{"id":29747,"date":"2022-03-04T15:55:21","date_gmt":"2022-03-04T20:55:21","guid":{"rendered":"https:\/\/wfh.org\/historia-de-exito-del-programa-internacional-de-integracion-de-datos-del-rmtc-publicada-en-haemophilia\/"},"modified":"2024-04-12T14:39:18","modified_gmt":"2024-04-12T18:39:18","slug":"historia-de-exito-del-programa-internacional-de-integracion-de-datos-del-rmtc-publicada-en-haemophilia","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/historia-de-exito-del-programa-internacional-de-integracion-de-datos-del-rmtc-publicada-en-haemophilia\/","title":{"rendered":"Historia de \u00e9xito del Programa internacional de integraci\u00f3n de datos del RMTC publicada en Haemophilia"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"29747\" class=\"elementor elementor-29747 elementor-29737\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-5a28b92 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"5a28b92\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-e13c9c1\" data-id=\"e13c9c1\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-eb12d2a elementor-widget elementor-widget-text-editor\" data-id=\"eb12d2a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Estos esfuerzos contribuyen a facilitar la atenci\u00f3n sustentable alrededor del mundo. El Registro Mundial de Trastornos de la Coagulaci\u00f3n (RMTC) \u2013un registro mundial que recolecta datos m\u00e9dicos estandarizados sobre personas con hemofilia\u2013 desempe\u00f1a un significativo papel en este proceso. El Programa internacional de integraci\u00f3n de datos forma parte del RMTC y se cre\u00f3 con el prop\u00f3sito de posibilitar la combinaci\u00f3n de datos provenientes de registros de hemofilia ya existentes.<\/p>\n<p><em>Haemophilia <\/em>\u2013el peri\u00f3dico oficial de la FMH\u2013 recientemente abord\u00f3 la manera en la que, en el marco del Programa internacional de integraci\u00f3n de datos del RMTC, datos de Tailandia se agregaron con \u00e9xito al RMTC. El art\u00edculo titulado <a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/full\/10.1111\/hae.14496\" target=\"_blank\" rel=\"noopener\"><em>Direct transfer of data of people with haemophilia from the Thai Haemophilia Treatment Centre Registry to the World Bleeding Disorders Registry of the World Federation of Hemophilia<\/em><\/a> (Transferencia directa de datos de personas con hemofilia del Registro del Centro de Tratamiento de Hemofilia Tailand\u00e9s al Registro Mundial de Trastornos de la Coagulaci\u00f3n de la Federaci\u00f3n Mundial de Hemofilia) describe la manera en la que la Sociedad Tailandesa de Hematolog\u00eda (STH) y la FMH combinaron datos del registro de trastornos de la coagulaci\u00f3n hereditarios de la STH con la base de datos del RMTC, eliminando as\u00ed la duplicaci\u00f3n en el ingreso de datos.<\/p>\n<p>Como resultado de esta colaboraci\u00f3n, en 2021, el conjunto de datos b\u00e1sicos y ampliados de 300 pacientes tailandeses con hemofilia A y B se integr\u00f3 con \u00e9xito al RMTC. Durante los pr\u00f3ximos a\u00f1os, la FMH continuar\u00e1 colaborando con la STH en el marco del Programa internacional de integraci\u00f3n de datos del RMTC.<\/p>\n<p>Para leer el art\u00edculo completo en <em>Haemophilia<\/em> haga clic <a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/full\/10.1111\/hae.14496\" target=\"_blank\" rel=\"noopener\">aqu\u00ed<\/a>. Para obtener informaci\u00f3n detallada sobre los datos transferidos del registro de la STH al RMTC haga clic <a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/12\/WBDR-detailed-infomation-data-transfer.pdf\" target=\"_blank\" rel=\"noopener\">aqu\u00ed<\/a> (informaci\u00f3n disponible solamente en ingl\u00e9s en ambos enlaces).<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>La Federaci\u00f3n Mundial de Hemofilia (FMH) se dedica de manera importante a apoyar labores de cabildeo basadas en pruebas cient\u00edficas y actividades de investigaci\u00f3n, as\u00ed como a mejorar el ejercicio de la medicina entre sus organizaciones nacionales miembros (ONM) y centros de tratamiento de hemofilia (CTH). <\/p>\n","protected":false},"author":13,"featured_media":29741,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[119,204],"tags":[],"search-category":[85],"class_list":["post-29747","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-education-es","category-investigacion-y-recoleccion-de-datos","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - 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