{"id":1162,"date":"2021-05-12T09:00:00","date_gmt":"2021-05-12T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/journee-mondiale-de-lhemophilie-2021-une-celebration-internationale\/"},"modified":"2026-03-19T09:01:56","modified_gmt":"2026-03-19T13:01:56","slug":"journee-mondiale-de-lhemophilie-2021-une-celebration-internationale","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2021-une-celebration-internationale\/","title":{"rendered":"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 : une c\u00e9l\u00e9bration internationale"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"1162\" class=\"elementor elementor-1162 elementor-841\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-562ef87 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"562ef87\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3940fa1\" data-id=\"3940fa1\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3f3d0aa elementor-widget elementor-widget-video\" data-id=\"3f3d0aa\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/mFXVs91wk7k&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-814cb50 elementor-widget elementor-widget-text-editor\" data-id=\"814cb50\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">Le 17 avril dernier se tenait la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, et malgr\u00e9 les nombreuses difficult\u00e9s pos\u00e9es par la pand\u00e9mie de COVID-19, la communaut\u00e9 des troubles de la coagulation a une fois de plus montr\u00e9 toute sa r\u00e9silience en se rassemblant en ligne autour du th\u00e8me \u00ab\u00a0S\u2019adapter au changement\u00a0: perdurer les soins dans un nouveau monde\u00a0\u00bb. Des monuments du monde entier ont particip\u00e9 \u00e0 cette occasion \u00e0 la campagne \u00c9clairez tout en rouge. Des \u00e9v\u00e9nements virtuels ont \u00e9t\u00e9 organis\u00e9s par diff\u00e9rents groupes dans le monde entier. Des centaines d\u2019histoires ont \u00e9t\u00e9 partag\u00e9es sur le site de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, et des milliers de personnes les ont lues. En r\u00e9sum\u00e9, la communaut\u00e9 mondiale des troubles de la coagulation s\u2019est une fois de plus r\u00e9unie, dans un \u00e9lan de solidarit\u00e9 tr\u00e8s \u00e9mouvant.<\/p>\n<p class=\"\">\u00ab\u00a0Rien de tout cela n\u2019aurait \u00e9t\u00e9 possible sans les formidables campagnes de sensibilisation, les \u00e9v\u00e9nements et les messages de nos organisations nationales membres (ONMs), des organisations de l\u2019h\u00e9mophilie et de nos partenaires industriels\u00a0\u00bb, d\u00e9clare Cesar Garrido, pr\u00e9sident de la FMH. \u00ab\u00a0Au nom de toute l\u2019\u00e9quipe de la FMH, merci d\u2019avoir fait de cette Journ\u00e9e mondiale de l\u2019h\u00e9mophilie un \u00e9v\u00e9nement tr\u00e8s sp\u00e9cial.\u00a0\u00bb Pour regarder le message de remerciement que Cesar Garrido a adress\u00e9 \u00e0 la communaut\u00e9, cliquez sur la vignette YouTube ci-dessus.<\/p>\n<p class=\"\">Le 17 avril, publications et commentaires se sont succ\u00e9d\u00e9 sur les pages\u00a0<a href=\"https:\/\/www.facebook.com\/wfhemophilia\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook<\/a>\u00a0et\u00a0<a href=\"https:\/\/www.linkedin.com\/company\/world-federation-of-hemophilia\/?viewAsMember=true\" target=\"_blank\" rel=\"noopener noreferrer\">LinkedIn<\/a>\u00a0de la FMH ainsi que sur son fil\u00a0<a href=\"https:\/\/twitter.com\/wfhemophilia?lang=en\" target=\"_blank\" rel=\"noopener noreferrer\">Twitter<\/a>. Notre <a href=\"https:\/\/wfh.org\/fr\/journee-mondiale-de-lhemophilie\/\" target=\"_blank\" rel=\"noopener\">site<\/a> d\u00e9di\u00e9 \u00e0 la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie a aussi accueilli des centaines d\u2019histoires et de commentaires \u2013 8\u00a0000 personnes ont lu ces histoires et ont \u00e9chang\u00e9 avec la communaut\u00e9.<\/p>\n<p class=\"\">Plus de 100 monuments du monde entier ont \u00e9t\u00e9 \u00e9clair\u00e9s en rouge, un record\u00a0! De nombreuses personnes ont pris des photos de ces monuments\u00a0: nous vous en proposons une s\u00e9lection ci-dessous et vous pouvez consulter toute la collection\u00a0<a href=\"https:\/\/drive.google.com\/drive\/folders\/1Q-AyDMv4OKWbThoviCjoNTFGwC1qgfq4?usp=sharing\" target=\"_blank\" rel=\"noopener noreferrer\">en cliquant ici.<\/a>\u00a0Vous avez pris vous-m\u00eame une photo d\u2018un monument \u00e9clair\u00e9 en rouge\u00a0? N\u2019h\u00e9sitez pas \u00e0 l\u2019ajouter \u00e0 la collection\u00a0<a href=\"https:\/\/drive.google.com\/drive\/folders\/1Q-AyDMv4OKWbThoviCjoNTFGwC1qgfq4?usp=sharing\">ici<\/a>.<\/p>\n<p class=\"\">La FMH a organis\u00e9 sa toute premi\u00e8re collecte de fonds li\u00e9e \u00e0 la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie. Cela a permis \u00e0 notre grande famille de se mobiliser pour cette journ\u00e9e essentielle et de soutenir nos efforts pour faire advenir notre vision du Traitement pour tous. Les fonds r\u00e9colt\u00e9s nous aideront \u00e0 proposer des formations et des conseils pour soutenir les actions de plaidoyer, et \u00e0 disposer de la flexibilit\u00e9 n\u00e9cessaire pour r\u00e9pondre le plus rapidement possible aux besoins en constante \u00e9volution de la communaut\u00e9. Il n\u2019est pas trop tard pour contribuer \u00e0 cette campagne de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie\u00a0: vous pouvez encore faire un don\u00a0<a href=\"https:\/\/give.wfh.org\/fr\/\" target=\"_blank\" rel=\"noopener noreferrer\">ici<\/a>.<\/p>\n<p class=\"\">Le microsite d\u00e9di\u00e9 \u00e0 la Journ\u00e9e \u2014\u00a0<a href=\"https:\/\/whdstories.wfh.