{"id":38974,"date":"2022-06-16T08:00:20","date_gmt":"2022-06-16T12:00:20","guid":{"rendered":"https:\/\/wfh.org\/?p=38974"},"modified":"2024-04-11T08:26:58","modified_gmt":"2024-04-11T12:26:58","slug":"el-rmtc-logra-su-meta-10000-pch-inscritas","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/el-rmtc-logra-su-meta-10000-pch-inscritas\/","title":{"rendered":"\u00a1El RMTC logra su meta: 10,000 PCH inscritas!"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"38974\" class=\"elementor elementor-38974 elementor-38825\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-8f5dc91 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"8f5dc91\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-6f898f0\" data-id=\"6f898f0\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-43d0fb4 elementor-widget elementor-widget-text-editor\" data-id=\"43d0fb4\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\tLos datos de los pacientes constituyen la base de decisiones m\u00e9dicas y pol\u00edticas de salud, adem\u00e1s de que pueden desempe\u00f1ar un papel transformador en las vidas de las personas con trastornos de la coagulaci\u00f3n. Durante muchos a\u00f1os, la comunidad de trastornos de la coagulaci\u00f3n pidi\u00f3 m\u00e1s y mejores datos para ayudar a mejorar la atenci\u00f3n a los pacientes, para documentar decisiones m\u00e9dicas, y para abogar por mayor apoyo. El <a href=\"https:\/\/wfh.org\/es\/recoleccion-de-datos\/#wbdr\" target=\"_blank\" rel=\"noopener\">RMTC<\/a> constituye la respuesta a estas necesidades y ofrece a la comunidad mundial la oportunidad de cerrar la brecha que existe en disponibilidad, calidad y utilidad de datos de pacientes, tanto a escala nacional como regional.\r\n\r\nLa importante meta de 10,000 PCH inscritas se logr\u00f3 un a\u00f1o antes de lo previsto. La FMH agradece profundamente a las PCH que brindan sus datos para mejorar nuestra comprensi\u00f3n de la atenci\u00f3n a los pacientes alrededor del mundo.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d88649a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d88649a\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-edcee9c\" data-id=\"edcee9c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1125235 elementor-widget elementor-widget-text-editor\" data-id=\"1125235\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\tDurante los pasados cuatro a\u00f1os, la FMH ha proporcionado a la comunidad varios programas y recursos relacionados con el RMTC, entre ellos los siguientes:\r\n<ul>\r\n \t<li><a href=\"https:\/\/wfh.org\/es\/solicite-becas-y-subvenciones\/programa-de-apoyo-a-la-investigacion-del-rmtc\/\" target=\"_blank\" rel=\"noopener\">Programa de apoyo a la investigaci\u00f3n del RMTC<\/a> que ha financiado 30 proyectos de investigaci\u00f3n.<\/li>\r\n \t<li><a href=\"https:\/\/wfh.org\/es\/solicite-becas-y-subvenciones\/programa-de-financiamiento-del-rmtc-de-la-fmh-para-cth\/\" target=\"_blank\" rel=\"noopener\">Programa de financiamiento del RMTC de la FMH para CTH<\/a> que ha ofrecido apoyo a las actividades de recolecci\u00f3n de datos de 25 CTH.<\/li>\r\n \t<li>M\u00e1s de 16 talleres impartidos sobre temas de formaci\u00f3n, recolecci\u00f3n de datos y evaluaci\u00f3n cl\u00ednica.<\/li>\r\n<\/ul>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-a929e33\" data-id=\"a929e33\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6658263 elementor-widget elementor-widget-image\" data-id=\"6658263\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-EN-F-WEB.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"612\" height=\"792\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-ES-F-WEB-THUMBNAIL.jpg\" class=\"attachment-full size-full wp-image-38833\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-ES-F-WEB-THUMBNAIL.jpg 612w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-WBDR-Using-Data-to-Improve-Care-ES-F-WEB-THUMBNAIL-83x108.jpg 83w\" sizes=\"(max-width: 612px) 100vw, 612px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b9cc50a elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b9cc50a\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4de95be\" data-id=\"4de95be\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-63cbfb2 elementor-widget elementor-widget-spacer\" data-id=\"63cbfb2\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-column .elementor-spacer-inner{height:var(--spacer-size)}.e-con{--container-widget-width:100%}.e-con-inner>.elementor-widget-spacer,.e-con>.elementor-widget-spacer{width:var(--container-widget-width,var(--spacer-size));--align-self:var(--container-widget-align-self,initial);--flex-shrink:0}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container,.e-con>.elementor-widget-spacer>.elementor-widget-container{height:100%;width:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer{height:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner{height:var(--container-widget-height,var(--spacer-size))}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty,.e-con>.elementor-widget-spacer.elementor-widget-empty{position:relative;min-height:22px;min-width:22px}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon,.e-con>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon{position:absolute;top:0;bottom:0;left:0;right:0;margin:auto;padding:0;width:22px;height:22px}<\/style>\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-aae9454 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"aae9454\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-9f99a25\" data-id=\"9f99a25\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2026b62 elementor-widget elementor-widget-text-editor\" data-id=\"2026b62\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\tConforme crece el RMTC se incorporan a su plataforma m\u00e1s funciones y mejoras. Ya est\u00e1 disponible en ingl\u00e9s, franc\u00e9s, espa\u00f1ol y ruso a fin de incrementar su accesibilidad y la experiencia del usuario. Asimismo, durante su Congreso Mundial 2022, la FMH lanz\u00f3 <a href=\"https:\/\/wfh.org\/es\/introducing-the-mywbdr-mobile-app-a-new-wbdr-data-collection-tool\/\" target=\"_blank\" rel=\"noopener\">myWBDR<\/a>, una nueva aplicaci\u00f3n m\u00f3vil que ofrece a PCH una herramienta para el monitoreo de su salud y un diario; y a investigadores y m\u00e9dicos datos sobre resultados reportados por pacientes. La aplicaci\u00f3n est\u00e1 disponible en siete idiomas.