{"id":110933,"date":"2024-06-07T11:00:23","date_gmt":"2024-06-07T15:00:23","guid":{"rendered":"https:\/\/wfh.org\/?p=110933"},"modified":"2024-06-20T10:15:48","modified_gmt":"2024-06-20T14:15:48","slug":"limpact-multiforme-de-la-fmh-en-inde","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/limpact-multiforme-de-la-fmh-en-inde\/","title":{"rendered":"L\u2019impact multiforme de la FMH en Inde"},"content":{"rendered":"\t\t
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La FMH dispose de plusieurs programmes actuellement actifs en Inde, notamment le Programme d\u2019aide humanitaire<\/a>, le programme Parcours d\u2019acc\u00e8s aux soins et au traitement (PACT)<\/a>, le programme de jumelage, le Programme international d\u2019\u00e9valuation externe de la qualit\u00e9 (IEQAS) et bien d\u2019autres. Toutes ces initiatives n\u2019ont qu\u2019un seul objectif\u00a0: travailler en \u00e9troite collaboration avec la communaut\u00e9 locale des troubles h\u00e9r\u00e9ditaires de la coagulation afin qu\u2019elle puisse proposer un soutien complet et durable ainsi que des soins \u00e0 celles et ceux qui en ont besoin.<\/p>\n

Les dons du Programme d\u2019aide humanitaire de la FMH ont augment\u00e9 de mani\u00e8re significative en 2015 avec l\u2019\u00e9largissement du programme, et cette \u00e9volution a eu un impact essentiel sur les personnes atteintes d\u2019un trouble de la coagulation en Inde, un pays qui totalise pr\u00e8s de 30\u00a0% des dons du programme. \u00ab J\u2019ai vu des vies changer gr\u00e2ce \u00e0 ce programme\u00a0\u00bb, explique Harshal Kale, responsable r\u00e9gional de la FMH pour l\u2019Asie de l\u2019Est et du Sud. \u00ab\u00a0J\u2019ai vu des personnes b\u00e9n\u00e9ficier [d\u2019op\u00e9rations m\u00e9dicales] et reprendre une vie normale. \u00bb<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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La FMH est le pilier [de la Hemophilia Federation of India (HFI)] depuis notre cr\u00e9ation en 1983. Notre relation avec le corps m\u00e9dical s\u2019est grandement am\u00e9lior\u00e9e depuis [l\u2019augmentation du nombre de] produits de traitement.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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\u2014Prem Roop, pr\u00e9sident de la Hemophilia Federation of India (HFI)<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Shubhranshu S. Mohanty (MD), professeur et chef du d\u00e9partement d\u2019orthop\u00e9die \u00e0 l\u2019h\u00f4pital King Edward Memorial de Mumbai, explique que cette collaboration \u00e9troite avec la FMH a \u00e9t\u00e9 un facteur essentiel du succ\u00e8s de cet h\u00f4pital. Elle consiste notamment \u00e0 maximiser les b\u00e9n\u00e9fices des diff\u00e9rents programmes de la FMH en Inde, notamment optimiser les formations et les dons de produits. Aujourd\u2019hui, les m\u00e9decins ont les comp\u00e9tences n\u00e9cessaires pour traiter de multiples complications li\u00e9es aux troubles de la coagulation comme la synovite, les pseudotumeurs, les fractures, les remplacements articulaires, et m\u00eame l\u2019arthroplastie du genou assist\u00e9e par robot. Pr\u00e8s de 150 interventions chirurgicales sont pratiqu\u00e9es chaque ann\u00e9e, et chacune d\u2019elle utilise des produits th\u00e9rapeutiques issus de dons du Programme d\u2019aide humanitaire de la FMH.<\/p>\n

Les dons du programme ont litt\u00e9ralement chang\u00e9 la vie d\u2019une famille\u00a0: Rahul est une personne sourde atteinte d\u2019h\u00e9mophilie. Lorsqu\u2019il \u00e9tait enfant, il est tomb\u00e9 et s\u2019est s\u00e9v\u00e8rement bless\u00e9 aux genoux, au point de ne plus pouvoir marcher. \u00ab Je le portais. J\u2019ai d\u00fb le transporter pour traverser un pont \u00bb, explique sa m\u00e8re. \u00ab\u00a0Nous l\u2019amenions \u00e0 l\u2019\u00e9cole en fauteuil roulant, et nous le ramenions aussi en fauteuil.\u00a0\u00bb Il a ensuite commenc\u00e9 \u00e0 recevoir des dons de facteur, et son \u00e9tat s\u2019est suffisamment am\u00e9lior\u00e9 pour qu\u2019il soit \u00e9ligible \u00e0 une intervention chirurgicale. Cette op\u00e9ration lui a permis de marcher \u00e0 nouveau. Il peut d\u00e9sormais contribuer aux t\u00e2ches m\u00e9nag\u00e8res \u00e0 la maison et n\u2019est plus un fardeau pour sa famille.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Gr\u00e2ce \u00e0 une collaboration intensifi\u00e9e avec la FMH, la relation entre la communaut\u00e9 des troubles de la coagulation, les sp\u00e9cialistes m\u00e9dicales et m\u00e9dicaux et la Hemophilia Federation of India n\u2019a jamais \u00e9t\u00e9 aussi solide. \u00ab\u00a0La FMH est le pilier [de la Hemophilia Federation of India (HFI)] depuis notre cr\u00e9ation en 1983\u00a0\u00bb, d\u00e9clare Prem Roop, pr\u00e9sident de la HFI. \u00ab Notre relation avec le corps m\u00e9dical s\u2019est grandement am\u00e9lior\u00e9e depuis [l\u2019augmentation du nombre de] produits de traitement. \u00bb<\/p>\n

