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For families affected by hemophilia in Morocco, access to treatment has changed not only medical care, but daily life. Adam, a young boy, was diagnosed after a fall caused him to bleed excessively. “When we took him in [to the hospital], they told us he had hemophilia,” recalled his father, Hasan. For his parents, the diagnosis brought fear and uncertainty—worries that were only alleviated by support provided by the local organizations, the World Federation of Hemophilia (WFH) and the WFH Humanitarian Aid Program.
Project Elevate Her, a multi-year global awareness, advocacy, and fundraising initiative founded by Maia Meier, is using some of the world’s highest peaks to spotlight the needs of women and girls living with bleeding disorders (WGBDs). As a global charity partner, the World Federation of Hemophilia (WFH) is proud to be part of this initiative that will have a strong impact on our community, and which closely aligns with our commitment to improving the recognition, diagnosis, and care of WGBDs.
In Lebanon, refugees and non-Lebanese people with inherited bleeding disorders (PWBDs) can’t access treatment products because they aren’t nationals. Staying true to its mission to support every patient within Lebanese borders who needs care, the Lebanese Association for Hemophilia (LAH)—the World Federation of Hemophilia (WFH) national member organization (NMO)—has been stepping in to provide access to treatment regardless of nationality or legal status.
Join us virtually on October 20 and 21, 2026, for the fifth edition of the WFH Global Policy and Access Summit (GPAS). This free, two-day global event is a unique opportunity to learn, discuss, and exchange knowledge on navigating the evolving treatment landscape and addressing existing gaps in access to care and treatment for people with bleeding disorders.
For years, Tanvirul Haq’s childhood was shaped by pain, limited mobility, and the constant disruption caused by severe bleeding episodes. Diagnosed with hemophilia as an infant, the Bangladeshi youth struggled to participate in everyday activities that many healthy children take for granted. Today, thanks to access to non-factor replacement therapy provided by the World Federation of Hemophilia (WFH), he can attend school regularly, play with his friends, and enjoy a far more active and independent life.
National member organizations (NMOs) are the heartbeat of the World Federation of Hemophilia (WFH). The WFH works in close collaboration with NMOs to provide them with support tailored to their realities to help them increase the level of care for the people with bleeding disorders (PWBDs) in their countries. Every few weeks we will be profiling an NMO on the WFH News page, showcasing the work that they are doing, the challenges they are facing, and the difference they are making in their communities. Today, we look at the NMO in the Ivory Coast, the Hémophilie et autres maladies du sang de Cote d’Ivoire (ONG IHMS-CI).
For Marlène Beijlevelt, a Nurse Practitioner specializing in bleeding disorder care in the Amsterdam University Medical Center, Amsterdam, Netherlands, shared decision-making is much more than just a conversation between a patient and a healthcare professional. It’s a continuous journey that empowers patients and families to explore their choices, identify their priorities, and work collaboratively with their healthcare team to make decisions that best align with their individual needs and values.
The World Federation of Hemophilia (WFH) was pleased to collaborate with the ASEAN Hemophilia Network (AHN) to host the “Data-Driven Advocacy & Strategy Workshop” during the WFH 2026 World Congress in Kuala Lumpur, Malaysia. The workshop helped participants use data to support advocacy initiatives, strategic planning, and improved care for people with bleeding disorders. This hands-on, interactive event brought together representatives from WFH national member organizations (NMOs) from across eight countries in the Asia-Pacific region.