{"id":27621,"date":"2021-12-01T10:00:00","date_gmt":"2021-12-01T15:00:00","guid":{"rendered":"https:\/\/wfh.org\/recoleccion-de-datos\/"},"modified":"2025-04-01T13:31:51","modified_gmt":"2025-04-01T17:31:51","slug":"investigacion-y-recoleccion-de-datos","status":"publish","type":"page","link":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/","title":{"rendered":"Investigaci\u00f3n y recolecci\u00f3n de datos"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"27621\" class=\"elementor elementor-27621 elementor-4648\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-30856c5 elementor-section-full_width elementor-reverse-mobile elementor-section-height-default elementor-section-height-default\" data-id=\"30856c5\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-8e07530 elementor-hidden-mobile\" data-id=\"8e07530\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-baeb9c0 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"baeb9c0\" data-element_type=\"section\" data-e-type=\"section\" id=\"side_nav\" data-settings=\"{&quot;sticky&quot;:&quot;top&quot;,&quot;motion_fx_motion_fx_scrolling&quot;:&quot;yes&quot;,&quot;sticky_offset&quot;:15,&quot;motion_fx_devices&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;],&quot;sticky_on&quot;:[&quot;desktop&quot;,&quot;tablet&quot;,&quot;mobile&quot;],&quot;sticky_effects_offset&quot;:0,&quot;sticky_anchor_link_offset&quot;:0}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-2787822\" data-id=\"2787822\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-696aafe elementor-widget elementor-widget-heading\" data-id=\"696aafe\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\">INVESTIGACI\u00d3N Y RECOLECCI\u00d3N DE DATOS<\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a2f3dfd elementor-widget elementor-widget-heading\" data-id=\"a2f3dfd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#ags\">Sondeo Mundial Anual<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1cc27dc elementor-widget elementor-widget-heading\" data-id=\"1cc27dc\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#gtr\">Registro de Terapia G\u00e9nica<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5d2cf12 elementor-widget elementor-widget-heading\" data-id=\"5d2cf12\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\"><a href=\"#wbdr\">Registro Mundial de Trastornos de la Coagulaci\u00f3n<\/a><\/span>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-b141023\" data-id=\"b141023\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-293f942 elementor-widget elementor-widget-template\" data-id=\"293f942\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"template.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-template\">\n\t\t\t\t\t<div data-elementor-type=\"section\" data-elementor-id=\"25311\" class=\"elementor elementor-25311 elementor-25306 elementor-25306\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4897f92e elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"4897f92e\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-75983c78\" data-id=\"75983c78\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-21504386 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"21504386\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-inner-column elementor-element elementor-element-7ba5d59b\" data-id=\"7ba5d59b\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-4f85140c elementor-widget elementor-widget-spacer\" data-id=\"4f85140c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-ac3aa73 elementor-widget elementor-widget-heading\" data-id=\"ac3aa73\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Investigaci\u00f3n y recolecci\u00f3n de datos<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-1af4ebf elementor-widget elementor-widget-text-editor\" data-id=\"1af4ebf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Nuestros esfuerzos de investigaci\u00f3n y recolecci\u00f3n de datos se conjuntan bajo el Programa de la FMH de Investigaci\u00f3n y recolecci\u00f3n de datos, el cual comprende el Sondeo Mundial Anual, el Registro Mundial de Trastornos de la Coagulaci\u00f3n, y sus programas conexos de instrucci\u00f3n y desarrollo de la capacidad. Nuestro objetivo es proporcionar a organizaciones nacionales miembros (ONM) y centros de tratamiento de hemofilia (CTH) la capacidad y el marco de referencia para recolectar datos sobre personas con trastornos de la coagulaci\u00f3n, as\u00ed como la instrucci\u00f3n y la capacitaci\u00f3n a fin de utilizar tales datos en actividades de investigaci\u00f3n y para abogar por una mejor atenci\u00f3n.