{"id":38669,"date":"2022-06-06T07:00:17","date_gmt":"2022-06-06T11:00:17","guid":{"rendered":"https:\/\/wfh.org\/?p=38669"},"modified":"2024-04-11T08:31:40","modified_gmt":"2024-04-11T12:31:40","slug":"ya-se-publico-el-informe-de-datos-2021-del-rmtc","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/","title":{"rendered":"Ya se public\u00f3 el Informe de Datos 2021 del RMTC"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"38669\" class=\"elementor elementor-38669 elementor-38651\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4c6dff5 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4c6dff5\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-76d6772\" data-id=\"76d6772\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-35accc1 elementor-widget elementor-widget-text-editor\" data-id=\"35accc1\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\tEl objetivo del RMTC es monitorear el estado de la atenci\u00f3n de las PCH, subrayar disparidades en la atenci\u00f3n, y apoyar de manera emp\u00edrica la toma de decisiones y la elaboraci\u00f3n de pol\u00edticas para mejorar el tratamiento de la hemofilia. Los datos analizados en este informe \u2013el cual puede descargarse <a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2245.pdf\" target=\"_blank\" rel=\"noopener\">aqu\u00ed<\/a>\u2013demuestran que, en pa\u00edses con ingresos bajos y medios bajos, las PCH contin\u00faan recibiendo diagn\u00f3stico a una edad m\u00e1s tard\u00eda, en comparaci\u00f3n con las que viven en pa\u00edses de ingresos m\u00e1s altos. El diagn\u00f3stico m\u00e1s tard\u00edo genera malos resultados de salud y una menor calidad de vida. Como se destac\u00f3 en la <a href=\"https:\/\/elearning.wfh.org\/resource\/guias-para-el-tratamiento-de-la-hemofilia\/?_ga=2.39705507.1610672002.1654086163-981279657.1615936426&amp;_gl=1*1c26hdu*_ga*OTgxMjc5NjU3LjE2MTU5MzY0MjY.*_ga_7974KH9LH5*MTY1NDExMTg1Ni40NC4xLjE2NTQxMTE5NjguMA..\" target=\"_blank\" rel=\"noopener\">3<sup>a<\/sup>\u00a0edici\u00f3n de las Gu\u00edas de la FMH para el tratamiento de la hemofilia<\/a>, la profilaxis es la norma de atenci\u00f3n primaria; sin embargo, los datos del RMTC muestran que el uso de la profilaxis y el acceso a la misma sigue siendo mucho menor en pa\u00edses con ingresos bajos y medios bajos. Esta prueba cient\u00edfica del mundo real puede utilizarse como una importante herramienta para la investigaci\u00f3n y para actividades de cabildeo eficaces, con el prop\u00f3sito de mejorar la calidad de la atenci\u00f3n a los pacientes.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-140e3df elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"140e3df\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-e720f38\" data-id=\"e720f38\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-47bd576 elementor-widget elementor-widget-image\" data-id=\"47bd576\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2245.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"400\" height=\"518\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail.jpg\" class=\"attachment-full size-full wp-image-38659\" alt=\"\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail.jpg 400w, https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-thumbnail-83x108.jpg 83w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-56cd201 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"56cd201\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3514fd3\" data-id=\"3514fd3\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-df405f7 elementor-widget elementor-widget-text-editor\" data-id=\"df405f7\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\tEn el transcurso de los pr\u00f3ximos meses, la plataforma de recolecci\u00f3n de datos del RMTC estar\u00e1 disponible en franc\u00e9s, espa\u00f1ol y ruso, lo cual la har\u00e1 todav\u00eda m\u00e1s accesible a escala mundial. Esta actualizaci\u00f3n facilitar\u00e1 la recolecci\u00f3n de datos para m\u00e1s CTH, y har\u00e1 que los datos sean m\u00e1s representativos.\r\n\r\nLa FMH aprecia enormemente los esfuerzos de los CTH y de las PCH participantes, as\u00ed como el apoyo de nuestras aliadas corporativas para este valioso proyecto. Si desea obtener m\u00e1s informaci\u00f3n sobre el RMTC y sus programas conexos, tales como el Programa Internacional de Integraci\u00f3n de datos, el Programa de Apoyo a la Investigaci\u00f3n, y el Programa de Financiamiento para CTH, haga <a href=\"https:\/\/wfh.org\/es\/recoleccion-de-datos\/#wbdr\" target=\"_blank\" rel=\"noopener\">clic aqu\u00ed<\/a>. Para leer el Informe de datos 2021 del RMTC (en ingl\u00e9s) haga <a href=\"https:\/\/www1.wfh.org\/publications\/files\/pdf-2245.pdf\" target=\"_blank\" rel=\"noopener\">clic aqu\u00ed<\/a>.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Ya se public\u00f3 el Informe de Datos 2021 del Registro Mundial de Trastornos de la Coagulaci\u00f3n (RMTC) de la Federaci\u00f3n Mundial de Hemofilia (FMH). El RMTC sigue creciendo como un registro mundial de personas con hemofilia (PCH). Este a\u00f1o, el informe abarca datos sobre 9,414 PCH de 104 centros de tratamiento de hemofilia (CTH) y 37 pa\u00edses, representativos de todas las regiones del mundo.<\/p>\n","protected":false},"author":13,"featured_media":38655,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[119,204,196],"tags":[],"search-category":[320],"class_list":["post-38669","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-education-es","category-investigacion-y-recoleccion-de-datos","category-noticias-medicas","search-category-article-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Ya se public\u00f3 el Informe de Datos 2021 del RMTC | FMH - Federaci\u00f3n Mundial de Hemofilia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Ya se public\u00f3 el Informe de Datos 2021 del RMTC\" \/>\n<meta property=\"og:description\" content=\"Ya se public\u00f3 el Informe de Datos 2021 del Registro Mundial de Trastornos de la Coagulaci\u00f3n (RMTC) de la Federaci\u00f3n Mundial de Hemofilia (FMH). El RMTC sigue creciendo como un registro mundial de personas con hemofilia (PCH). Este a\u00f1o, el informe abarca datos sobre 9,414 PCH de 104 centros de tratamiento de hemofilia (CTH) y 37 pa\u00edses, representativos de todas las regiones del mundo.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - Federaci\u00f3n Mundial de Hemofilia\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2022-06-06T11:00:17+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-11T12:31:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-header2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"700\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/es\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\"},\"headline\":\"Ya se public\u00f3 el Informe de Datos 2021 del RMTC\",\"datePublished\":\"2022-06-06T11:00:17+00:00\",\"dateModified\":\"2024-04-11T12:31:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/\"},\"wordCount\":365,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/es\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-header2.jpg\",\"articleSection\":[\"Educaci\u00f3n\",\"Investigaci\u00f3n y recolecci\u00f3n de datos\",\"Noticias m\u00e9dicas\"],\"inLanguage\":\"es\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/\",\"url\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/\",\"name\":\"Ya se public\u00f3 el Informe de Datos 2021 del RMTC | FMH - Federaci\u00f3n Mundial de Hemofilia\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/es\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-header2.jpg\",\"datePublished\":\"2022-06-06T11:00:17+00:00\",\"dateModified\":\"2024-04-11T12:31:40+00:00\",\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/wfh.org\/es\/article\/ya-se-publico-el-informe-de-datos-2021-del-rmtc\/#primaryimage\",\"url\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-header2.jpg\",\"contentUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/06\/WBDR-report-header2.jpg\",\"width\":1200,\"height\":700,\"caption\":\"Tres ni\u00f1os sentados juntos y sonrientes; 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