{"id":11682,"date":"2021-11-04T09:00:00","date_gmt":"2021-11-04T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/le-rapport-du-sondage-mondial-annuel-2020-est-disponible\/"},"modified":"2024-04-18T08:58:20","modified_gmt":"2024-04-18T12:58:20","slug":"le-rapport-du-sondage-mondial-annuel-2020-est-disponible","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-rapport-du-sondage-mondial-annuel-2020-est-disponible\/","title":{"rendered":"Le rapport du Sondage mondial annuel 2020 est disponible"},"content":{"rendered":"\t\t
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Le Rapport du Sondage mondial annuel 2020 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est d\u00e9sormais\u00a0disponible en ligne<\/a>. Il contient des donn\u00e9es d\u00e9mographiques et li\u00e9es au traitement des personnes atteintes d\u2019h\u00e9mophilie, de la maladie de Willebrand, d\u2019autres d\u00e9ficiences rares en facteurs et de troubles plaquettaires h\u00e9r\u00e9ditaires.<\/p>\n

En 2020, un total de 120 organisations nationales membres (ONM) ont contribu\u00e9 \u00e0 ce rapport, et ce malgr\u00e9 les difficult\u00e9s persistantes dues \u00e0 la COVID-19. Cette ann\u00e9e, on compte parmi les nouveaux r\u00e9pondants l\u2019Angola et Djibouti, tandis que d\u2019autres ONM comme celles de l\u2019Espagne, de Malte et du P\u00e9rou ont soumis des donn\u00e9es pour la premi\u00e8re fois depuis de nombreuses ann\u00e9es.<\/p>\n

Cette ann\u00e9e, le rapport est divis\u00e9 en deux sections. La premi\u00e8re propose un historique des donn\u00e9es mondiales montrant l\u2019augmentation de l\u2019identification et du signalement des patient\u00b7es au fil du temps. L\u2019autre illustre uniquement les donn\u00e9es de 2020. Au niveau mondial, toutes ann\u00e9es confondues, 393 658 personnes atteintes d\u2019un trouble de la coagulation ont \u00e9t\u00e9 identifi\u00e9es et signal\u00e9es, dont 241\u00a0535 personnes atteintes d\u2019h\u00e9mophilie, 87\u00a0729 de la maladie de Willebrand et 64 394 d\u2019autres troubles de la coagulation.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Le Rapport 2020 montre que l\u2019\u00e9cart dans l\u2019\u00e9galit\u00e9 de traitement reste un sujet de pr\u00e9occupation\u00a0: la moyenne et la m\u00e9diane de l\u2019utilisation globale de facteur par patient\u00b7e sont beaucoup plus \u00e9lev\u00e9es dans les pays \u00e0 hauts revenus, tandis qu\u2019elles se situent sous la barre du minimum recommand\u00e9 de 1 UI par patient\u00b7e dans les pays \u00e0 revenu moyen ou faible.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Cette ann\u00e9e, le rapport comprend aussi de nouveaux tableaux avec les nombres de patient\u00b7es trait\u00e9\u00b7es par FVIIIa et FEIBA, ainsi que par des produits pour la prise en charge de la MW. Ces nouvelles informations permettent de brosser un portrait plus complet des capacit\u00e9s globales de traitement de chaque pays.<\/p>\n

Le Sondage mondial annuel continue de s\u2019am\u00e9liorer et reste un outil efficace de surveillance pour la communaut\u00e9 des troubles de la coagulation. L\u2019utilisation des donn\u00e9es du Sondage permet de meilleurs travaux de recherche et d\u2019actions de plaidoyer pour l\u2019am\u00e9lioration des soins de l\u2019h\u00e9mophilie. La FMH tient \u00e0 remercier toutes les ONM pour leur participation et leur soutien loyal dans ses efforts pour collecter des donn\u00e9es.<\/p>\n

Pour consulter le Sondage mondial annuel 2020,\u00a0cliquez ici<\/a>. Des tableaux et graphiques suppl\u00e9mentaires sont\u00a0disponibles en ligne ici<\/a>\u00a0pour de plus amples informations sur les troubles de la coagulation. Pour en savoir plus sur le Sondage mondial annuel, veuillez contacter\u00a0globalsurvey@wfh.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le Rapport du Sondage mondial annuel 2020 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est d\u00e9sormais disponible en ligne. Il contient des donn\u00e9es d\u00e9mographiques et li\u00e9es au traitement des personnes atteintes d\u2019h\u00e9mophilie, de la maladie de Willebrand, d\u2019autres d\u00e9ficiences rares en facteurs et de troubles plaquettaires h\u00e9r\u00e9ditaires.<\/p>\n","protected":false},"author":3,"featured_media":1369,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[205,363],"tags":[],"search-category":[85],"class_list":["post-11682","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-recherche-et-collecte-de-donnees","category-sondage-mondial-annuel-sma","search-category-article"],"yoast_head":"\nLe rapport du Sondage mondial annuel 2020 est disponible | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-rapport-du-sondage-mondial-annuel-2020-est-disponible\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le rapport du Sondage mondial annuel 2020 est disponible\" \/>\n<meta property=\"og:description\" content=\"Le Rapport du Sondage mondial annuel 2020 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) est d\u00e9sormais disponible en ligne. 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