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f8bded6 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"f8bded6\" data-element_type=\"section\" data-e-type=\"section\" id=\"ags\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-fa00a14\" data-id=\"fa00a14\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-acdd4ce\" data-id=\"acdd4ce\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0e8b1cb clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"0e8b1cb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">SONDEO MUNDIAL ANUAL<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-64b1295 clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"64b1295\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>El <strong>Sondeo Mundial Anual<\/strong> es un sondeo anual transversal entre las organizaciones nacionales miembros (ONM) de la FMH que abarca datos demogr\u00e1ficos y relacionados con el tratamiento, a escala nacional, sobre personas con hemofilia (PCH), con enfermedad de Von Willebrand (EVW), con deficiencias poco comunes de factor de coagulaci\u00f3n, y con trastornos plaquetarios hereditarios.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-05973ea elementor-mobile-align-left elementor-align-left elementor-widget elementor-widget-button\" data-id=\"05973ea\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/sondeo-mundial-anual\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-arrow-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">M\u00e1s informaci\u00f3n&nbsp;&nbsp;<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-5ed467e elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"5ed467e\" data-element_type=\"section\" data-e-type=\"section\" id=\"gtr\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-c76f0f4\" data-id=\"c76f0f4\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-13e0045\" data-id=\"13e0045\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0a14588 clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"0a14588\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">REGISTRO DE TERAPIA G\u00c9NICA<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-43dee4f clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"43dee4f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>La terapia g\u00e9nica para la hemofilia es una modalidad terap\u00e9utica novedosa y en evoluci\u00f3n. Los ensayos cl\u00ednicos han establecido la eficacia de la terapia g\u00e9nica para reducir hemorragias y el uso de tratamiento hemost\u00e1tico durante por lo menos 5 a 8 a\u00f1os despu\u00e9s de la infusi\u00f3n. No obstante, luego de haberse completado los programas iniciales de ensayos cl\u00ednicos, todav\u00eda permanecen muchas cuestiones sin resolver respecto a la seguridad, variabilidad y durabilidad de la eficacia a largo plazo. El seguimiento de pacientes de por vida es fundamental a fin de monitorear la seguridad y eficacia a largo plazo de la terapia g\u00e9nica.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-bc63d22 elementor-mobile-align-left elementor-align-left elementor-widget elementor-widget-button\" data-id=\"bc63d22\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/registro-de-terapia-genica\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-arrow-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">M\u00e1s informaci\u00f3n&nbsp;&nbsp;<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-648e87a elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"648e87a\" data-element_type=\"section\" data-e-type=\"section\" id=\"wbdr\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t\t<div class=\"elementor-background-overlay\"><\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-a493d3f\" data-id=\"a493d3f\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-a00f86d\" data-id=\"a00f86d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-7e01437 clamp_h2 elementor-widget elementor-widget-heading\" data-id=\"7e01437\" data-element_type=\"widget\" data-e-type=\"widget\" id=\"wbdr\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">REGISTRO MUNDIAL DE TRASTORNOS DE LA COAGULACI\u00d3N<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3daa20b clamp_p elementor-widget elementor-widget-text-editor\" data-id=\"3daa20b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p class=\"\">El Registro Mundial de Trastornos de la Coagulaci\u00f3n (RMTC) es el \u00fanico registro mundial que recopila datos cl\u00ednicos estandarizados sobre personas con hemofilia (PCH) y personas con enfermedad de Von Willebrand (EVW). El RMTC ofrece una plataforma de ingreso de datos basada en internet a una amplia red de centros de tratamiento de hemofilia (CTH) participantes para que recolecten y administren sus datos.