{"id":117286,"date":"2024-08-05T11:05:18","date_gmt":"2024-08-05T15:05:18","guid":{"rendered":"https:\/\/wfh.org\/?p=117286"},"modified":"2024-08-13T09:56:28","modified_gmt":"2024-08-13T13:56:28","slug":"la-fmh-en-ouganda-lhistoire-de-jasper","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/la-fmh-en-ouganda-lhistoire-de-jasper\/","title":{"rendered":"La FMH en Ouganda : l\u2019histoire de Jasper"},"content":{"rendered":"\t\t
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Ces programmes ont eu un effet significatif sur la communaut\u00e9 ougandaise des troubles de la coagulation. En juin, nous avions publi\u00e9 l\u2019histoire d\u2019un patient qui montrait la diff\u00e9rence que les dons du Programme d\u2019aide humanitaire de la FMH<\/a> ont fait dans sa vie (cliquez ici<\/a> pour la lire). Aujourd\u2019hui, nous vous proposons de lire Nakato Elizabeth, la m\u00e8re d\u2019un gar\u00e7on atteint d\u2019h\u00e9mophilie A s\u00e9v\u00e8re. Sa lettre a \u00e9t\u00e9 l\u00e9g\u00e8rement modifi\u00e9e pour plus de clart\u00e9.<\/p>\n

Madame, Monsieur,<\/p>\n

Je m\u2019appelle Nakato Elizabeth et j\u2019ai deux fils. Mon cadet, Jasper Ethal Kyambadde, \u00e9tait tr\u00e8s robuste \u00e0 la naissance et pesait 4,5 kg. \u00c0 l\u2019\u00e2ge d\u2019un mois, il a \u00e9t\u00e9 circoncis et a saign\u00e9 pendant pr\u00e8s d\u2019un mois. Il a perdu 3 kg. Heureusement, nous avons pu lui donner des m\u00e9dicaments et il s\u2019est r\u00e9tabli au bout d\u2019un mois et demi.<\/p>\n

Lorsqu\u2019il avait un an, Jasper est tomb\u00e9 et s\u2019est mordu la langue, ce qui a provoqu\u00e9 un saignement pendant trois semaines. Il a \u00e9t\u00e9 emmen\u00e9 \u00e0 l\u2019h\u00f4pital m\u00e9dical populaire de Gayaza pour y \u00eatre soign\u00e9. De l\u00e0, nous avons \u00e9t\u00e9 orient\u00e9\u00b7es vers l\u2019h\u00f4pital g\u00e9n\u00e9ral de Kawempe. Puis, sur les conseils de nos ami\u00b7es, nous sommes all\u00e9\u00b7es \u00e0 la clinique pour l\u2019h\u00e9mophilie de l\u2019h\u00f4pital Mulago, \u00e0 Kampala. Des \u00e9chantillons de sang ont \u00e9t\u00e9 pr\u00e9lev\u00e9s et on a d\u00e9tect\u00e9 \u00e0 Jasper une h\u00e9mophilie A s\u00e9v\u00e8re.<\/p>\n

\u00c0 l\u2019\u00e9cole, Jasper ne pouvait pas passer ses examens \u00e0 cause de gonflements qui se d\u00e9veloppaient autour de ses articulations et en d\u2019autres endroits lorsqu\u2019il tombait ou se blessait. Ses genoux ont \u00e9t\u00e9 fortement touch\u00e9s, et il est presque devenu boiteux. Heureusement, les m\u00e9decins de l\u2019h\u00f4pital Mulago avaient inscrit Jasper pour qu\u2019il puisse recevoir des dons de produits th\u00e9rapeutiques fournis par la FMH.<\/p>\n

Depuis, la sant\u00e9 de Jasper s\u2019est beaucoup am\u00e9lior\u00e9e. Il n\u2019a plus de gonflements s\u00e9v\u00e8res aux articulations, ne pr\u00e9sente plus de saignement sous-cutan\u00e9 et peut m\u00eame passer ses examens sans probl\u00e8me et jouer comme les autres enfants. Il devient fort et il est en bonne sant\u00e9.<\/p>\n

Je tiens \u00e0 remercier la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie de fournir \u00e0 notre pays des dons de produits th\u00e9rapeutiques. Vous avez offert \u00e0 mon fils un nouvel espoir.<\/p>\n

Bien \u00e0 vous,
\nNakato Elizabeth<\/p>\n

Depuis 2015, le Programme d\u2019aide humanitaire de la FMH a donn\u00e9 plus de 17,4 millions d\u2019UI de facteur et plus de 194\u00a0000 mg de produits non substitutifs \u00e0 l\u2019Ouganda. Le pays a re\u00e7u pr\u00e8s de 3,4 millions d\u2019UI de facteur et 60\u00a0000\u00a0mg de produits non substitutifs rien que l\u2019an dernier. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda et la Japan Blood Product Organization, nos Donateurs contributeurs. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n<\/div>\n<\/div>\n

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La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) collabore et travaille avec des organisations nationales membres (ONM) et d\u2019autres parties prenantes au niveau national, pour aider les pays dans leur parcours vers les soins durables. En Ouganda, la FMH agit par le biais de plusieurs programmes, notamment le Programme d\u2019aide humanitaire, le Programme de jumelage des associations de patient\u00b7es et une subvention de la FMH pour la MW. <\/p>\n","protected":false},"author":13,"featured_media":117274,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[336,8,184],"tags":[],"search-category":[85],"class_list":["post-117286","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-2-fr","category-non-classifiee","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nLa FMH en Ouganda : l\u2019histoire de Jasper | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/la-fmh-en-ouganda-lhistoire-de-jasper\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"La FMH en Ouganda : l\u2019histoire de Jasper\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) collabore et travaille avec des organisations nationales membres (ONM) et d\u2019autres parties prenantes au niveau national, pour aider les pays dans leur parcours vers les soins durables. En Ouganda, la FMH agit par le biais de plusieurs programmes, notamment le Programme d\u2019aide humanitaire, le Programme de jumelage des associations de patient\u00b7es et une subvention de la FMH pour la MW.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/la-fmh-en-ouganda-lhistoire-de-jasper\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-08-05T15:05:18+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-08-13T13:56:28+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/07\/Jasper-Ethal-Kyambadde-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-fmh-en-ouganda-lhistoire-de-jasper\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-fmh-en-ouganda-lhistoire-de-jasper\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"La FMH en Ouganda : l\u2019histoire de Jasper\",\"datePublished\":\"2024-08-05T15:05:18+00:00\",\"dateModified\":\"2024-08-13T13:56:28+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-fmh-en-ouganda-lhistoire-de-jasper\/\"},\"wordCount\":647,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/la-fmh-en-ouganda-lhistoire-de-jasper\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/07\/Jasper-Ethal-Kyambadde-header.jpg\",\"articleSection\":[\"Featured 2 - 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