors du Congr\u00e8s mondial 2024 de la FMH, soulignant ainsi la valeur et l’application de l’outil.<\/p>\n

Une \u00e9tude pilote est actuellement en cours de d\u00e9veloppement afin d’\u00e9valuer l’efficacit\u00e9 de l’outil de prise de d\u00e9cision partag\u00e9e de la FMH dans des conditions r\u00e9elles. Cette \u00e9tude vise \u00e0 donner un aper\u00e7u de la fa\u00e7on dont l’outil favorise la prise de d\u00e9cision collaborative entre les principales parties prenantes et de son incidence plus large sur la communaut\u00e9 h\u00e9mophile.<\/p>\n

Actuellement disponible en anglais, allemand, espagnol, fran\u00e7ais, japonais et n\u00e9erlandais, avec des traductions suppl\u00e9mentaires pr\u00e9vues dans les mois qui viennent, l’outil de prise de d\u00e9cision partag\u00e9e de la FMH est destin\u00e9 \u00e0 \u00eatre accessible au plus grand nombre. Du 1er<\/sup>\u00a0ao\u00fbt 2023 au 1er<\/sup> ao\u00fbt 2024, l’outil a attir\u00e9 plus de 8\u00a0500\u00a0visiteurs uniques dans 138\u00a0pays, ce qui t\u00e9moigne de son influence et de sa port\u00e9e croissantes.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Utilisateurs de l\u2019outil de prise de d\u00e9cision partag\u00e9e par pays<\/figcaption>\n\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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Alors que nous c\u00e9l\u00e9brons cette \u00e9tape importante, la FMH invite chacun \u00e0 explorer le potentiel que renferme la prise de d\u00e9cision partag\u00e9e pour am\u00e9liorer le traitement de l’h\u00e9mophilie.<\/p>\n

Pour en savoir plus sur la prise de d\u00e9cision partag\u00e9e pour traiter l’h\u00e9mophilie, rendez-vous sur la plateforme d’apprentissage en ligne de la FMH<\/a>. Pour acc\u00e9der \u00e0 l’outil de prise de d\u00e9cision partag\u00e9e de la FMH, cliquez ici<\/a> pour une version en ligne ou ici<\/a> pour une version PDF.<\/p>\n

La FMH remercie ses entreprises partenaires BioMarin Pharmaceutical Inc, CSL Behring, F. Hoffmann-La Roche, Novo Nordisk, Pfizer, Sanofi et Sobi.\u00a0<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Ressource r\u00e9volutionnaire pour les personnes atteintes d’h\u00e9mophilie A et B et leurs soignants, l’outil de prise de d\u00e9cision partag\u00e9e de la FMH vient de f\u00eater son premier anniversaire. Depuis son lancement le 1er ao\u00fbt 2023, l’outil de prise de d\u00e9cision partag\u00e9e de la FMH a facilit\u00e9 la prise de d\u00e9cision \u00e9clair\u00e9e en fournissant des informations personnalis\u00e9es sur les traitements et en favorisant la collaboration entre les personnes atteintes d’h\u00e9mophilie et leurs \u00e9quipes soignantes. Disponible en plusieurs langues, l’outil continue de se d\u00e9velopper et de s’adapter aux besoins des utilisateurs et aux ressources disponibles.<\/p>\n","protected":false},"author":13,"featured_media":116367,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[177,338],"tags":[],"search-category":[85],"class_list":["post-120262","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actualite-medicale","category-featured-3-fr","search-category-article"],"yoast_head":"\nL'outil de prise de d\u00e9cision partag\u00e9e de la FMH f\u00eate sa premi\u00e8re ann\u00e9e d'am\u00e9lioration du traitement de l'h\u00e9mophilie | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L'outil de prise de d\u00e9cision partag\u00e9e de la FMH f\u00eate sa premi\u00e8re ann\u00e9e d'am\u00e9lioration du traitement de l'h\u00e9mophilie\" \/>\n<meta property=\"og:description\" content=\"Ressource r\u00e9volutionnaire pour les personnes atteintes d'h\u00e9mophilie A et B et leurs soignants, l'outil de prise de d\u00e9cision partag\u00e9e de la FMH vient de f\u00eater son premier anniversaire. 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Disponible en plusieurs langues, l'outil continue de se d\u00e9velopper et de s'adapter aux besoins des utilisateurs et aux ressources disponibles.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-08-23T13:00:56+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-05-02T16:16:30+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/07\/carousel-sdm-tool.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"L’outil de prise de d\u00e9cision partag\u00e9e de la FMH f\u00eate sa premi\u00e8re ann\u00e9e d’am\u00e9lioration du traitement de l’h\u00e9mophilie\",\"datePublished\":\"2024-08-23T13:00:56+00:00\",\"dateModified\":\"2025-05-02T16:16:30+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie\/\"},\"wordCount\":530,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/loutil-de-prise-de-decision-partagee-de-la-fmh-fete-sa-premiere-annee-damelioration-du-traitement-de-lhemophilie\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/07\/carousel-sdm-tool.png\",\"articleSection\":[\"Actualit\u00e9 m\u00e9dicale\",\"Featured 3 - 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