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-cde80a1 elementor-mobile-align-left elementor-align-left elementor-widget elementor-widget-button\" data-id=\"cde80a1\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/registro-mundial-de-trastornos-de-la-coagulacion\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fas fa-arrow-right\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">M\u00e1s informaci\u00f3n&nbsp;&nbsp;<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ff6f0f0 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"ff6f0f0\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-91877f9\" data-id=\"91877f9\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5ea4346 elementor-widget elementor-widget-template\" data-id=\"5ea4346\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"template.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-template\">\n\t\t\t\t\t<div data-elementor-type=\"page\" data-elementor-id=\"25655\" class=\"elementor elementor-25655 elementor-15864 elementor-15864\" data-elementor-post-type=\"elementor_library\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0a1e965 elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"0a1e965\" data-element_type=\"section\" data-e-type=\"section\" id=\"didyouknow\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-a503e06\" data-id=\"a503e06\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-1c884f6 elementor-section-full_width elementor-section-content-space-between elementor-section-height-default elementor-section-height-default\" data-id=\"1c884f6\" data-element_type=\"section\" data-e-type=\"section\" id=\"didyouknowsection\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-9fa7084 didyouknowcolumn\" data-id=\"9fa7084\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-97b2942 elementor-widget elementor-widget-heading\" data-id=\"97b2942\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">\u00bfSab\u00eda usted que\u2026?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-45e8528 elementor-widget elementor-widget-toolset-view\" data-id=\"45e8528\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"toolset-view.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\n\n\n<div id=\"wpv-view-layout-16225\" class=\"js-wpv-view-layout js-wpv-layout-responsive js-wpv-view-layout-16225\" data-viewnumber=\"16225\" data-pagination=\"{&quot;id&quot;:16225,&quot;query&quot;:&quot;normal&quot;,&quot;type&quot;:&quot;disabled&quot;,&quot;effect&quot;:&quot;fade&quot;,&quot;duration&quot;:500,&quot;speed&quot;:5,&quot;pause_on_hover&quot;:&quot;enabled&quot;,&quot;stop_rollover&quot;:&quot;false&quot;,&quot;cache_pages&quot;:&quot;enabled&quot;,&quot;preload_images&quot;:&quot;enabled&quot;,&quot;preload_pages&quot;:&quot;enabled&quot;,&quot;preload_reach&quot;:1,&quot;spinner&quot;:&quot;builtin&quot;,&quot;spinner_image&quot;:&quot;https:\/\/wfh.org\/wp-content\/plugins\/toolset-blocks\/embedded\/res\/img\/ajax-loader.gif&quot;,&quot;callback_next&quot;:&quot;&quot;,&quot;manage_history&quot;:&quot;enabled&quot;,&quot;has_controls_in_form&quot;:&quot;disabled&quot;,&quot;infinite_tolerance&quot;:&quot;0&quot;,&quot;max_pages&quot;:1,&quot;page&quot;:1,&quot;base_permalink&quot;:&quot;\/es\/wp-json\/wp\/v2\/pages\/27621?wpv_view_count=16225&amp;wpv_paged=WPV_PAGE_NUM&quot;,&quot;loop&quot;:{&quot;type&quot;:&quot;&quot;,&quot;name&quot;:&quot;&quot;,&quot;data&quot;:[],&quot;id&quot;:0}}\" data-permalink=\"\/es\/wp-json\/wp\/v2\/pages\/27621?wpv_view_count=16225\">\n\n\t\n\t\n\t\n\t\t<div class=\"tip-body\">\n\n<p>La FMH apoya y empodera a l\u00edderes de pacientes y profesionales de la salud en todo el mundo ofreciendo programas e iniciativas de capacitaci\u00f3n a escala nacional, regional y mundial.<\/p>\n\n<\/div>\n<div class=\"tip-link\">\n  <a href=\"https:\/\/wfh.org\/es\/capacitacion\/\" target=\"new\" rel=\"noopener\">Lea toda la historia<\/a>\n<\/div>\n\t\n\t\n\t\n\t\n<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-4afb142 didyouknowcolumn\" data-id=\"4afb142\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e65ed04 elementor-widget elementor-widget-heading\" data-id=\"e65ed04\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Eventos pr\u00f3ximos<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d53508c elementor-widget elementor-widget-html\" data-id=\"d53508c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<!