{"id":49873,"date":"2022-11-10T10:12:15","date_gmt":"2022-11-10T15:12:15","guid":{"rendered":"https:\/\/wfh.org\/article\/se-revela-el-tema-para-el-dia-mundial-de-la-hemofilia-2023\/"},"modified":"2026-03-12T10:01:44","modified_gmt":"2026-03-12T14:01:44","slug":"se-revela-el-tema-para-el-dia-mundial-de-la-hemofilia-2023","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/se-revela-el-tema-para-el-dia-mundial-de-la-hemofilia-2023\/","title":{"rendered":"Se revela el tema para el D\u00eda mundial de la hemofilia 2023"},"content":{"rendered":"\t\t
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Con base en el tema del D\u00eda mundial de la hemofilia<\/a> a\u00f1o pasado, el llamado a la acci\u00f3n para la comunidad en 2023 es unirse a fin de abogar ante legisladores locales y gobiernos por un mejor acceso al tratamiento y la atenci\u00f3n, con \u00e9nfasis en un mejor control y prevenci\u00f3n de hemorragias para todas las personas con trastornos de la coagulaci\u00f3n (PCTC). Esto significa la implementaci\u00f3n del tratamiento en el hogar, as\u00ed como del tratamiento profil\u00e1ctico con el prop\u00f3sito de ayudar a estas personas a lograr una mejor calidad de vida.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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No hay nada m\u00e1s conmovedor para alguien de nuestra comunidad que escuchar acerca de un ni\u00f1o con un trastorno de la coagulaci\u00f3n que juega con sus amigos, va a la escuela y sencillamente disfruta de una mejor calidad de vida porque tiene acceso al tratamiento adecuado. Controlar y prevenir hemorragias es realmente fundamental para una mejor calidad de vida.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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C\u00e9sar Garrido, presidente de la FMH<\/p>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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C\u00f3mo participar<\/strong><\/p>\n

Hay muchas maneras en las que usted puede ayudar a incrementar la conciencia sobre la necesidad del control y la prevenci\u00f3n de hemorragias para las PCTC en su comunidad, y en todo el mundo. El tema del 2023 es solo una gu\u00eda, de modo que usted puede adaptarlo a su regi\u00f3n y organizaci\u00f3n. En breve, en nuestra\u00a0p\u00e1gina Internet<\/a>\u00a0del D\u00eda mundial de la hemofilia y en la\u00a0p\u00e1gina<\/a>\u00a0de noticias de la FMH, compartiremos una serie de diferentes opciones para participar.<\/p>\n

Recursos<\/strong><\/p>\n

Podr\u00e1 encontrar m\u00e1s informaci\u00f3n sobre el tema, as\u00ed como banners y materiales colaterales, en la p\u00e1gina internet del D\u00eda mundial de la hemofilia,\u00a0aqu\u00ed<\/a>. La informaci\u00f3n se actualizar\u00e1 peri\u00f3dicamente, \u00a1as\u00ed que le recomendamos volver a visitar la p\u00e1gina con frecuencia!<\/p>\n

La FMH desea agradecer el apoyo continuo de los patrocinadores del D\u00eda mundial de la hemofilia 2023:<\/em>\u00a0Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., Freeline Therapeutics, GC Pharma, Grifols, Kedrion, LFB S. A., Novo Nordisk, Octapharma, Pfizer, Sanofi, Sobi, Spark Therapeutics, y Takeda.<\/em><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

\u00a1El 17 de abril de 2023 se conmemora el D\u00eda mundial de la hemofilia! 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