{"id":105905,"date":"2024-04-17T01:00:59","date_gmt":"2024-04-17T05:00:59","guid":{"rendered":"https:\/\/wfh.org\/?p=105905"},"modified":"2024-04-19T12:02:20","modified_gmt":"2024-04-19T16:02:20","slug":"aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024","status":"publish","type":"post","link":"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/","title":{"rendered":"Aujourd\u2019hui, c\u2019est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2024 !"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"105905\" class=\"elementor elementor-105905 elementor-105404\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a693e91 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a693e91\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-40f6635\" data-id=\"40f6635\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-2da158c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2da158c\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-1d4bae7\" data-id=\"1d4bae7\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5ac852d elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"5ac852d\" data-element_type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<i aria-hidden=\"true\" class=\"fas fa-quote-left\"><\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-5ab1663\" data-id=\"5ab1663\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2ea1ec5 elementor-widget elementor-widget-heading\" data-id=\"2ea1ec5\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h2 class=\"elementor-heading-title elementor-size-default\">\u00c0 une \u00e9poque, lorsqu\u2019on disait \u00ab trouble de la coagulation \u00bb, tout le monde pensait \u00ab homme atteint d\u2019h\u00e9mophilie \u00bb. Ces derniers ann\u00e9es, le monde entier a commenc\u00e9 \u00e0 se rendre compte qu\u2019un trouble de la coagulation, cela peut \u00eatre bien des choses. Il peut s\u2019agir d\u2019h\u00e9mophilie A ou B, de la maladie de Willebrand (MW) et d\u2019autres maladies. Ce sont des hommes, des gar\u00e7ons, des femmes et des filles. Ce sont les parents et les ami\u00b7es qui soutiennent une personne atteinte d\u2019un trouble de la coagulation. En r\u00e9sum\u00e9, \u00ab trouble de la coagulation \u00bb renvoie \u00e0 la notion de communaut\u00e9, une communaut\u00e9 qui m\u00e9rite qu\u2019on lui rende hommage, et qui a besoin de notre soutien. Joignez-vous \u00e0 nous le 17 avril pour montrer que l\u2019acc\u00e8s \u00e9quitable pour tous vous tient \u00e0 c\u0153ur.<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-e8a5753 elementor-widget elementor-widget-heading\" data-id=\"e8a5753\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<p class=\"elementor-heading-title elementor-size-default\">\u2014Cesar Garrido, pr\u00e9sident de la FMH<\/p>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-c8681e1 elementor-widget elementor-widget-text-editor\" data-id=\"c8681e1\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>\u00c0 l\u2019occasion de la <a href=\"https:\/\/wfh.org\/fr\/journee-mondiale-de-lhemophilie\/\" target=\"_blank\" rel=\"noopener\">Journ\u00e9e mondiale de l\u2019h\u00e9mophilie<\/a>, il y a de nombreuses mani\u00e8res pour vous d\u2019attirer l\u2019attention sur l\u2019h\u00e9mophilie et les autres troubles h\u00e9r\u00e9ditaires de la coagulation. Nous proposons un grand nombre de ressources que vous pouvez t\u00e9l\u00e9charger gratuitement\u00a0:<\/p>\n<ul>\n<li>Affiche<\/li>\n<li>Banni\u00e8re pour site internet<\/li>\n<li>Logo pour signature courriel<\/li>\n<li>Prospectus \u00ab\u00a0Comment participer\u00a0\u00bb<\/li>\n<li>Mod\u00e8le de lettre \u00ab\u00a0\u00c9clairez tout en rouge\u00a0\u00bb<\/li>\n<li>Kit de plaidoyer expliquant comment s\u2019impliquer<\/li>\n<li>Mod\u00e8le de p\u00e9tition et lettre \u00e0 adresser \u00e0 un\u00b7e responsable politique<\/li>\n<li>Photos de couverture et visuels pour les r\u00e9seaux sociaux<\/li>\n<li>Arri\u00e8re-plan Zoom<\/li>\n<li>\u2026 et bien plus encore\u00a0!<\/li>\n<\/ul>\n<p>Que vous soyez une personne atteinte d\u2019un trouble de la coagulation, une organisation nationale membre (ONM) ou un\u00b7e professionnel\u00b7le de la sant\u00e9, voici quelques mani\u00e8res de vous impliquer\u00a0:<\/p>\n<ul>\n<li>Exprimez-vous sur les r\u00e9seaux en publiant des informations sur les troubles h\u00e9r\u00e9ditaires de la coagulation sur Facebook, Twitter, LinkedIn et Instagram. <a href=\"https:\/\/wfh.org\/fr\/article\/tout-ce-dont-vous-avez-besoin-pour-la-journee-mondiale-de-lhemophilie-2024\/\" target=\"_blank\" rel=\"noopener\">Cliquez ici<\/a> pour consulter nos exemples de publications et bien plus encore.