{"id":11915,"date":"2021-10-08T09:00:00","date_gmt":"2021-10-08T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/le-webinaire-de-la-4e-table-ronde-sur-la-therapie-genique-aborde-difficultes-et-opportunites\/"},"modified":"2026-03-19T09:06:10","modified_gmt":"2026-03-19T13:06:10","slug":"le-webinaire-de-la-4e-table-ronde-sur-la-therapie-genique-aborde-difficultes-et-opportunites","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-webinaire-de-la-4e-table-ronde-sur-la-therapie-genique-aborde-difficultes-et-opportunites\/","title":{"rendered":"Le webinaire de la 4e Table ronde sur la th\u00e9rapie g\u00e9nique aborde difficult\u00e9s et opportunit\u00e9s"},"content":{"rendered":"\t\t
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Le troisi\u00e8me et dernier webinaire de la 4e<\/sup> Table ronde de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) sur la th\u00e9rapie g\u00e9nique<\/a>\u00a0a eu lieu le 16 septembre 2021, et a rassembl\u00e9 plusieurs expert\u00b7es pour une discussion sur les difficult\u00e9s et les opportunit\u00e9s que pr\u00e9sente la th\u00e9rapie g\u00e9nique.<\/p>\n

C\u2019est Radoslaw Kaczmarek, pr\u00e9sident du Comit\u00e9 sur la s\u00e9curit\u00e9, l\u2019approvisionnement et l\u2019acc\u00e8s aux m\u00e9dicaments, qui a donn\u00e9 la premi\u00e8re pr\u00e9sentation du webinaire, un aper\u00e7u des derni\u00e8res nouvelles sur les essais cliniques en mati\u00e8re de th\u00e9rapie g\u00e9nique. Cette pr\u00e9sentation a \u00e9t\u00e9 suivie d\u2019une discussion du Dr Leonard Valentino sur la fa\u00e7on d\u2019aider les personnes atteintes d\u2019h\u00e9mophilie \u00e0 s\u2019\u00e9panouir gr\u00e2ce \u00e0 une approche de prise de d\u00e9cision commune dans la prise en charge de la maladie. Declan Noone, pr\u00e9sident du European Haemophilia Consortium (EHC), a quant \u00e0 lui propos\u00e9 une mise \u00e0 jour sur le d\u00e9veloppement de l\u2019outil de la FMH pour la prise de d\u00e9cision commune. Des petits groupes de discussion ont ensuite permis aux participant\u00b7e\u00b7s de donner leurs impressions expertes sur les d\u00e9tails de cet outil, chaque groupe abordant des aspects diff\u00e9rents.<\/p>\n

La deuxi\u00e8me session de ce webinaire s\u2019est concentr\u00e9e sur le paiement et le remboursement de la th\u00e9rapie g\u00e9nique dans l\u2019h\u00e9mophilie. Le Dr Glenn Pierce (PhD), vice-pr\u00e9sident de la FMH en charge des affaires m\u00e9dicales, a parl\u00e9 du co\u00fbt de la th\u00e9rapie g\u00e9nique et de plusieurs autres points qui vont au-del\u00e0 du simple financement. Le Dr Edmund Pezalla et Anja Schiel (PhD) ont ensuite donn\u00e9 des perspectives \u00e9tatsuniennes et europ\u00e9ennes sur les difficult\u00e9s li\u00e9es au d\u00e9veloppement de nouvelles m\u00e9thodes de financement de la th\u00e9rapie g\u00e9nique.<\/p>\n

Pour en savoir plus sur la s\u00e9rie de webinaires de la FMH sur la th\u00e9rapie g\u00e9nique,\u00a0cliquez ici<\/a>.<\/p>\n

Pour conna\u00eetre les derni\u00e8res avanc\u00e9es des essais cliniques en mati\u00e8re de th\u00e9rapie g\u00e9nique, consultez la vid\u00e9o ci-dessous \u2013 disponible en anglais et en plusieurs versions doubl\u00e9es (fran\u00e7ais, espagnol, arabe et russe) \u2013 dans laquelle les Dr Glenn Pierce et Steve Pipe parlent des informations sur la th\u00e9rapie g\u00e9nique mises en avant au Congr\u00e8s virtuel de l\u2019ISTH.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Anglais<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Russe<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Arabe<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le troisi\u00e8me et dernier webinaire de la 4eTable ronde de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) sur la th\u00e9rapie g\u00e9nique a eu lieu le 16 septembre 2021, et a rassembl\u00e9 plusieurs expert\u00b7es pour une discussion sur les difficult\u00e9s et les opportunit\u00e9s que pr\u00e9sente la th\u00e9rapie g\u00e9nique.<\/p>\n","protected":false},"author":3,"featured_media":1673,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[49,169,122,159],"tags":[],"search-category":[85],"class_list":["post-11915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-education","category-events-2","category-gene-therapy","category-gtrt","search-category-article"],"yoast_head":"\nLe webinaire de la 4e Table ronde sur la th\u00e9rapie g\u00e9nique aborde difficult\u00e9s et opportunit\u00e9s | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-webinaire-de-la-4e-table-ronde-sur-la-therapie-genique-aborde-difficultes-et-opportunites\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le webinaire de la 4e Table ronde sur la th\u00e9rapie g\u00e9nique aborde difficult\u00e9s et opportunit\u00e9s\" \/>\n<meta property=\"og:description\" content=\"Le troisi\u00e8me et dernier webinaire de la 4eTable ronde de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) sur la th\u00e9rapie g\u00e9nique a eu lieu le 16 septembre 2021, et a rassembl\u00e9 plusieurs expert\u00b7es pour une discussion sur les difficult\u00e9s et les opportunit\u00e9s que pr\u00e9sente la th\u00e9rapie g\u00e9nique.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/le-webinaire-de-la-4e-table-ronde-sur-la-therapie-genique-aborde-difficultes-et-opportunites\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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