{"id":14992,"date":"2021-04-15T09:00:00","date_gmt":"2021-04-15T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/tome-medidas-hoy-por-el-futuro-de-ellos-manana\/"},"modified":"2024-07-11T11:39:14","modified_gmt":"2024-07-11T15:39:14","slug":"tome-medidas-hoy-por-el-futuro-de-ellos-manana","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/tome-medidas-hoy-por-el-futuro-de-ellos-manana\/","title":{"rendered":"Tome medidas hoy. Por el futuro de ellos ma\u00f1ana."},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"14992\" class=\"elementor elementor-14992 elementor-3654\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-e96e009 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e96e009\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-383ca82\" data-id=\"383ca82\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-574a275 elementor-widget elementor-widget-text-editor\" data-id=\"574a275\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<div class=\"vc_row wpb_row vc_row-fluid mpc-row\">\n<div class=\"wpb_column vc_column_container vc_col-sm-6 mpc-column\" data-column-id=\"mpc_column-6161d9fc43de978\">\n<div class=\"vc_column-inner \">\n<div class=\"wpb_wrapper\">\n<div class=\"wpb_text_column wpb_content_element \">\n<div class=\"wpb_wrapper\">\n<p>Imagine por un momento lo dif\u00edcil que habr\u00eda sido este a\u00f1o pasado si no hubiera tenido acceso estable a internet. O si un viaje de cuatro horas en un autob\u00fas repleto fuera la \u00fanica manera de poder ver a su m\u00e9dico. Esta es la realidad de muchas personas que padecen un trastorno de la coagulaci\u00f3n. Aislamiento, miedo y falta de acceso al tratamiento podr\u00edan haberse convertido muy r\u00e1pido en la norma para miles de personas de pa\u00edses en v\u00edas de desarrollo de todo el mundo. Afortunadamente, el impacto de la situaci\u00f3n se mitig\u00f3 gracias al compromiso de voluntarios, aliados y simpatizantes de la Federaci\u00f3n Mundial de Hemofilia (FMH), quienes se unieron en solidaridad para demostrar que, si bien estemos separados por ahora, nunca estamos solos.<\/p>\n<p>En un a\u00f1o en el que enfrentamos desaf\u00edos sin precedente, estuvimos ah\u00ed para apoyarnos entre s\u00ed. La FMH ofreci\u00f3 importantes programas de capacitaci\u00f3n en l\u00ednea; auspici\u00f3 la primera\u00a0<a href=\"https:\/\/news.wfh.org\/es\/aspectos-destacados-de-la-primera-cumbre-mundial-sobre-mujeres-y-ninas-con-trastornos-de-la-coagulacion\/\" target=\"_blank\" rel=\"noopener noreferrer\">Cumbre Mundial sobre Mujeres y Ni\u00f1as con Trastornos de la Coagulaci\u00f3n<\/a>, y proporcion\u00f3 a nuestra comunidad las herramientas y el apoyo que necesitaba a fin de continuar abogando por un mejor acceso al tratamiento y la atenci\u00f3n en un mundo que evoluciona r\u00e1pidamente.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"wpb_column vc_column_container vc_col-sm-6 mpc-column\">\n<div class=\"vc_column-inner \">\n<div class=\"wpb_wrapper\">\n<div class=\"wpb_single_image wpb_content_element vc_align_left\">\n<figure class=\"wpb_wrapper vc_figure\"><a class=\"vc_single_image-wrapper   vc_box_border_grey\" href=\"https:\/\/give.wfh.org\/es\/\" target=\"_self\"><img fetchpriority=\"high\" decoding=\"async\" class=\"vc_single_image-img attachment-full\" src=\"https:\/\/news.wfh.org\/wp-content\/uploads\/ES-Infographic.png\" sizes=\"(max-width: 800px) 100vw, 800px\" srcset=\"https:\/\/news.wfh.org\/wp-content\/uploads\/ES-Infographic.png 800w, https:\/\/news.wfh.org\/wp-content\/uploads\/ES-Infographic-768x1920.png 768w, https:\/\/news.wfh.org\/wp-content\/uploads\/ES-Infographic-432x1080.png 432w\" alt=\"\" width=\"800\" height=\"2000\" \/><\/a><\/figure>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"vc_row wpb_row vc_row-fluid mpc-row\">\n<div class=\"wpb_column vc_column_container vc_col-sm-12 mpc-column\">\n<div class=\"vc_column-inner \">\n<div class=\"wpb_wrapper\">\n<div class=\"wpb_text_column wpb_content_element \">\n<div class=\"wpb_wrapper\">\n<p>En los pr\u00f3ximos meses esperamos que las campa\u00f1as de vacunaci\u00f3n permitan a las personas visitar a sus familiares y volver a una vida cotidiana \u201cnormal\u201d. Sin embargo, para muchas personas, los efectos a largo plazo de la pandemia perdurar\u00e1n; de modo que debemos trabajar unidos a fin de mitigar este impacto para poder continuar avanzando con miras al logro de nuestra visi\u00f3n de\u00a0<em>Tratamiento para todos<\/em>.