{"id":14930,"date":"2021-05-12T09:00:00","date_gmt":"2021-05-12T13:00:00","guid":{"rendered":"https:\/\/wfh.org\/dia-mundial-de-la-hemofilia-2021-una-celebracion-mundial\/"},"modified":"2023-02-14T09:28:21","modified_gmt":"2023-02-14T14:28:21","slug":"dia-mundial-de-la-hemofilia-2021-una-celebracion-mundial","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/dia-mundial-de-la-hemofilia-2021-una-celebracion-mundial\/","title":{"rendered":"D\u00eda mundial de la hemofilia 2021: Una celebraci\u00f3n mundial"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"14930\" class=\"elementor elementor-14930 elementor-841\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-562ef87 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"562ef87\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3940fa1\" data-id=\"3940fa1\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-3f3d0aa elementor-widget elementor-widget-video\" data-id=\"3f3d0aa\" data-element_type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/mFXVs91wk7k&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-video .elementor-widget-container{overflow:hidden;transform:translateZ(0)}.elementor-widget-video .elementor-wrapper{aspect-ratio:var(--video-aspect-ratio)}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{height:100%;width:100%;display:flex;border:none;background-color:#000}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-wrapper{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-wrapper iframe,.elementor-widget-video .elementor-wrapper video{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .elementor-open-inline .elementor-custom-embed-image-overlay{position:absolute;top:0;right:0;bottom:0;left:0;background-size:cover;background-position:50%}.elementor-widget-video .elementor-custom-embed-image-overlay{cursor:pointer;text-align:center}.elementor-widget-video .elementor-custom-embed-image-overlay:hover .elementor-custom-embed-play i{opacity:1}.elementor-widget-video .elementor-custom-embed-image-overlay img{display:block;width:100%;aspect-ratio:var(--video-aspect-ratio);-o-object-fit:cover;object-fit:cover;-o-object-position:center center;object-position:center center}@supports not (aspect-ratio:1\/1){.elementor-widget-video .elementor-custom-embed-image-overlay{position:relative;overflow:hidden;height:0;padding-bottom:calc(100% \/ var(--video-aspect-ratio))}.elementor-widget-video .elementor-custom-embed-image-overlay img{position:absolute;top:0;right:0;bottom:0;left:0}}.elementor-widget-video .e-hosted-video .elementor-video{-o-object-fit:cover;object-fit:cover}.e-con-inner>.elementor-widget-video,.e-con>.elementor-widget-video{width:var(--container-widget-width);--flex-grow:var(--container-widget-flex-grow)}<\/style>\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-814cb50 elementor-widget elementor-widget-text-editor\" data-id=\"814cb50\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p class=\"\">El 17 de abril se festej\u00f3 el D\u00eda mundial de la hemofilia y, a pesar de los muchos desaf\u00edos impuestos por la pandemia de COVID-19, la comunidad de trastornos de la coagulaci\u00f3n demostr\u00f3 una vez m\u00e1s su resiliencia al reunirse de manera virtual para celebrar con el tema\u00a0<em>Adaptarse al cambio: Preservar la atenci\u00f3n en un mundo nuevo<\/em>. Edificaciones de todo el mundo participaron en la campa\u00f1a\u00a0<em>Iluminarse de rojo<\/em>. Diferentes grupos organizaron eventos virtuales alrededor del mundo. Se compartieron cientos de historias que leyeron miles de personas en la p\u00e1gina internet del D\u00eda mundial de la hemofilia. En resumen, la comunidad mundial de trastornos de la coagulaci\u00f3n realmente se reuni\u00f3 una vez m\u00e1s en una conmovedora manifestaci\u00f3n de solidaridad.<\/p>\r\n<p class=\"\">\u201cNada de esto habr\u00eda sido posible sin las maravillosas campa\u00f1as, eventos y mensajes de concientizaci\u00f3n de nuestras organizaciones nacionales miembros (ONM), organizaciones de hemofilia compa\u00f1eras y aliados corporativos\u201d, afirma C\u00e9sar Garrido, presidente de la FMH. \u201cA nombre de todos en la FMH, gracias por hacer de este D\u00eda mundial de la hemofilia uno muy especial.\u201d Para ver el video de agradecimiento a la comunidad de C\u00e9sar Garrido haga clic en la imagen de video de YouTube que se encuentra arriba.<\/p>\r\n<p class=\"\">El 17 de abril, durante todo el d\u00eda, se publicaron mensajes y comentarios en los espacios de la FMH en\u00a0<a href=\"https:\/\/www.facebook.com\/wfhemophilia\" target=\"_blank\" rel=\"noopener noreferrer\">Facebook<\/a>,\u00a0<a href=\"https:\/\/www.linkedin.com\/company\/world-federation-of-hemophilia\/?viewAsMember=true\" target=\"_blank\" rel=\"noopener noreferrer\">LinkedIn<\/a>\u00a0y\u00a0<a href=\"https:\/\/twitter.com\/wfhemophilia?lang=en\" target=\"_blank\" rel=\"noopener noreferrer\">Twitter<\/a>. Nuestra\u00a0<a href=\"https:\/\/wfh.org\/es\/dia-mundial-de-la-hemofilia\/\" target=\"_blank\" rel=\"noopener noreferrer\">p\u00e1gina internet<\/a>\u00a0del D\u00eda mundial de la hemofilia tambi\u00e9n auspici\u00f3 cientos de historias y comentarios, y 8,000 personas los leyeron y se conectaron con la comunidad.