\r\n\r\nPara obtener m\u00e1s informaci\u00f3n sobre la manera en la que investigadores, m\u00e9dicos y defensores de pacientes pueden utilizar los datos del RMTC a fin de mejorar la atenci\u00f3n para personas con trastornos de la coagulaci\u00f3n hereditarios haga <a href=\"https:\/\/wfh.org\/es\/recoleccion-de-datos\/#wbdr\" target=\"_blank\" rel=\"noopener\">clic aqu\u00ed<\/a>.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-ebf3f0a\" data-id=\"ebf3f0a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-763e797 elementor-widget elementor-widget-image\" data-id=\"763e797\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-EN-F.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"612\" height=\"792\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-ES-F-THUMBNAIL.jpg\" class=\"attachment-full size-full wp-image-38829\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-ES-F-THUMBNAIL.jpg 612w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WFH-MyWBDR-Onesheet2022-ES-F-THUMBNAIL-83x108.jpg 83w\" sizes=\"(max-width: 612px) 100vw, 612px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a35186f elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a35186f\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-9a655b6\" data-id=\"9a655b6\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b556777 elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"b556777\" data-element_type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<link rel=\"stylesheet\" href=\"https:\/\/wfh.org\/wp-content\/plugins\/elementor\/assets\/css\/widget-icon-list.min.css\">\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">N\u00famero de PCH inscritas: 10,187<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">N\u00famero de CTH: 108<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-chevron-right\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">N\u00famero de pa\u00edses: 39<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-163f541 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"163f541\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-c9b77c3\" data-id=\"c9b77c3\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c5a6283 elementor-widget elementor-widget-text-editor\" data-id=\"c5a6283\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\tLa FMH desea agradecer a todas las PCH y sus cuidadores, al personal de CTH, a organizaciones nacionales miembros (ONM) y voluntarios expertos por seguir siendo el eje central que nutre y sostiene al RMTC como un recurso mundial clave para actividades de cabildeo e investigaci\u00f3n, y para el empoderamiento de PCH.\r\n\r\nSi su CTH desea formar parte del RMTC env\u00ede un mensaje a <a href=\"mailto:WBDR@wfh.org\" target=\"_blank\" rel=\"noopener\">WBDR@wfh.org<\/a>.\r\n\r\nPara leer el informe de datos m\u00e1s reciente del RMTC haga <a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2245.pdf\" target=\"_blank\" rel=\"noopener\">clic aqu\u00ed<\/a>.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-4c18428\" data-id=\"4c18428\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3b87076 elementor-widget elementor-widget-image\" data-id=\"3b87076\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2245.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"400\" height=\"518\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail.jpg\" class=\"attachment-full size-full wp-image-38659\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail.jpg 400w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail-83x108.jpg 83w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>En 2018, la Federaci\u00f3n Mundial de Hemofilia (FMH) lanz\u00f3 el Registro Mundial de Trastornos de la Coagulaci\u00f3n (RMTC), que ofrece a centros de tratamiento de hemofilia (CTH) una soluci\u00f3n sencilla para la recolecci\u00f3n de datos. El RMTC est\u00e1 dise\u00f1ado para recolectar datos m\u00e9dicos uniformizados sobre personas con hemofilia (PCH) de una extensa red de CTH alrededor del mundo. La FMH tiene el gusto de anunciar que 10,000 PCH ya se han inscrito al RMTC \u2013y las inscripciones contin\u00faan\u2013 contribuyendo as\u00ed de manera importante a mejorar la atenci\u00f3n que reciben los pacientes a escala mundial.<\/p>\n","protected":false},"author":13,"featured_media":38816,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[117,119,196],"tags":[],"search-category":[320],"class_list":["post-38974","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actividades-de-cabildeo","category-education-es","category-noticias-medicas","search-category-article-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>\u00a1El RMTC logra su meta: 10,000 PCH inscritas! | FMH - Federaci\u00f3n Mundial de Hemofilia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/es\/article\/el-rmtc-logra-su-meta-10000-pch-inscritas\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"\u00a1El RMTC logra su meta: 10,000 PCH inscritas!\" \/>\n<meta property=\"og:description\" content=\"En 2018, la Federaci\u00f3n Mundial de Hemofilia (FMH) lanz\u00f3 el Registro Mundial de Trastornos de la Coagulaci\u00f3n (RMTC), que ofrece a centros de tratamiento de hemofilia (CTH) una soluci\u00f3n sencilla para la recolecci\u00f3n de datos. El RMTC est\u00e1 dise\u00f1ado para recolectar datos m\u00e9dicos uniformizados sobre personas con hemofilia (PCH) de una extensa red de CTH alrededor del mundo. 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