{"id":117089,"date":"2024-07-15T13:32:28","date_gmt":"2024-07-15T17:32:28","guid":{"rendered":"https:\/\/wfh.org\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/"},"modified":"2024-07-29T13:49:26","modified_gmt":"2024-07-29T17:49:26","slug":"hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/","title":{"rendered":"Hommage \u00e0 la nouvelle g\u00e9n\u00e9ration de b\u00e9n\u00e9ficiaires des bourses SSMF"},"content":{"rendered":"\t\t
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Le programme de bourses du Fonds comm\u00e9moratif Susan Skinner (SSMF)<\/a>, nomm\u00e9 en m\u00e9moire de Susan Skinner, fervente militante de la communaut\u00e9 des troubles de la coagulation, vise \u00e0 renforcer le leadership, l\u2019engagement actif et l\u2019esprit de communaut\u00e9 pour les personnes appartenant \u00e0 notre communaut\u00e9 et s\u2019identifiant comme femmes, et \u00e2g\u00e9e de 18 \u00e0 60 ans. Pour les femmes et les filles, dont les difficult\u00e9s ne sont souvent pas entendues, le SSMF cr\u00e9e une passerelle entre les g\u00e9n\u00e9rations, qui permet aux laur\u00e9ates du monde entier d\u2019apprendre les unes des autres et de s\u2019encourager mutuellement.<\/p>\n

Tatiana Bathfield est le parfait exemple de l\u2019impact transformateur des bourses du SSMF. En tant que laur\u00e9ate 2024 et membre fondatrice de l\u2019organisation nationale membre (ONM) de Maurice, la Haemophilia Association of Mauritius, Tatiana est une militante in\u00e9puisable en faveur des personnes atteintes d\u2019un trouble de la coagulation dans son pays. Son exp\u00e9rience personnelle en tant que m\u00e8re d\u2019une fille atteinte d\u2019un d\u00e9ficit s\u00e9v\u00e8re en facteur VII l\u2019a pouss\u00e9e \u00e0 s\u2019engager pour l\u2019am\u00e9lioration des soins et du soutien aux personnes atteintes d\u2019un trouble de la coagulation. Depuis qu\u2019elle a cofond\u00e9 son association en 2009, elle y a jou\u00e9 un r\u00f4le essentiel, notamment en si\u00e9geant en tant que secr\u00e9taire au sein de son conseil de direction. Apr\u00e8s sa participation au Congr\u00e8s mondial 2024 de la FMH \u00e0 Madrid, en tant que laur\u00e9ate d\u2019une bourse du SSMH, Tatiana Bathfield a \u00e9t\u00e9 coopt\u00e9e<\/a> au sein du conseil d\u2019administration de la FMH en tant que membre profane. Ce poste lui permettra de continuer \u00e0 d\u00e9fendre la cause des femmes et des filles atteintes d\u2019un trouble de la coagulation.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"Tatiana\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Eric Stolte, pr\u00e9sident de la FMH \u00c9tats-Unis\u00a0; Pamela Wilton, pr\u00e9sidente du comit\u00e9 consultatif des bourses du SSMF\u00a0; Tatiana Bathfield, laur\u00e9ate SSMF 2024\u00a0; Mark W. Skinner, membre du conseil d\u2019administration de la FMH \u00c9tats-Unis<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t<\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Je suis ravie d\u2019int\u00e9grer ce parcours, et \u00e0 la fois soulag\u00e9e que Yannick [ma mentor] me guide dans ce processus. J\u2019ai h\u00e2te d\u2019apprendre de ses exp\u00e9riences et de recevoir ses conseils dans tous les aspects de ce programme de mentorat. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014\tTatiana Bathfield, laur\u00e9ate 2024 d\u2019une bourse du SSMF, Maurice (\u00e0 propos de sa mentor, Yannick Coll\u00e9, laur\u00e9ate SSMF 2022) <\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Yannick Coll\u00e9, qui avait re\u00e7u une bourse du SSMF en 2022 et sert de mentor \u00e0 Tatiana, a r\u00e9cemment \u00e9t\u00e9 \u00e9lue pr\u00e9sidente de l\u2019Association fran\u00e7aise des h\u00e9mophiles (AFH). Cette belle r\u00e9ussite est un moment historique pour la communaut\u00e9, car Yannick devient la premi\u00e8re femme atteinte d\u2019h\u00e9mophilie l\u00e9g\u00e8re \u00e0 assumer ce r\u00f4le au sein de l\u2019AFH.<\/p>\n