-- event list -->\r\n<div id=\"footer-event-list\"><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-974c8af elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"974c8af\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/es\/eventos\/\">\n\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" x=\"0px\" y=\"0px\" viewBox=\"0 0 52.44 47.37\" style=\"enable-background:new 0 0 52.44 47.37;\" xml:space=\"preserve\"><style type=\"text\/css\">\t.st0{fill:#51A346;}\t.st1{fill:none;stroke:#51A346;stroke-width:1.85;stroke-miterlimit:10;}\t.st2{fill-rule:evenodd;clip-rule:evenodd;fill:#51A346;}\t.st3{fill:#51A346;}\t.st4{fill:#51A346;}\t.st5{fill:#51A346;}<\/style><g id=\"Layer_1\">\t<g>\t\t<path class=\"st4\" d=\"M44.2,4.13h-4.5v-2.5c0-0.83-0.67-1.5-1.5-1.5s-1.5,0.67-1.5,1.5v2.5h-21v-2.5c0-0.83-0.67-1.5-1.5-1.5   s-1.5,0.67-1.5,1.5v2.5H8.2c-4.41,0-8,3.59-8,8v32c0,1.65,1.35,3,3,3h46c1.65,0,3-1.35,3-3v-32C52.2,7.72,48.61,4.13,44.2,4.13z    M8.2,7.13h4.5v1.84c0,0.83,0.67,1.5,1.5,1.5s1.5-0.67,1.5-1.5V7.13h21v1.84c0,0.83,0.67,1.5,1.5,1.5s1.5-0.67,1.5-1.5V7.13h4.5   c2.76,0,5,2.24,5,5v1h-46v-1C3.2,9.37,5.44,7.13,8.2,7.13z M3.2,44.13v-28h46v28H3.2z\"><\/path>\t\t<rect x=\"7.2\" y=\"21.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"22.2\" y=\"21.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"37.2\" y=\"21.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"7.2\" y=\"28.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"22.2\" y=\"28.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"37.2\" y=\"28.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"7.2\" y=\"35.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"22.2\" y=\"35.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t\t<rect x=\"37.2\" y=\"35.63\" class=\"st4\" width=\"8\" height=\"3\"><\/rect>\t<\/g><\/g><g id=\"Layer_2\"><\/g><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Vea el calendario de eventos de la FMH<\/span>\n\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-185e35b didyouknowcolumn\" data-id=\"185e35b\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-325e798 elementor-widget elementor-widget-heading\" data-id=\"325e798\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Mant\u00e9ngase informado(a)<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-43b4e22 elementor-widget elementor-widget-text-editor\" data-id=\"43b4e22\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Mant\u00e9ngase al tanto de los acontecimientos m\u00e1s recientes en la comunidad de trastornos de la coagulaci\u00f3n, desde avances m\u00e9dicos hasta eventos relevantes.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-83fc1b4 elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list\" data-id=\"83fc1b4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"icon-list.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<ul class=\"elementor-icon-list-items\">\n\t\t\t\t\t\t\t<li class=\"elementor-icon-list-item\">\n\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/wfh.org\/es\/boletin-de-la-fmh\/\">\n\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-icon\">\n\t\t\t\t\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" x=\"0px\" y=\"0px\" viewBox=\"0 0 34.82 32.13\" style=\"enable-background:new 0 0 34.82 32.13;\" xml:space=\"preserve\"><style type=\"text\/css\">\t.st0{fill:#1F3F78;}\t.st1{fill:none;stroke:#1F3F78;stroke-width:1.85;stroke-miterlimit:10;}\t.st2{fill-rule:evenodd;clip-rule:evenodd;fill:#1F3F78;}\t.st3{fill:#EC174C;}\t.st4{fill:#008CB1;}\t.st5{fill:#6F256F;}<\/style><g id=\"Layer_1\">\t<g id=\"Group_6701_00000106136833195115388960000012099990034304962745_\" transform=\"translate(-367.971 -446.191)\">\t\t<path id=\"Path_1104_00000157296017888833832030000009290557825706967199_\" class=\"st0\" d=\"M378.89,456.15h13.02   c0.55,0,0.99-0.44,0.99-0.99c0,0,0,0,0,0v-4.54c0-0.55-0.44-0.99-0.99-0.99c0,0,0,0,0,0h-13.02c-0.55,0-0.99,0.44-0.99,0.99   c0,0,0,0,0,0v4.54C377.9,455.71,378.34,456.15,378.89,456.15C378.89,456.15,378.89,456.15,378.89,456.15z M379.88,451.61h11.04   v2.56h-11.04L379.88,451.61z\"><\/path>\t\t<path id=\"Path_1105_00000103980590201817606960000017424603645996695699_\" class=\"st0\" d=\"M378.89,459.03h13.02   