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">worldhemophiliaday.org<\/a>\u00a0\u2014 est toujours en ligne. Vous pouvez y lire des histoires et y regarder des vid\u00e9os, \u00e9crites et r\u00e9alis\u00e9es par des membres de notre communaut\u00e9, qui vous inspireront et vous encourageront \u2013 il vous suffit de\u00a0<a href=\"https:\/\/whdstories.wfh.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">cliquer ici<\/a>.<\/p>\n<p class=\"\">La FMH tient \u00e0 remercier les sponsors de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 pour leur soutien\u00a0: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Precision Biologic, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda, uniQure.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-826f1b8 gallery-spacing-custom elementor-widget elementor-widget-image-gallery\" data-id=\"826f1b8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image-gallery.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-image-gallery\">\n\t\t\t<div id='gallery-1' class='gallery galleryid-1162 gallery-columns-6 gallery-size-thumbnail'><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"_PP39011\" 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size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"Australia4\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6ODc5LCJ1cmwiOiJodHRwczpcL1wvd2ZoLm9yZ1wvd3AtY29udGVudFwvdXBsb2Fkc1wvMjAyMVwvMTFcL0F1c3RyYWxpYTQtc2NhbGVkLmpwZyIsInNsaWRlc2hvdyI6IjgyNmYxYjgifQ%3D%3D\" href='https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Australia4-scaled.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"108\" height=\"108\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Australia4-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"Aytogar\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6ODgyLCJ1cmwiOiJodHRwczpcL1wvd2ZoLm9yZ1wvd3AtY29udGVudFwvdXBsb2Fkc1wvMjAyMVwvMTFcL0F5dG9nYXIuanBlZyIsInNsaWRlc2hvdyI6IjgyNmYxYjgifQ%3D%3D\" href='https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Aytogar.jpeg'><img loading=\"lazy\" decoding=\"async\" width=\"108\" height=\"108\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Aytogar-150x150.jpeg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"Ayuntamiento de Jerez, City Hall\" 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href='https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Iran_Tehran1.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"108\" height=\"108\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Iran_Tehran1-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"iran_Tehran2\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6OTYxLCJ1cmwiOiJodHRwczpcL1wvd2ZoLm9yZ1wvd3AtY29udGVudFwvdXBsb2Fkc1wvMjAyMVwvMTFcL2lyYW5fVGVocmFuMi5qcGciLCJzbGlkZXNob3ciOiI4MjZmMWI4In0%3D\" href='https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/iran_Tehran2.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"108\" height=\"108\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/iran_Tehran2-150x150.jpg\" 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src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Newtownabbey-Mossley-Mill-150x150.jpeg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon portrait'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"Niagara Falls 1\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6OTc5LCJ1cmwiOiJodHRwczpcL1wvd2ZoLm9yZ1wvd3AtY29udGVudFwvdXBsb2Fkc1wvMjAyMVwvMTFcL05pYWdhcmEtRmFsbHMtMS1zY2FsZWQuanBnIiwic2xpZGVzaG93IjoiODI2ZjFiOCJ9\" href='https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Niagara-Falls-1-scaled.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"108\" height=\"108\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Niagara-Falls-1-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure 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communaut\u00e9 des troubles de la coagulation a une fois de plus montr\u00e9 toute sa r\u00e9silience en se rassemblant en ligne autour du th\u00e8me \u00ab S\u2019adapter au changement : perdurer les soins dans un nouveau monde \u00bb. <\/p>\n","protected":false},"author":3,"featured_media":848,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[169,150],"tags":[],"search-category":[85],"class_list":["post-1162","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events-2","category-world-hemophilia-day","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 : une c\u00e9l\u00e9bration internationale | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2021-une-celebration-internationale\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 : une c\u00e9l\u00e9bration internationale\" \/>\n<meta property=\"og:description\" content=\"Le 17 avril dernier se tenait la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, et malgr\u00e9 les nombreuses difficult\u00e9s pos\u00e9es par la pand\u00e9mie de COVID-19, la communaut\u00e9 des troubles de la coagulation a une fois de plus montr\u00e9 toute sa r\u00e9silience en se rassemblant en ligne autour du th\u00e8me \u00ab S\u2019adapter au changement : perdurer les soins dans un nouveau monde 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content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Electra Rozakis\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2021-une-celebration-internationale\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/journee-mondiale-de-lhemophilie-2021-une-celebration-internationale\/\"},\"author\":{\"name\":\"Electra Rozakis\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/622f4b0ed56b8e4a987dd20bef774887\"},\"headline\":\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2021 : une c\u00e9l\u00e9bration 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