{"id":29560,"date":"2020-04-30T09:00:00","date_gmt":"2020-04-30T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/dia-mundial-de-la-hemofilia-2020-el-mundo-participa\/"},"modified":"2023-02-14T09:29:28","modified_gmt":"2023-02-14T14:29:28","slug":"dia-mundial-de-la-hemofilia-2020-el-mundo-participa","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/dia-mundial-de-la-hemofilia-2020-el-mundo-participa\/","title":{"rendered":"D\u00eda mundial de la hemofilia 2020: El mundo participa"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"29560\" class=\"elementor elementor-29560 elementor-29545\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4471732 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4471732\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-87bb135\" data-id=\"87bb135\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-139bd1a elementor-widget elementor-widget-text-editor\" data-id=\"139bd1a\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>El 17 de abril de 2020 se celebr\u00f3 el D\u00eda mundial de la hemofilia, y el tema de \u201cParticipa +\u201d reverber\u00f3 en todo el mundo a pesar de los desaf\u00edos que representa la actual crisis causada por el COVID-19. Desde todos los rincones del planeta, personas de la comunidad mundial de trastornos de la coagulaci\u00f3n hicieron suya, virtualmente, la visi\u00f3n de la FMH de\u00a0<em>Tratamiento para todos<\/em>. En redes sociales y en\u00a0<a href=\"http:\/\/worldhemophiliaday.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">worldhemophiliaday.org<\/a>, nuestra microp\u00e1gina Internet del D\u00eda mundial de la hemofilia, personas de todos lados compartieron sus historias con una sinceridad conmovedora.<\/p>\n<p>Los espacios de la FMH en\u00a0<a href=\"https:\/\/www.facebook.com\/wfhemophilia\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook<\/a>,\u00a0<a href=\"https:\/\/www.linkedin.com\/company\/world-federation-of-hemophilia\/?viewAsMember=true\" target=\"_blank\" rel=\"noopener noreferrer\">LinkedIn<\/a>\u00a0y\u00a0<a href=\"https:\/\/twitter.com\/wfhemophilia?lang=en\" target=\"_blank\" rel=\"noopener noreferrer\">Twitter<\/a>\u00a0se actualizaron cientos de veces durante el gran d\u00eda. Nuestra\u00a0<a href=\"http:\/\/worldhemophiliaday.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">microp\u00e1gina<\/a>\u00a0del D\u00eda mundial de la hemofilia, dise\u00f1ada para ofrecer a los visitantes informaci\u00f3n sobre trastornos de la coagulaci\u00f3n hereditarios, al igual que materiales informativos para apoyarlos en la creaci\u00f3n de sus propias actividades, tambi\u00e9n resultaron muy populares. Cerca de 4,700 personas visitaron la plataforma, y las secciones de la microp\u00e1gina fueron vistas m\u00e1s de 11,000 veces. En la plataforma se publicaron m\u00e1s de 300 historias a trav\u00e9s de las cuales las personas compartieron sus experiencias personales de lo que implica vivir con un trastorno de la coagulaci\u00f3n o, en algunos casos, de conocer a alguien que padece estos trastornos<strong>.<\/strong><\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-c836f0b elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"c836f0b\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-0adf85a\" data-id=\"0adf85a\" data-element_type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b3ad0ee elementor-view-default elementor-widget elementor-widget-icon\" data-id=\"b3ad0ee\" data-element_type=\"widget\" data-widget_type=\"icon.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-icon-wrapper\">\n\t\t\t<div class=\"elementor-icon\">\n\t\t\t<i aria-hidden=\"true\" class=\"fas fa-quote-left\"><\/i>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-e853d0a\" data-id=\"e853d0a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-db01350 elementor-widget elementor-widget-heading\" data-id=\"db01350\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h2 class=\"elementor-heading-title elementor-size-default\">El D\u00eda mundial de la hemofilia es un d\u00eda para celebrar nuestra dedicaci\u00f3n y nuestra ardua labor. Es tambi\u00e9n un d\u00eda para reconocer y agradecer a los profesionales de la salud tan dedicados a nuestra causa. Est\u00e1n ah\u00ed para apoyar y conectar a nuestra comunidad, particularmente ahora, durante los desaf\u00edos que presenta la pandemia de COVID-19.<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-04cd146 elementor-widget elementor-widget-heading\" data-id=\"04cd146\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<p class=\"elementor-heading-title elementor-size-default\">- Alain Baumann, Director ejecutivo de la FMH<\/p>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<div class=\"elementor-element elementor-element-8cec60a elementor-widget elementor-widget-text-editor\" data-id=\"8cec60a\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Esta vez tambi\u00e9n establecimos un \u201cr\u00e9cord mundial\u201d. Noventa y ocho edificaciones de todo el mundo participaron en la campa\u00f1a \u201cIluminarse de rojo\u201d de este a\u00f1o. Las im\u00e1genes de estas edificaciones se compartieron en redes sociales a escala mundial.<\/p>\n<p>Nuestra microp\u00e1gina del D\u00eda mundial de la hemofilia \u2012<a href=\"http:\/\/worldhemophiliaday.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">worldhemophiliaday.org<\/a>\u2012 sigue activa, de manera que si desea saber m\u00e1s acerca del D\u00eda mundial de la hemofilia o leer algunas motivadoras historias, simplemente haga\u00a0<a href=\"http:\/\/worldhemophiliaday.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">clic aqu\u00ed<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5a1aa2e elementor-widget elementor-widget-text-editor\" data-id=\"5a1aa2e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p><em>La FMH desea agradecer el apoyo continuo de las empresas patrocinadoras del D\u00efa mundial de la hemofilia 2020:\u00a0Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., GC Pharma, Grifols, Kedrion, Novo Nordisk, Octapharma, Pfizer, Precision BioLogic, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda, y uniQure.<\/em><\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>El 17 de abril de 2020 se celebr\u00f3 el D\u00eda mundial de la hemofilia, y el tema de \u201cParticipa +\u201d reverber\u00f3 en todo el mundo a pesar de los desaf\u00edos que representa la actual crisis causada por el COVID-19.<\/p>\n","protected":false},"author":3,"featured_media":29549,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[194],"tags":[],"search-category":[320],"class_list":["post-29560","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dia-mundial-de-la-hemofilia","search-category-article-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - 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