c0.55-0.02,0.98-0.48,0.96-1.02c-0.02-0.52-0.44-0.94-0.96-0.96h-13.02c-0.55,0.02-0.98,0.48-0.96,1.02   C377.95,458.6,378.37,459.02,378.89,459.03z\"><\/path>\t\t<path id=\"Path_1106_00000120557169353425020840000004222517039856756865_\" class=\"st0\" d=\"M378.89,462.03h13.02   c0.55-0.02,0.98-0.48,0.96-1.02c-0.02-0.52-0.44-0.94-0.96-0.96h-13.02c-0.55,0.02-0.98,0.48-0.96,1.02   C377.95,461.6,378.37,462.02,378.89,462.03z\"><\/path>\t\t<path id=\"Path_1107_00000144308105640718152750000000336907211154305427_\" class=\"st0\" d=\"M402.78,457.99   c0.09-0.4-0.09-0.82-0.44-1.04l-5.79-3.53v-5.22c0.11-0.96-0.58-1.83-1.54-1.94c-0.06-0.01-0.12-0.01-0.17-0.01H376.2   c-0.98-0.09-1.85,0.63-1.94,1.61c-0.01,0.06-0.01,0.12-0.01,0.18v5.62l-5.77,3.28c-0.37,0.21-0.56,0.64-0.47,1.05   c-0.02,0.07-0.02,0.13-0.03,0.2v18.12c-0.03,1.05,0.8,1.92,1.85,1.95c0.03,0,0.06,0,0.09,0h30.92c1,0.07,1.86-0.69,1.92-1.68   c0.01-0.09,0.01-0.17,0-0.26l0.03-18.12C402.8,458.13,402.8,458.06,402.78,457.99z M400.26,457.96l-3.71,2.11v-4.37L400.26,457.96   z M394.6,448.2v12.97l-9.26,5.26l-9.15-5.23v-13H394.6z M374.25,460.09l-3.68-2.1l3.68-2.09V460.09z M400.86,476.31h-30.92v-16.45   l14.3,8.15c0.71,0.43,1.6,0.43,2.31,0l14.32-8.15V476.31z\"><\/path>\t<\/g><\/g><g id=\"Layer_2\"><\/g><\/svg>\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-icon-list-text\">Suscr\u00edbase ahora<\/span>\n\t\t\t\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t<\/li>\n\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>INVESTIGACI\u00d3N Y RECOLECCI\u00d3N DE DATOS Sondeo Mundial Anual Registro de Terapia G\u00e9nica Registro Mundial de Trastornos de la Coagulaci\u00f3n Investigaci\u00f3n y recolecci\u00f3n de datos Nuestros esfuerzos de investigaci\u00f3n y recolecci\u00f3n [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":23142,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"inline_featured_image":false,"footnotes":""},"search-category":[],"class_list":["post-27621","page","type-page","status-publish","has-post-thumbnail","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.2 (Yoast SEO v27.2) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Investigaci\u00f3n y recolecci\u00f3n de datos | FMH - Federaci\u00f3n Mundial de Hemofilia<\/title>\n<meta name=\"description\" content=\"Read more about WFH&#039;s efforts in research and data including the annual global survey, gene therapy registry, and the world bleeding disorder registry.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Investigaci\u00f3n y recolecci\u00f3n de datos\" \/>\n<meta property=\"og:description\" content=\"Read more about WFH&#039;s efforts in research and data including the annual global survey, gene therapy registry, and the world bleeding disorder registry.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/\" \/>\n<meta property=\"og:site_name\" content=\"FMH - Federaci\u00f3n Mundial de Hemofilia\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/wfhemophilia\/\" \/>\n<meta property=\"article:modified_time\" content=\"2025-04-01T17:31:51+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"472\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data1\" content=\"2 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/\",\"url\":\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/\",\"name\":\"Investigaci\u00f3n y recolecci\u00f3n de datos | FMH - Federaci\u00f3n Mundial de Hemofilia\",\"isPartOf\":{\"@id\":\"https:\/\/wfh.org\/es\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg\",\"datePublished\":\"2021-12-01T15:00:00+00:00\",\"dateModified\":\"2025-04-01T17:31:51+00:00\",\"description\":\"Read more about WFH's efforts in research and data including the annual global survey, gene therapy registry, and the world bleeding disorder registry.\",\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/#primaryimage\",\"url\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg\",\"contentUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg\",\"width\":1200,\"height\":472,\"caption\":\"Una mujer muestra informaci\u00f3n en la pantalla de una computadora a dos personas que observan.