1.0FMH - Federación Mundial de Hemofiliahttps://wfh.org/es/Hampig Krjalianhttps://wfh.org/es/article/author/hampig/rich600338<blockquote class="wp-embedded-content" data-secret="bMrjIn04PZ"><a href="https://wfh.org/es/article/speaker/baiba-ziemele/">Baiba Ziemele</a></blockquote><iframe sandbox="allow-scripts" security="restricted" src="https://wfh.org/es/article/speaker/baiba-ziemele/embed/#?secret=bMrjIn04PZ" width="600" height="338" title="«Baiba Ziemele» — FMH - Federación Mundial de Hemofilia" data-secret="bMrjIn04PZ" frameborder="0" marginwidth="0" marginheight="0" scrolling="no" class="wp-embedded-content"></iframe><script> /*! This file is auto-generated */ !function(d,l){"use strict";l.querySelector&&d.addEventListener&&"undefined"!=typeof URL&&(d.wp=d.wp||{},d.wp.receiveEmbedMessage||(d.wp.receiveEmbedMessage=function(e){var t=e.data;if((t||t.secret||t.message||t.value)&&!/[^a-zA-Z0-9]/.test(t.secret)){for(var s,r,n,a=l.querySelectorAll('iframe[data-secret="'+t.secret+'"]'),o=l.querySelectorAll('blockquote[data-secret="'+t.secret+'"]'),c=new RegExp("^https?:$","i"),i=0;i<o.length;i++)o[i].style.display="none";for(i=0;i<a.length;i++)s=a[i],e.source===s.contentWindow&&(s.removeAttribute("style"),"height"===t.message?(1e3<(r=parseInt(t.value,10))?r=1e3:~~r<200&&(r=200),s.height=r):"link"===t.message&&(r=new URL(s.getAttribute("src")),n=new URL(t.value),c.test(n.protocol))&&n.host===r.host&&l.activeElement===s&&(d.top.location.href=t.value))}},d.addEventListener("message",d.wp.receiveEmbedMessage,!1),l.addEventListener("DOMContentLoaded",function(){for(var e,t,s=l.querySelectorAll("iframe.wp-embedded-content"),r=0;r<s.length;r++)(t=(e=s[r]).getAttribute("data-secret"))||(t=Math.random().toString(36).substring(2,12),e.src+="#?secret="+t,e.setAttribute("data-secret",t)),e.contentWindow.postMessage({message:"ready",secret:t},"*")},!1)))}(window,document); //# sourceURL=https://wfh.org/wp-includes/js/wp-embed.min.js </script> https://wfh.org/wp-content/uploads/2023/06/Baiba-Ziemele.jpg800800Baiba Ziemele is a passionate patient advocate from Latvia. Living with inherited bleeding disorder, von Willebrand disease (VWD), she has been heavily involved in patient advocacy, becoming president of Latvia Hemophilia Society in 2009, representing European community with bleeding disorders as ePAG in EuroBloodNet, European Reference Network for rare haematological diseases, engaging in Women’s and Girls with Bleeding Disorders Committee and VWD and Rare Bleeding Disorders committee at World Federation of Hemophilia and VWD Committee at European Haemophilia Consortium. She has helped shaping rare disease field nationally and internationally. Since 2018, Baiba is also building Latvian Network of Patient Organizations to bring united patient voice and represent patient interests at various tables. In 2022, Baiba received Human Development award for outstanding contribution to health from Civic Alliance Latvia and US Embassy in Latvia.