{"id":14937,"date":"2021-05-07T09:00:00","date_gmt":"2021-05-07T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/continuar-un-legado-familiar-mes-a-mes\/"},"modified":"2024-04-21T12:29:27","modified_gmt":"2024-04-21T16:29:27","slug":"continuar-un-legado-familiar-mes-a-mes","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/continuar-un-legado-familiar-mes-a-mes\/","title":{"rendered":"Continuar un legado familiar, mes a mes"},"content":{"rendered":"\t\t
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Los primeros recuerdos de Gina Schnabel son de su padre \u2014Frank Schnabel, fundador de la Federaci\u00f3n Mundial de Hemofilia\u2014 trabajando con voluntarios de todo el mundo para crear conciencia sobre los trastornos de la coagulaci\u00f3n. Ella comprend\u00eda perfectamente bien el grave impacto que un trastorno de la coagulaci\u00f3n hereditario no diagnosticado puede tener en alguien, y fue testigo de primera mano del impacto positivo de la labor de su padre. No obstante, tardo d\u00e9cadas en darse cuenta de lo que realmente significaba para ella. \u201cPas\u00e9 desapercibida, a pesar de que viv\u00ed y respir\u00e9 la hemofilia desde el primer d\u00eda\u201d, comparti\u00f3 Gina durante la reciente\u00a0Cumbre mundial de la FMH sobre mujeres y ni\u00f1as con trastornos de la coagulaci\u00f3n hereditarios<\/a>.<\/em><\/p>\n

Lamentablemente, la historia de Gina es similar a la de miles de otras personas de todo el mundo. \u201cNo fue sino hasta la cincuentena que realmente comprend\u00ed e hice la distinci\u00f3n de que no era solamente portadora, sino alguien con hemofilia, y tuvieron que presentarse unas consecuencias bastante graves para que eso ocurriera.\u201d Es por eso que Gina decidi\u00f3 apoyar la labor de la FMH mediante un donativo mensual. A la vez que se siente orgullosa de continuar con el legado de su familia, el impacto positivo que la FMH tiene en las vidas de los pacientes es lo que la motiva a apoyar nuestra misi\u00f3n.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Los donativos mensuales constituyen una manera asequible de ayudar a los pacientes que tienen poco o nulo acceso a la atenci\u00f3n.<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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La pandemia de COVID-19 ha tenido un impacto importante en las personas con trastornos de la coagulaci\u00f3n, incrementando la disparidad en el acceso al tratamiento y a pr\u00e1cticas m\u00e9dicas seguras. Tomar la decisi\u00f3n de convertirse en donante mensual permitir\u00e1 a la FMH contar con una fuente de recursos estable durante un periodo incierto, lo que le brindar\u00e1 flexibilidad para responder a nuevas y cambiantes necesidades, conforme nuestro mundo contin\u00faa evolucionando. Al unirse a este especial grupo de personas generadoras de cambios mensuales, nos ayuda a trabajar con miras a la sustentabilidad.<\/p>\n

Todos creemos que el lugar donde se nace no deber\u00eda determinar el acceso a la atenci\u00f3n que se recibe. Transforme su compasi\u00f3n en acci\u00f3n convirti\u00e9ndose hoy en una persona\u00a0generadora de cambios mensual<\/a>es<\/u>.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Los primeros recuerdos de Gina Schnabel son de su padre \u2014Frank Schnabel, fundador de la Federaci\u00f3n Mundial de Hemofilia\u2014 trabajando con voluntarios de todo el mundo para crear conciencia sobre los trastornos de la coagulaci\u00f3n. <\/p>\n","protected":false},"author":3,"featured_media":19564,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[181],"tags":[],"search-category":[85],"class_list":["post-14937","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-filantropia","search-category-article"],"yoast_head":"\nContinuar un legado familiar, mes a mes | FMH - Federaci\u00f3n Mundial de Hemofilia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/es\/article\/continuar-un-legado-familiar-mes-a-mes\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Continuar un legado familiar, mes a mes\" \/>\n<meta property=\"og:description\" content=\"Los primeros recuerdos de Gina Schnabel son de su padre \u2014Frank Schnabel, fundador de la Federaci\u00f3n Mundial de Hemofilia\u2014 trabajando con voluntarios de todo el mundo para crear conciencia sobre los trastornos de la coagulaci\u00f3n.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/es\/article\/continuar-un-legado-familiar-mes-a-mes\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - 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