\"},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/wfh.org\/es\/#website\",\"url\":\"https:\/\/wfh.org\/es\/\",\"name\":\"FMH - Federaci\u00f3n Mundial de Hemofilia\",\"description\":\"WFH - World Federation of Hemophilia\",\"publisher\":{\"@id\":\"https:\/\/wfh.org\/es\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/wfh.org\/es\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"es\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/wfh.org\/es\/#organization\",\"name\":\"World Federation of Hemophilia\",\"url\":\"https:\/\/wfh.org\/es\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"es\",\"@id\":\"https:\/\/wfh.org\/es\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg\",\"contentUrl\":\"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg\",\"width\":210,\"height\":63,\"caption\":\"World Federation of Hemophilia\"},\"image\":{\"@id\":\"https:\/\/wfh.org\/es\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/wfhemophilia\/\"]}]}<\/script>\n<!-- \/ Yoast SEO Premium plugin. -->","yoast_head_json":{"title":"Investigaci\u00f3n y recolecci\u00f3n de datos | FMH - Federaci\u00f3n Mundial de Hemofilia","description":"Read more about WFH's efforts in research and data including the annual global survey, gene therapy registry, and the world bleeding disorder registry.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/","og_locale":"es_ES","og_type":"article","og_title":"Investigaci\u00f3n y recolecci\u00f3n de datos","og_description":"Read more about WFH's efforts in research and data including the annual global survey, gene therapy registry, and the world bleeding disorder registry.","og_url":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/","og_site_name":"FMH - Federaci\u00f3n Mundial de Hemofilia","article_publisher":"https:\/\/www.facebook.com\/wfhemophilia\/","article_modified_time":"2025-04-01T17:31:51+00:00","og_image":[{"width":1200,"height":472,"url":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","twitter_misc":{"Tiempo de lectura":"2 minutos"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/","url":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/","name":"Investigaci\u00f3n y recolecci\u00f3n de datos | FMH - Federaci\u00f3n Mundial de Hemofilia","isPartOf":{"@id":"https:\/\/wfh.org\/es\/#website"},"primaryImageOfPage":{"@id":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/#primaryimage"},"image":{"@id":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/#primaryimage"},"thumbnailUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg","datePublished":"2021-12-01T15:00:00+00:00","dateModified":"2025-04-01T17:31:51+00:00","description":"Read more about WFH's efforts in research and data including the annual global survey, gene therapy registry, and the world bleeding disorder registry.","inLanguage":"es","potentialAction":[{"@type":"ReadAction","target":["https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/"]}]},{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/wfh.org\/es\/investigacion-y-recoleccion-de-datos\/#primaryimage","url":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg","contentUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2022\/02\/13-Data_collection.jpg","width":1200,"height":472,"caption":"Una mujer muestra informaci\u00f3n en la pantalla de una computadora a dos personas que observan."},{"@type":"WebSite","@id":"https:\/\/wfh.org\/es\/#website","url":"https:\/\/wfh.org\/es\/","name":"FMH - Federaci\u00f3n Mundial de Hemofilia","description":"WFH - World Federation of Hemophilia","publisher":{"@id":"https:\/\/wfh.org\/es\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/wfh.org\/es\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"es"},{"@type":"Organization","@id":"https:\/\/wfh.org\/es\/#organization","name":"World Federation of Hemophilia","url":"https:\/\/wfh.org\/es\/","logo":{"@type":"ImageObject","inLanguage":"es","@id":"https:\/\/wfh.org\/es\/#\/schema\/logo\/image\/","url":"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg","contentUrl":"https:\/\/wfh.org\/wp-content\/uploads\/2021\/10\/WFH-LOGO-ENGLISH.svg","width":210,"height":63,"caption":"World Federation of Hemophilia"},"image":{"@id":"https:\/\/wfh.org\/es\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/wfhemophilia\/"]}]}},"_links":{"self":[{"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/pages\/27621","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/comments?post=27621"}],"version-history":[{"count":0,"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/pages\/27621\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/media\/23142"}],"wp:attachment":[{"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/media?parent=27621"}],"wp:term":[{"taxonomy":"search-category","embeddable":true,"href":"https:\/\/wfh.org\/es\/wp-json\/wp\/v2\/search-category?post=27621"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}