<\/li>\n<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2827edc elementor-shape-square elementor-grid-6 e-grid-align-center elementor-widget elementor-widget-social-icons\" data-id=\"2827edc\" data-element_type=\"widget\" data-widget_type=\"social-icons.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-social-icons.elementor-grid-0 .elementor-widget-container,.elementor-widget-social-icons.elementor-grid-mobile-0 .elementor-widget-container,.elementor-widget-social-icons.elementor-grid-tablet-0 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elementor-repeater-item-9c18472\" href=\"https:\/\/www.linkedin.com\/company\/wfhemophilia\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-screen-only\"><\/span>\n\t\t\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" id=\"Group_6463\" data-name=\"Group 6463\" width=\"47.516\" height=\"47.516\" viewBox=\"0 0 47.516 47.516\"><circle id=\"Ellipse_310\" data-name=\"Ellipse 310\" cx=\"23.758\" cy=\"23.758\" r=\"23.758\" transform=\"translate(0 0)\" fill=\"#2867b2\"><\/circle><g id=\"Group_6462\" data-name=\"Group 6462\" transform=\"translate(11.923 9.752)\"><g id=\"Group_6461\" data-name=\"Group 6461\" transform=\"translate(0 0)\"><path id=\"Path_248\" data-name=\"Path 248\" d=\"M29.855,37.585h4.908V53.37H29.855Zm2.454-7.847a2.845,2.845,0,1,1-2.844,2.844,2.846,2.846,0,0,1,2.844-2.844\" transform=\"translate(-29.466 -29.738)\" fill=\"#fff\"><\/path><path id=\"Path_249\" data-name=\"Path 249\" d=\"M84.153,78.808h4.706v2.156h.067a5.156,5.156,0,0,1,4.642-2.549c4.964,0,5.881,3.268,5.881,7.52v8.658h-4.9V86.916c0-1.832-.036-4.186-2.55-4.186-2.553,0-2.942,1.994-2.942,4.053v7.808h-4.9Z\" transform=\"translate(-75.779 -70.96)\" fill=\"#fff\"><\/path><\/g><\/g><\/svg>\t\t\t\t\t<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cdfafda elementor-widget elementor-widget-text-editor\" data-id=\"cdfafda\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul>\n<li>Organisez un \u00e9v\u00e9nement, animez un \u00e9v\u00e9nement communautaire, un webinaire, un forum ou une r\u00e9union en mairie, et invitez des responsables politiques \u00e0 en apprendre davantage sur votre travail et \u00e0 rencontrer la communaut\u00e9<\/li>\n<li>Participez \u00e0 la campagne \u00c9clairez tout en rouge pour la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie. L\u2019an dernier, des milliers de personnes du monde entier ont montr\u00e9 leur soutien (dans le respect des recommandations locales li\u00e9es \u00e0 la COVID-19) en \u00e9clairant en rouge plus de 150 monuments<\/li>\n<li>Soutenez nos initiatives mondiales de plaidoyer en devenant <a href=\"https:\/\/wfh.org\/fr\/soutenir-nos-actions\/#globalchampion\" target=\"_blank\" rel=\"noopener\">Champion ou Championne mondiale de la FMH<\/a><\/li>\n<li>Racontez votre histoire, \u00e0 l\u2019\u00e9crit ou en vid\u00e9o, ou celle d\u2019une personne que vous connaissez qui est affect\u00e9e par les troubles h\u00e9r\u00e9ditaires de la coagulation\u00a0; lisez les r\u00e9cits des autres sur notre site consacr\u00e9 \u00e0 la <a href=\"https:\/\/whdstories.wfh.org\/fr\/\" target=\"_blank\" rel=\"noopener\">Journ\u00e9e mondiale de l\u2019h\u00e9mophilie<\/a><\/li>\n<li>Agissez au niveau local et utilisez les ressources de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie pour envoyer une lettre \u00e0 vos responsables locaux, organiser des r\u00e9unions avec les \u00e9lu\u00b7es et les ministres de la Sant\u00e9, et contacter les m\u00e9dias locaux<\/li>\n<li>Contactez votre organisation nationale membre (ONM) afin de savoir comment l\u2019aider<\/li>\n<li>T\u00e9l\u00e9chargez nos ressources \u2013 affiches, banni\u00e8res pour les r\u00e9seaux sociaux \u2013 sur <a href=\"https:\/\/wfh.org\/fr\/journee-mondiale-de-lhemophilie\/\" target=\"_blank\" rel=\"noopener\">wfh.org\/whd<\/a> afin de cr\u00e9er votre propre campagne pour la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie<\/li>\n<li>Envoyez vos photos, vos commentaires ou vos questions \u00e0 l\u2019adresse <a href=\"mailto:communications@wfh.org\" target=\"_blank\" rel=\"noopener\">communications@wfh.org<\/a><\/li>\n<\/ul>\n<p>Pour en savoir plus sur la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, <a href=\"https:\/\/wfh.org\/fr\/journee-mondiale-de-lhemophilie\/\" target=\"_blank\" rel=\"noopener\">cliquez ici<\/a>.