{"id":191693,"date":"2026-11-12T09:00:24","date_gmt":"2026-11-12T14:00:24","guid":{"rendered":"https:\/\/wfh.org\/article\/recien-publicado-informe-del-sondeo-mundial-anual-2025\/"},"modified":"2026-11-12T09:08:04","modified_gmt":"2026-11-12T14:08:04","slug":"recien-publicado-informe-del-sondeo-mundial-anual-2025","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/recien-publicado-informe-del-sondeo-mundial-anual-2025\/","title":{"rendered":"Reci\u00e9n publicado: Informe del Sondeo Mundial Anual 2025"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"191693\" class=\"elementor elementor-191693 elementor-191682\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-3039afd elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"3039afd\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-b7af997\" data-id=\"b7af997\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6c08061 elementor-widget elementor-widget-text-editor\" data-id=\"6c08061\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>El <a href=\"https:\/\/elearning.wfh.org\/es\/resource\/informe-del-sondeo-mundial-anual-2025\/\" target=\"_blank\" rel=\"noopener\">informe de este a\u00f1o<\/a> abarca datos de 126 pa\u00edses, lo que representa una tasa de participaci\u00f3n del 83% de las organizaciones nacionales miembro (ONM) de la FMH. El SMA recopila informaci\u00f3n demogr\u00e1fica y datos relacionados con el tratamiento de personas con hemofilia, enfermedad de Von Willebrand (EVW), deficiencias poco comunes de factores de la coagulaci\u00f3n y trastornos plaquetarios hereditarios, y ofrece valiosas perspectivas sobre tendencias mundiales, avances y desaf\u00edos actuales para el diagn\u00f3stico y la atenci\u00f3n.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c02ef5 elementor-widget elementor-widget-heading\" data-id=\"7c02ef5\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Hallazgos clave del SMA 2025<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fb6c609 elementor-widget elementor-widget-text-editor\" data-id=\"fb6c609\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>El Informe destaca varios hallazgos importantes:<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cede7f4 elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"cede7f4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-check\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><strong>513,523 PCTC representadas <\/strong>en el conjunto de datos hist\u00f3ricos mundiales, los cuales abarcan la informaci\u00f3n m\u00e1s reciente disponible de 156 pa\u00edses. <\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-check\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><strong>426,911 PCTC reportadas <\/strong>por los 126 pa\u00edses que participaron en el sondeo de 2025.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-check\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><strong>, con solo el 9% del n\u00famero de personas esperadas con hemofilia identificadas en \u00c1frica, en comparaci\u00f3n con el 82% identificadas en Europa.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-check\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><strong>116,257 mujeres y ni\u00f1as con trastornos de la coagulaci\u00f3n identificadas  <\/strong> en los datos del Informe 2025.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-check\"><\/i>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\"><strong>Disparidades persistentes en la disponibilidad del tratamiento<\/strong>, particularmente entre pa\u00edses con recursos altos y bajos, lo cual destaca la necesidad de la continuidad de los esfuerzos a fin de mejorar el acceso a la atenci\u00f3n.<\/span>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fd9b18e elementor-widget elementor-widget-image\" data-id=\"fd9b18e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/elearning.wfh.org\/resource\/report-on-the-annual-global-survey-2025\/\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/elementor\/thumbs\/AGS-2025-report-thumbnail-rw7mz5j75qnxfehzwityx2a3pou41dhd8b76lpzgi8.jpg\" title=\"AGS-2025-report-thumbnail\" alt=\"Report on the Annual Global Survey (AGS) 2025 thumbnail\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-0c4b196 elementor-widget elementor-widget-spacer\" data-id=\"0c4b196\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a3c779d elementor-widget elementor-widget-heading\" data-id=\"a3c779d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Transformar los datos en acciones<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-853aad7 elementor-widget elementor-widget-text-editor\" data-id=\"853aad7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Durante m\u00e1s de 25 a\u00f1os, el SMA ha proporcionado a ONM, profesionales de atenci\u00f3n m\u00e9dica, investigadores y legisladores informaci\u00f3n indispensable para una mejor comprensi\u00f3n del panorama de los trastornos de la coagulaci\u00f3n.<\/p>\n<p>M\u00e1s all\u00e1 de la documentaci\u00f3n de los avances, el informe sirve como un importante recurso para identificar lagunas en el diagn\u00f3stico y el tratamiento; para apoyar actividades de cabildeo basadas en pruebas; y para documentar pol\u00edticas de salud y planificaci\u00f3n program\u00e1tica.<\/p>\n<p>Estos hallazgos refuerzan la importancia de la colaboraci\u00f3n continua y de la recopilaci\u00f3n de datos confiables a fin de impulsar el acceso equitativo a la atenci\u00f3n para las PCTC en todo el mundo.<\/p>\n<p>La FMH expresa su sincero reconocimiento a todas las ONM participantes por su compromiso constante con la recopilaci\u00f3n y el intercambio de datos. Sus aportaciones son indispensables para fortalecer nuestra comprensi\u00f3n de la comunidad mundial de trastornos de la coagulaci\u00f3n y para apoyar los esfuerzos dirigidos a mejorar la atenci\u00f3n.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-27edc1d elementor-align-center elementor-widget elementor-widget-button\" data-id=\"27edc1d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/elearning.wfh.org\/resource\/report-on-the-annual-global-survey-2025\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Lea el Informe del SMA 2025<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b5abe9a elementor-widget elementor-widget-text-editor\" data-id=\"b5abe9a\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Tambi\u00e9n se encuentran disponibles en l\u00ednea cuadros, gr\u00e1ficas y datos complementarios interactivos, <a href=\"https:\/\/shiny.wfh.org\/ags\/\" target=\"_blank\" rel=\"noopener\">aqu\u00ed<\/a>.<\/p>\n<p>Si desea obtener m\u00e1s informaci\u00f3n sobre el Sondeo Mundial Anual de la FMH escriba a <a href=\"mailto:globalsurvey@wfh.org\" target=\"_blank\" rel=\"noopener\">globalsurvey@wfh.org<\/a>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>La Federaci\u00f3n Mundial de Hemofilia (FMH) tiene el gusto de anunciar la publicaci\u00f3n del Informe del Sondeo Mundial Anual (SMA) 2025, el cual ofrece un panorama mundial actualizado sobre la identificaci\u00f3n de pacientes y el acceso a la atenci\u00f3n para personas con trastornos de la coagulaci\u00f3n (PCTC) alrededor del mundo.<\/p>\n","protected":false},"author":13,"featured_media":191670,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[331,335,362,360],"tags":[],"search-category":[85],"class_list":["post-191693","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-1","category-featured-1-es","category-sondeo-mundial-anual-sma","category-wfh-annual-global-survey-ags","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v28.8 (Yoast SEO v28.8) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Reci\u00e9n publicado: Informe del Sondeo Mundial Anual 2025 | FMH - Federaci\u00f3n Mundial de Hemofilia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/es\/article\/recien-publicado-informe-del-sondeo-mundial-anual-2025\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Reci\u00e9n publicado: Informe del Sondeo Mundial Anual 2025\" \/>\n<meta property=\"og:description\" content=\"La Federaci\u00f3n Mundial de Hemofilia (FMH) tiene el gusto de anunciar la publicaci\u00f3n del Informe del Sondeo Mundial Anual (SMA) 2025, el cual ofrece un panorama mundial actualizado sobre la identificaci\u00f3n de pacientes y el acceso a la atenci\u00f3n para personas con trastornos de la coagulaci\u00f3n (PCTC) alrededor del mundo.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/es\/article\/recien-publicado-informe-del-sondeo-mundial-anual-2025\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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