Les exp\u00e9riences de toutes les parties prenantes en Inde peuvent \u00eatre r\u00e9sum\u00e9es ainsi\u00a0: collaboration, dons fiables de produits th\u00e9rapeutiques et prophylaxie sont au c\u0153ur de l\u2019am\u00e9lioration des soins pour les personnes atteintes d\u2019un trouble de la coagulation. En bref, tel est l\u2019impact de la FMH sur les mentalit\u00e9s gr\u00e2ce au Programme d\u2019aide humanitaire et \u00e0 ses autres initiatives.<\/p>\n

Pr\u00e8s de 42 millions d\u2019UI de facteur ont \u00e9t\u00e9 donn\u00e9es \u00e0 l\u2019Inde en 2023 via le Programme d\u2019aide humanitaire de la FMH. Depuis 2015, c\u2019est plus de 370 millions d\u2019UI de facteur que le pays a re\u00e7ues en dons. Pour en savoir plus sur le Programme d\u2019aide humanitaire de la FMH, cliquez ici<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\u00c0 propos du Programme d\u2019aide humanitaire de la FMH<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Le Programme d\u2019aide humanitaire de la FMH am\u00e9liore l\u2019acc\u00e8s aux soins et aux traitements en fournissant un soutien essentiel aux personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation dans les pays en d\u00e9veloppement. En apportant aux patient\u00b7es un flux plus r\u00e9gulier et plus pr\u00e9visible de dons humanitaires, le Programme d\u2019aide humanitaire de la FMH leur permet un acc\u00e8s constant et fiable aux traitements et aux soins. Rien de tout cela ne serait possible sans le g\u00e9n\u00e9reux soutien de Sanofi et Sobi, nos Donateurs visionnaires fondateurs ; de Bayer, CSL Behring et Roche, nos Donateurs visionnaires ; de Grifols, notre Donateur encadrant, et de Takeda et la Japan Blood Product Organization, nos Donateurs contributeurs. Pour plus d\u2019informations sur le Programme d\u2019aide humanitaire de la FMH, consultez le site\u00a0www.treatmentforall.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) soutient la communaut\u00e9 des troubles de la coagulation en Inde depuis de nombreuses ann\u00e9es, gr\u00e2ce \u00e0 l\u2019\u00e9ducation et \u00e0 la formation collaborative, ainsi qu\u2019aux dons de produits. Ce soutien a permis aux professionnel\u00b7les de sant\u00e9 et \u00e0 la Hemophilia Federation of India (HFI), l\u2019organisation nationale membre (ONM) du pays, d\u2019am\u00e9liorer la qualit\u00e9 de vie des personnes atteintes d\u2019un trouble de la coagulation en Inde.<\/p>\n","protected":false},"author":13,"featured_media":109848,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[336,184],"tags":[],"search-category":[85],"class_list":["post-110933","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-2-fr","category-programme-daide-humanitaire-de-la-fmh","search-category-article"],"yoast_head":"\nL\u2019impact multiforme de la FMH en Inde | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/limpact-multiforme-de-la-fmh-en-inde\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"L\u2019impact multiforme de la FMH en Inde\" \/>\n<meta property=\"og:description\" content=\"La F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) soutient la communaut\u00e9 des troubles de la coagulation en Inde depuis de nombreuses ann\u00e9es, gr\u00e2ce \u00e0 l\u2019\u00e9ducation et \u00e0 la formation collaborative, ainsi qu\u2019aux dons de produits. Ce soutien a permis aux professionnel\u00b7les de sant\u00e9 et \u00e0 la Hemophilia Federation of India (HFI), l\u2019organisation nationale membre (ONM) du pays, d\u2019am\u00e9liorer la qualit\u00e9 de vie des personnes atteintes d\u2019un trouble de la coagulation en Inde.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/limpact-multiforme-de-la-fmh-en-inde\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-06-07T15:00:23+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-06-20T14:15:48+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/05\/India-2024-Video-1-header.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/limpact-multiforme-de-la-fmh-en-inde\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/limpact-multiforme-de-la-fmh-en-inde\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/4aea5b13c1966452a640eef39423925b\"},\"headline\":\"L\u2019impact multiforme de la FMH en Inde\",\"datePublished\":\"2024-06-07T15:00:23+00:00\",\"dateModified\":\"2024-06-20T14:15:48+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/limpact-multiforme-de-la-fmh-en-inde\/\"},\"wordCount\":903,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/limpact-multiforme-de-la-fmh-en-inde\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2024\/05\/India-2024-Video-1-header.jpg\",\"articleSection\":[\"Featured 2 - 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