<\/p>\n<p><em>La FMH tient \u00e0 remercier les sponsors de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2024 pour leur soutien fid\u00e8le : Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., GC Pharma, Grifols, Kedrion, LFB S.A, Novo Nordisk, Octapharma, Pfizer, Sanofi, Sobi, Spark Therapeutics et Takeda.<\/em><\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Nous sommes le 17 avril 2024 : c\u2019est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie ! Cette ann\u00e9e, le th\u00e8me de l\u2019\u00e9v\u00e9nement est \u00ab Acc\u00e8s \u00e9quitable pour tous : pour tous les troubles de la coagulation \u00bb. La vision de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) d\u2019un Traitement pour tous est celle d\u2019un monde o\u00f9 toutes les personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation auraient acc\u00e8s aux soins, quels que soient le type de trouble de la coagulation dont elles sont atteintes, leur genre, leur \u00e2ge ou leur lieu de r\u00e9sidence. Aujourd\u2019hui, rendons hommage \u00e0 notre communaut\u00e9 et continuons \u00e0 \u0153uvrer pour un monde o\u00f9 toute personne atteinte d\u2019h\u00e9mophilie A ou B, de la maladie de Willebrand ou de tout autre trouble de la coagulation ait acc\u00e8s \u00e0 un diagnostic, \u00e0 un traitement et \u00e0 une prise en charge compl\u00e8te.<\/p>\n","protected":false},"author":13,"featured_media":90735,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[193,150],"tags":[],"search-category":[85],"class_list":["post-105905","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-journee-mondiale-de-lhemophilie","category-world-hemophilia-day","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Aujourd\u2019hui, c\u2019est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2024 ! | FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Aujourd\u2019hui, c\u2019est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2024 !\" \/>\n<meta property=\"og:description\" content=\"Nous sommes le 17 avril 2024 : c\u2019est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie ! Cette ann\u00e9e, le th\u00e8me de l\u2019\u00e9v\u00e9nement est \u00ab Acc\u00e8s \u00e9quitable pour tous : pour tous les troubles de la coagulation \u00bb. La vision de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie (FMH) d\u2019un Traitement pour tous est celle d\u2019un monde o\u00f9 toutes les personnes atteintes de troubles h\u00e9r\u00e9ditaires de la coagulation auraient acc\u00e8s aux soins, quels que soient le type de trouble de la coagulation dont elles sont atteintes, leur genre, leur \u00e2ge ou leur lieu de r\u00e9sidence. Aujourd\u2019hui, rendons hommage \u00e0 notre communaut\u00e9 et continuons \u00e0 \u0153uvrer pour un monde o\u00f9 toute personne atteinte d\u2019h\u00e9mophilie A ou B, de la maladie de Willebrand ou de tout autre trouble de la coagulation ait acc\u00e8s \u00e0 un diagnostic, \u00e0 un traitement et \u00e0 une prise en charge compl\u00e8te.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2024-04-17T05:00:59+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-19T16:02:20+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/10\/WHD-2024-header-FR.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"\u00c9crit par\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/fr\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\"},\"headline\":\"Aujourd\u2019hui, c\u2019est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2024 !\",\"datePublished\":\"2024-04-17T05:00:59+00:00\",\"dateModified\":\"2024-04-19T16:02:20+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/\"},\"wordCount\":644,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/fr\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2023\/10\/WHD-2024-header-FR.jpg\",\"articleSection\":[\"Journ\u00e9e mondiale de l\u2019h\u00e9mophilie\",\"World Hemophilia Day\"],\"inLanguage\":\"fr-FR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/\",\"url\":\"https:\/\/wfh.org\/fr\/article\/aujourdhui-cest-la-journee-mondiale-de-lhemophilie-2024\/\",\"name\":\"Aujourd\u2019hui, c\u2019est la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie 2024 ! 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