{"id":143580,"date":"2025-05-23T09:00:42","date_gmt":"2025-05-23T13:00:42","guid":{"rendered":"https:\/\/wfh.org\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/"},"modified":"2025-06-04T11:08:03","modified_gmt":"2025-06-04T15:08:03","slug":"se-publica-el-informe-2024-sobre-el-impacto-del-rmtc","status":"publish","type":"post","link":"https:\/\/wfh.org\/es\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/","title":{"rendered":"Se publica el Informe 2024 sobre el impacto del RMTC"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"143580\" class=\"elementor elementor-143580 elementor-143557\" data-elementor-post-type=\"post\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-cd25fa7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"cd25fa7\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fb430f9\" data-id=\"fb430f9\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1528a04 elementor-widget elementor-widget-text-editor\" data-id=\"1528a04\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>Al 31 de diciembre de 2024, el <a href=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/registro-mundial-de-trastornos-de-la-coagulacion\/\" target=\"_blank\" rel=\"noopener\">RMTC<\/a> abarca datos de m\u00e1s de 17,000 personas atendidas en 124 centros de tratamiento de hemofilia (CTH) de 47 pa\u00edses. Este creciente conjunto de datos ofrece informaci\u00f3n detallada sobre patrones de atenci\u00f3n, disparidades, y obst\u00e1culos para el tratamiento que enfrentan PCH y PCEVW.<\/p>\n<p>El <a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024.pdf\" target=\"_blank\" rel=\"noopener\">Informe 2024 sobre el impacto del RMTC<\/a> describe un a\u00f1o de avances significativos en la recopilaci\u00f3n de datos, el desarrollo de programas y la colaboraci\u00f3n a escala mundial. Destaca la manera en la que se utilizan los datos del RMTC para identificar brechas en la atenci\u00f3n, documentar la investigaci\u00f3n, y fortalecer actividades de cabildeo nacionales e internacionales con el prop\u00f3sito de mejorar los resultados de salud y promover la equidad.<\/p>\n<p>Los siguientes son algunos datos clave obtenidos del informe:<\/p>\n<p><strong>Hemofilia<\/strong><\/p>\n<ul>\n<li>47 pa\u00edses representados<\/li>\n<li>124 CTH participantes<\/li>\n<li>15,395 pacientes inscritos<\/li>\n<li>15% de incremento desde el 2023<\/li>\n<\/ul>\n<p><strong>Enfermedad de Von Willebrand (desde 2023)<\/strong><\/p>\n<ul>\n<li>24 pa\u00edses representados<\/li>\n<li>53 CTH participantes<\/li>\n<li>1,664 pacientes inscritos<\/li>\n<li>67% de incremento en PCEVW inscritas desde 2023<\/li>\n<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8fb8c97 elementor-widget elementor-widget-image\" data-id=\"8fb8c97\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"\" target=\"_blank\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1200\" height=\"937\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024-data.jpg\" class=\"attachment-full size-full wp-image-143569\" alt=\"2024 WBDR Impact Report published\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024-data.jpg 1200w, https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024-data-138x108.jpg 138w, https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024-data-768x600.jpg 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5e7bebb elementor-widget elementor-widget-text-editor\" data-id=\"5e7bebb\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>El RMTC contin\u00faa fungiendo como referente mundial para la comprensi\u00f3n de las pr\u00e1cticas m\u00e9dicas y para abordar las desigualdades en la atenci\u00f3n; y su \u00e9xito se debe al compromiso de proveedores de atenci\u00f3n m\u00e9dica, personas con trastornos de la coagulaci\u00f3n y centros de tratamiento que aportaron su tiempo y sus datos a este importante esfuerzo.<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ec12c60 elementor-widget elementor-widget-image\" data-id=\"ec12c60\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024.pdf\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"600\" height=\"776\" src=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024-thumbnail.jpg\" class=\"attachment-full size-full wp-image-143575\" alt=\"2024 WBDR Impact Report thumbnail\" srcset=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024-thumbnail.jpg 600w, https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024-thumbnail-84x108.jpg 84w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6db9f2f elementor-widget elementor-widget-spacer\" data-id=\"6db9f2f\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 25-07-2024 *\/\n.elementor-column .elementor-spacer-inner{height:var(--spacer-size)}.e-con{--container-widget-width:100%}.e-con-inner>.elementor-widget-spacer,.e-con>.elementor-widget-spacer{width:var(--container-widget-width,var(--spacer-size));--align-self:var(--container-widget-align-self,initial);--flex-shrink:0}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container,.e-con>.elementor-widget-spacer>.elementor-widget-container{height:100%;width:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer{height:100%}.e-con-inner>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner,.e-con>.elementor-widget-spacer>.elementor-widget-container>.elementor-spacer>.elementor-spacer-inner{height:var(--container-widget-height,var(--spacer-size))}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty,.e-con>.elementor-widget-spacer.elementor-widget-empty{position:relative;min-height:22px;min-width:22px}.e-con-inner>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon,.e-con>.elementor-widget-spacer.elementor-widget-empty .elementor-widget-empty-icon{position:absolute;top:0;bottom:0;left:0;right:0;margin:auto;padding:0;width:22px;height:22px}<\/style>\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a0070da elementor-widget elementor-widget-text-editor\" data-id=\"a0070da\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<p>La FMH exhorta a otros CTH a sumarse a la iniciativa del RMTC de modo que podamos continuar ampliando esta importante oferta para nuestra comunidad. Al hacerlo contribuir\u00e1n al logro de nuestra misi\u00f3n compartida de <em>Tratamiento para todos<\/em>.<\/p>\n<p>Para leer el Informe 2024 sobre el impacto del RMTC (en ingl\u00e9s) haga <a href=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/wfh-wbdr-impact-report-2024.pdf\" target=\"_blank\" rel=\"noopener\">clic aqu\u00ed<\/a>. Si desea obtener m\u00e1s informaci\u00f3n sobre el RMTC haga <a href=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/registro-mundial-de-trastornos-de-la-coagulacion\/\" target=\"_blank\" rel=\"noopener\">clic aqu\u00ed<\/a>.<\/p>\n<p><em>El RMTC es posible gracias al apoyo de nuestra aliada visionaria, Sobi, y de nuestras aliadas colaboradoras, Grifols, F. Hoffman-La Roche, Novo Nordisk, Pfizer y Sanofi.<\/em><\/p>\n<style> .elementor-element-8fb8c97 { display: none; } <\/style>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>La Federaci\u00f3n Mundial de Hemofilia (FMH) se enorgullece en anunciar la publicaci\u00f3n del Informe 2024 sobre el impacto del Registro Mundial de Trastornos de la coagulaci\u00f3n (RMTC), el cual marca el s\u00e9ptimo a\u00f1o de esta importante iniciativa a escala mundial. El RMTC est\u00e1 dise\u00f1ado para recopilar sistem\u00e1ticamente datos m\u00e9dicos del mundo real sobre personas con hemofilia (PCH) y personas con enfermedad de Von Willebrand (PCEVW); el informe demuestra que el RMTC desempe\u00f1a un papel cada vez m\u00e1s importante a fin de modelar la atenci\u00f3n, la investigaci\u00f3n y las actividades de cabildeo a escala mundial para nuestra comunidad.<\/p>\n","protected":false},"author":13,"featured_media":143563,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[339,357],"tags":[],"search-category":[85],"class_list":["post-143580","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured-3-es","category-rmtc-es","search-category-article"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v23.4 (Yoast SEO v23.4) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Se publica el Informe 2024 sobre el impacto del RMTC | FMH - Federaci\u00f3n Mundial de Hemofilia<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/es\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Se publica el Informe 2024 sobre el impacto del RMTC\" \/>\n<meta property=\"og:description\" content=\"La Federaci\u00f3n Mundial de Hemofilia (FMH) se enorgullece en anunciar la publicaci\u00f3n del Informe 2024 sobre el impacto del Registro Mundial de Trastornos de la coagulaci\u00f3n (RMTC), el cual marca el s\u00e9ptimo a\u00f1o de esta importante iniciativa a escala mundial. El RMTC est\u00e1 dise\u00f1ado para recopilar sistem\u00e1ticamente datos m\u00e9dicos del mundo real sobre personas con hemofilia (PCH) y personas con enfermedad de Von Willebrand (PCEVW); el informe demuestra que el RMTC desempe\u00f1a un papel cada vez m\u00e1s importante a fin de modelar la atenci\u00f3n, la investigaci\u00f3n y las actividades de cabildeo a escala mundial para nuestra comunidad.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/es\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - Federaci\u00f3n Mundial de Hemofilia\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:published_time\" content=\"2025-05-23T13:00:42+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-06-04T15:08:03+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/2024-WBDR-Impact-Report-published-header-SP-2.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"627\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Mitch Semienchuk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"Mitch Semienchuk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/wfh.org\/es\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/\"},\"author\":{\"name\":\"Mitch Semienchuk\",\"@id\":\"https:\/\/wfh.org\/es\/#\/schema\/person\/f57928f0dd0ca8906b81082895256d8f\"},\"headline\":\"Se publica el Informe 2024 sobre el impacto del RMTC\",\"datePublished\":\"2025-05-23T13:00:42+00:00\",\"dateModified\":\"2025-06-04T15:08:03+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/\"},\"wordCount\":331,\"publisher\":{\"@id\":\"https:\/\/wfh.org\/es\/#organization\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/es\/article\/se-publica-el-informe-2024-sobre-el-impacto-del-rmtc\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2025\/05\/2024-WBDR-Impact-Report-published-header-SP-2.jpg\",\"articleSection\":[\"Featured 3 - 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