<\/p>\r\n<p class=\"\">Una cifra r\u00e9cord de 100+ edificaciones de todo el mundo se ilumin\u00f3 de rojo, y personas del mundo entero las fotografiaron. Abajo puede ver una peque\u00f1a selecci\u00f3n de dichas im\u00e1genes y puede hacer\u00a0<a href=\"https:\/\/drive.google.com\/drive\/folders\/1Q-AyDMv4OKWbThoviCjoNTFGwC1qgfq4?usp=sharing\" target=\"_blank\" rel=\"noopener noreferrer\">clic aqu\u00ed<\/a>\u00a0para ver toda la colecci\u00f3n. \u00bfTiene su propia fotograf\u00eda de una edificaci\u00f3n iluminada de rojo? \u00a1Si\u00e9ntase en completa libertad de agregarla a la colecci\u00f3n\u00a0<a href=\"https:\/\/drive.google.com\/drive\/folders\/1Q-AyDMv4OKWbThoviCjoNTFGwC1qgfq4?usp=sharing\" target=\"_blank\" rel=\"noopener noreferrer\">aqu\u00ed<\/a>!<\/p>\r\n<p class=\"\">La FMH realiz\u00f3 su primera campa\u00f1a de recaudaci\u00f3n de fondos durante el D\u00eda mundial de la hemofilia, la cual brind\u00f3 a nuestra familia mundial la oportunidad de tomar medidas durante este importante d\u00eda y apoyar nuestros esfuerzos a fin de hacer realidad nuestra visi\u00f3n de\u00a0<em>Tratamiento para todos<\/em>. Estos fondos nos permitir\u00e1n continuar ofreciendo capacitaci\u00f3n y orientaci\u00f3n para apoyar esfuerzos de cabildeo, a la vez que nos proporcionan flexibilidad para responder r\u00e1pidamente a las necesidades de nuestra comunidad conforme estas evolucionan. Todav\u00eda no es demasiado tarde para hacer una aportaci\u00f3n a la campa\u00f1a del D\u00eda mundial de la hemofilia: A\u00fan puede hacer un donativo\u00a0<a href=\"https:\/\/give.wfh.org\/es\/\" target=\"_blank\" rel=\"noopener noreferrer\">aqu\u00ed<\/a>.<\/p>\r\n<p class=\"\">Todav\u00eda hay acceso al micrositio del D\u00eda mundial de la hemofilia \u2012<a href=\"https:\/\/whdstories.wfh.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">worldhemophiliaday.org<\/a>\u2012 de manera que, si quiere leer inspiradoras historias o ver motivadores videos realizados por los miembros de nuestra comunidad, sencillamente haga\u00a0<a href=\"https:\/\/whdstories.wfh.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">clic aqu\u00ed<\/a>.<\/p>\r\nLa FMH desea agradecer el apoyo continuo de los patrocinadores del D\u00eda mundial de la hemofilia 2021: Bayer, BioMarin Pharmaceutical Inc., Biotest, CSL Behring, F. Hoffman-La Roche Ltd., GC Pharma, Grifols, Kedrion, LFB S.A., Novo Nordisk, Octapharma, Pfizer, Precision Biologic, Sanofi Genzyme, Sobi, Spark Therapeutics, Takeda, uniQure.\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-826f1b8 gallery-spacing-custom elementor-widget elementor-widget-image-gallery\" data-id=\"826f1b8\" data-element_type=\"widget\" data-widget_type=\"image-gallery.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-image-gallery .gallery-item{display:inline-block;text-align:center;vertical-align:top;width:100%;max-width:100%;margin:0 auto}.elementor-image-gallery .gallery-item img{margin:0 auto}.elementor-image-gallery .gallery-item .gallery-caption{margin:0}.elementor-image-gallery figure img{display:block}.elementor-image-gallery figure figcaption{width:100%}.gallery-spacing-custom .elementor-image-gallery .gallery-icon{padding:0}@media 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src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Ayuntamiento-de-Jerez-City-Hall-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"Azadi sq. 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loading=\"lazy\" decoding=\"async\" width=\"108\" height=\"108\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Buenos-Aires-Ministry-of-Public-Space-and-Urban-Hygiene-150x150.jpg\" class=\"attachment-thumbnail size-thumbnail\" alt=\"\" \/><\/a>\n\t\t\t<\/div><\/figure><figure class='gallery-item'>\n\t\t\t<div class='gallery-icon landscape'>\n\t\t\t\t<a data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-slideshow=\"826f1b8\" data-elementor-lightbox-title=\"Buenos Aires Planetarium\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6OTAyLCJ1cmwiOiJodHRwczpcL1wvd2ZoLm9yZ1wvd3AtY29udGVudFwvdXBsb2Fkc1wvMjAyMVwvMTFcL0J1ZW5vcy1BaXJlcy1QbGFuZXRhcml1bS1zY2FsZWQuanBnIiwic2xpZGVzaG93IjoiODI2ZjFiOCJ9\" href='https:\/\/wfh.org\/wp-content\/uploads\/2021\/11\/Buenos-Aires-Planetarium-scaled.jpg'><img loading=\"lazy\" decoding=\"async\" width=\"108\" height=\"108\" 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coagulaci\u00f3n demostr\u00f3 una vez m\u00e1s su resiliencia al reunirse de manera virtual para celebrar con el tema Adaptarse al cambio: Preservar la atenci\u00f3n en un mundo nuevo. <\/p>\n","protected":false},"author":3,"featured_media":849,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[194],"tags":[],"search-category":[320],"class_list":["post-14930","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-dia-mundial-de-la-hemofilia","search-category-article-es"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>D\u00eda mundial de la hemofilia 2021: Una celebraci\u00f3n mundial | FMH - Federaci\u00f3n Mundial de Hemofilia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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