{"id":113975,"date":"2024-06-27T16:45:32","date_gmt":"2024-06-27T20:45:32","guid":{"rendered":"https:\/\/wfh.org\/article\/le-rapport-annuel-2023-de-la-fmh-souligne-des-avancees\/"},"modified":"2024-08-01T15:08:41","modified_gmt":"2024-08-01T19:08:41","slug":"le-rapport-annuel-2023-de-la-fmh-souligne-des-avancees","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/le-rapport-annuel-2023-de-la-fmh-souligne-des-avancees\/","title":{"rendered":"Le rapport annuel 2023 de la FMH souligne des avanc\u00e9es"},"content":{"rendered":"\t\t
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La vision de la FMH du Traitement pour tous est celle d\u2019un monde o\u00f9 toutes les personnes atteintes d\u2019un trouble h\u00e9r\u00e9ditaire de la coagulation ont acc\u00e8s aux soins, quel que soit leur type de trouble, leur genre ou leur lieu de r\u00e9sidence. En 2023, nous avons fait un pas de plus vers cet objectif en proposant tout un \u00e9ventail de services \u00e0 notre communaut\u00e9, par plusieurs biais. Les indicateurs cl\u00e9s de performance de notre Priorit\u00e9 strat\u00e9gique 2022-2025 montrent que nous avons d\u00e9j\u00e0 d\u00e9pass\u00e9 nos objectifs dans plusieurs domaines. Pour lire le rapport, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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En 2023, la FMH a lanc\u00e9 de nouveaux \u00e9v\u00e9nements et outils afin de soutenir la communaut\u00e9. En effet, l\u2019an dernier, nous avons tenu le tout premier Sommet de la FMH pour les soins complets et lanc\u00e9 le Registre de la th\u00e9rapie g\u00e9nique (RTG). De plus, le Sommet mondial de la FMH sur les politiques et l\u2019acc\u00e8s aux traitements, le Sommet mondial sur les femmes et filles atteintes d\u2019un trouble de la coagulation et le 13e<\/sup> Forum mondial ont \u00e9t\u00e9 tr\u00e8s pr\u00e9cieux pour les participant\u00b7es.<\/p>\n

La FMH a \u00e9galement \u00e9largi le Registre mondial des troubles de la coagulation (RMTC) afin d\u2019y inclure les personnes atteintes de la maladie de Willebrand (MW), et lanc\u00e9 l\u2019Outil de prise de d\u00e9cision partag\u00e9e pour le traitement de l\u2019h\u00e9mophilie.<\/p>\n

Nos nombreux programmes continuent de faire la diff\u00e9rence pour notre communaut\u00e9. L\u2019acad\u00e9mie du programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT) a dipl\u00f4m\u00e9 sa deuxi\u00e8me promotion de dirigeant\u00b7es. Le Programme d\u2019aide humanitaire de la FMH poursuit ses dons de facteur et son soutien \u00e0 la formation l\u00e0 o\u00f9 il y en a le plus besoin. Nous publions \u00e9galement des \u00e9l\u00e9ments toujours tr\u00e8s attendus par les personnes travaillant dans la recherche et le plaidoyer, comme notre Sondage mondial annuel ou bien le rapport 2022 sur les donn\u00e9es du RMTC.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Nous avons accompli beaucoup de choses en 2023, et je suis tr\u00e8s fier de nos r\u00e9ussites. Mais nous devons en faire davantage. C\u2019est vers cela que nous allons diriger toute notre \u00e9nergie. Notre travail et notre r\u00e9putation se consolident \u00e0 l\u2019\u00e9chelle mondiale, et les attentes de notre communaut\u00e9 grandissent avec elles [\u2026] Au nom de toute la FMH, je tiens \u00e0 remercier la communaut\u00e9 mondiale des troubles h\u00e9r\u00e9ditaires de la coagulation, nos partenaires pharmaceutiques, les gouvernements, les professionnel\u00b7les de la sant\u00e9, les ONM, la FMH \u00c9tats-Unis, les \u00e9quipes de la FMH et toutes les personnes qui nous ont fait confiance en 2023. Cette confiance a \u00e9t\u00e9 notre moteur en 2023, et ce sera \u00e0 nouveau le cas en 2024. <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014 Cesar Garrido, pr\u00e9sident de la FMH<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Pour en savoir plus sur tout ce que notre grande famille a accompli en 2023, notamment consulter des \u00e9tudes de cas, lisez le rapport annuel 2023 de la FMH (en anglais) ici<\/a>. Pour en savoir plus sur la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH), cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Le rapport annuel 2023 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a \u00e9t\u00e9 publi\u00e9 ! L\u2019ann\u00e9e 2023 a vu de nombreuses avanc\u00e9es majeures pour la FMH, notamment le 60e anniversaire de la F\u00e9d\u00e9ration. Soixante ans de collaboration, de formation, d\u2019\u00e9ducation, de plaidoyer et de soutien, qui ont chang\u00e9 des milliers de vies dans le monde entier. Notre dernier rapport annuel pr\u00e9sente beaucoup d\u2019autres \u00e9volutions prometteuses qui montrent que la FMH continue \u00e0 faire la diff\u00e9rence pour les personnes atteintes d\u2019un trouble h\u00e9r\u00e9ditaire de la coagulation.<\/p>\n","protected":false},"author":13,"featured_media":112657,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[338,8],"tags":[],"search-category":[85],"class_list":["post-113975","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-fr","category-non-classifiee","search-category-article"],"yoast_head":"\nLe rapport annuel 2023 de la FMH souligne des avanc\u00e9es | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/le-rapport-annuel-2023-de-la-fmh-souligne-des-avancees\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le rapport annuel 2023 de la FMH souligne des avanc\u00e9es\" \/>\n<meta property=\"og:description\" content=\"Le rapport annuel 2023 de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) a \u00e9t\u00e9 publi\u00e9 ! 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