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d4f28ca elementor-widget elementor-widget-heading\" data-id=\"d4f28ca\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h4 class=\"elementor-heading-title elementor-size-default\">\u00a1Este D\u00eda mundial de la hemofilia usted puede ayudar! Tome medidas y haga un donativo para ayudarnos a continuar satisfaciendo las necesidades de la comunidad mundial de trastornos de la coagulaci\u00f3n.  <\/h4>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7c809f6 elementor-widget elementor-widget-text-editor\" data-id=\"7c809f6\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>Su donativo en el D\u00eda mundial de la hemofilia tendr\u00e1 los siguientes efectos:<\/p>\n<ul>\n<li>Asegurarnos de proporcionar a l\u00edderes de organizaciones de pacientes y proveedores de atenci\u00f3n m\u00e9dica las herramientas que necesitan para permanecer conectados en nuestra nueva realidad.<\/li>\n<li>Ofrecer capacitaci\u00f3n y orientaci\u00f3n a fin de ayudar a nuestra comunidad a abogar por acceso al tratamiento y la atenci\u00f3n.<\/li>\n<li>Ayudarnos a continuar dando voz a mujeres y ni\u00f1as con trastornos de la coagulaci\u00f3n que luchan por reconocimiento y acceso a la atenci\u00f3n.<\/li>\n<li>Proporcionarnos la flexibilidad necesaria para responder r\u00e1pidamente a las necesidades incipientes y en constante evoluci\u00f3n de nuestra comunidad.<\/li>\n<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2134869 elementor-widget elementor-widget-text-editor\" data-id=\"2134869\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>\u00a1Este a\u00f1o,\u00a0<strong>la familia de Frank Schnabel, fundador de la FMH, igualar\u00e1 los donativos recibidos entre el 15 y el 19 de abril, hasta por una cantidad total de $2,500!<\/strong><\/p>\n<p>Transforme su compasi\u00f3n en acci\u00f3n y\u00a0<a href=\"https:\/\/give.wfh.org\/es\/\" target=\"_blank\" rel=\"noopener noreferrer\">haga un donativo<\/a>\u00a0para que\u00a0<a href=\"https:\/\/give.wfh.org\/es\/\" target=\"_blank\" rel=\"noopener noreferrer\">las medidas que tome hoy<\/a>\u00a0can incidan en el futuro de ellos ma\u00f1ana.<\/p>\n<p>Obtenga m\u00e1s informaci\u00f3n sobre el D\u00eda mundial de la hemofilia y la manera en la que usted puede participar haciendo clic\u00a0<a href=\"https:\/\/news.wfh.org\/es\/ya-esta-disponible-el-kit-de-herramientas-del-dia-mundial-de-la-hemofilia-2021-para-redes-sociales\/\" target=\"_blank\" rel=\"noopener noreferrer\">aqu\u00ed<\/a>.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Imagine por un momento lo dif\u00edcil que habr\u00eda sido este a\u00f1o pasado si no hubiera tenido acceso estable a internet. O si un viaje de cuatro horas en un autob\u00fas repleto fuera la \u00fanica manera de poder ver a su m\u00e9dico.<\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[169,40,150],"tags":[],"search-category":[85],"class_list":["post-14992","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-events-2","category-philanthropy","category-world-hemophilia-day","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Tome medidas hoy. 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O si un viaje de cuatro horas en un autob\u00fas repleto fuera la \u00fanica manera de poder ver a su m\u00e9dico.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/es\/article\/tome-medidas-hoy-por-el-futuro-de-ellos-manana\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - Federaci\u00f3n Mundial de Hemofilia\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-04-15T13:00:00+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-07-11T15:39:14+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/01\/Placeholder-Result-V1.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1920\" \/>\n\t<meta property=\"og:image:height\" content=\"1080\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Electra Rozakis\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Electra Rozakis\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/es\/article\/tome-medidas-hoy-por-el-futuro-de-ellos-manana\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/tome-medidas-hoy-por-el-futuro-de-ellos-manana\/\"},\"author\":{\"name\":\"Electra Rozakis\",\"@id\":\"https:\/\/wfh.org\/es\/#\/schema\/person\/590cf0d3a057aaef67b154adeffbf31d\"},\"headline\":\"Tome medidas hoy. 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