Alice Ho, une autre laur\u00e9ate 2024, vit en Malaisie et a fond\u00e9 la section Saba de l\u2019East Malaysia Hemophilia Foundation en 2014, apr\u00e8s que son fils a re\u00e7u un diagnostic d\u2019h\u00e9mophilie. Elle se donne pour objectifs de combler le manque de sensibilisation \u00e0 l\u2019h\u00e9mophilie dans le pays et de d\u00e9fendre de meilleurs soins ainsi qu\u2019un meilleur acc\u00e8s \u00e0 des sp\u00e9cialistes, pour que les personnes atteintes d\u2019h\u00e9mophilie re\u00e7oivent des soins adapt\u00e9s. Ces dix derni\u00e8res ann\u00e9es, elle a travaill\u00e9 sans rel\u00e2che \u00e0 faire de la p\u00e9dagogie et \u00e0 porter la voix des personnes atteintes d\u2019un trouble de la coagulation en Malaisie.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"Alice\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Eric Stolte, pr\u00e9sident de la FMH \u00c9tats-Unis\u00a0; Pamela Wilton, pr\u00e9sidente du comit\u00e9 consultatif des bourses du SSMF\u00a0; Alice Ho, laur\u00e9ate SSMF 2024\u00a0; Mark W. Skinner, membre du conseil d\u2019administration de la FMH \u00c9tats-Unis<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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\n\t\t\t<\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t
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Je suis tr\u00e8s reconnaissante au Fonds Susan Skinner de m\u2019avoir choisie comme laur\u00e9ate et de m\u2019offrir cette opportunit\u00e9 formidable de rencontrer des personnes du monde entier pour \u00e9changer nos opinions et nos connaissances\u2026 Je remercie vivement le SSMF de me donner cette chance. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014\tAlice Ho, laur\u00e9ate SSMF 2024, Malaisie<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Gr\u00e2ce aux bourses du SSMF, les laur\u00e9ates b\u00e9n\u00e9ficient de belles opportunit\u00e9s de s\u2019\u00e9panouir \u00e0 travers le mentorat, le partage de connaissances et l\u2019engagement mondial, notamment en participant au prochain Congr\u00e8s mondial de la FMH, \u00e0 la Formation mondiale des organisations nationales membres et \u00e0 l\u2019Assembl\u00e9e g\u00e9n\u00e9rale annuelle de la FMH.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"Laur\u00e9ats\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Laur\u00e9ates du programme de bourses SSMF 2024 et direction<\/h6>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Dans le cadre de leur pr\u00e9paration, les laur\u00e9ates 2024 sont mises en bin\u00f4mes avec des laur\u00e9ates pr\u00e9c\u00e9dentes sous forme de mentorat, et b\u00e9n\u00e9ficient de conversations d\u2019orientation et d\u2019un webinaire. En 2024, les pays suivants sont repr\u00e9sent\u00e9s au sein de l\u2019initiative de mentorat\u00a0: \u00c9tats-Unis, France, Irlande, Jordanie, Kirghizistan, Malaisie, Malawi, Maurice, Nouvelle-Z\u00e9lande, Pakistan, Royaume-Uni, S\u00e9n\u00e9gal et Uruguay. Les huit laur\u00e9ates profitent mutuellement de leurs perspectives et exp\u00e9riences uniques et vari\u00e9es, ce qui les aidera \u00e0 mieux soutenir la communaut\u00e9 des troubles h\u00e9r\u00e9ditaires de la coagulation dans les ann\u00e9es \u00e0 venir.<\/p>\n

Rejoignez-nous pour faire une diff\u00e9rence durable en aidant la prochaine g\u00e9n\u00e9ration de laur\u00e9ates du SSMF\u00a0! Apportez votre contribution au Fonds comm\u00e9moratif Susan Skinner<\/a> d\u00e8s aujourd\u2019hui et aidez-nous \u00e0 donner \u00e0 ces dirigeantes les outils et les conseils dont elles ont besoin.<\/p>\n

Pour en savoir plus sur le programme de bourses du Fonds comm\u00e9moratif Susan Skinner (SSMF), cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Lors du Congr\u00e8s mondial 2024 d la FMH \u00e0 Madrid (Espagne), la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a remis plusieurs bourses du Fonds comm\u00e9moratif Susan Skinner (SSMF) \u00e0 des personnes incarnant les valeurs de ce programme et qui ont le potentiel de faire la diff\u00e9rence dans notre communaut\u00e9. Ces b\u00e9n\u00e9ficiaires auront d\u00e9sormais les outils n\u00e9cessaires pour devenir de meilleures dirigeantes et militantes au sein de la communaut\u00e9 mondiale des troubles de la coagulation.<\/p>\n","protected":false},"author":13,"featured_media":115911,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,180],"tags":[],"search-category":[85],"class_list":["post-117089","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-philanthropie","search-category-article"],"yoast_head":"\nHommage \u00e0 la nouvelle g\u00e9n\u00e9ration de b\u00e9n\u00e9ficiaires des bourses SSMF | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Hommage \u00e0 la nouvelle g\u00e9n\u00e9ration de b\u00e9n\u00e9ficiaires des bourses SSMF\" \/>\n<meta property=\"og:description\" content=\"Lors du Congr\u00e8s mondial 2024 d la FMH \u00e0 Madrid (Espagne), la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a remis plusieurs bourses du Fonds comm\u00e9moratif Susan Skinner (SSMF) \u00e0 des personnes incarnant les valeurs de ce programme et qui ont le potentiel de faire la diff\u00e9rence dans notre communaut\u00e9. Ces b\u00e9n\u00e9ficiaires auront d\u00e9sormais les outils n\u00e9cessaires pour devenir de meilleures dirigeantes et militantes au sein de la communaut\u00e9 mondiale des troubles de la coagulation.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-07-15T17:32:28+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-07-29T17:49:26+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/07\/SSMF-Stewardship-Piece-header2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"Hommage \u00e0 la nouvelle g\u00e9n\u00e9ration de b\u00e9n\u00e9ficiaires des bourses SSMF\",\"datePublished\":\"2024-07-15T17:32:28+00:00\",\"dateModified\":\"2024-07-29T17:49:26+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/\"},\"wordCount\":921,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/hommage-a-la-nouvelle-generation-de-beneficiaires-des-bourses-ssmf\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/07\/SSMF-Stewardship-Piece-header2.jpg\",\"articleSection\":[\"Featured 3 - 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